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  • in reply to: 2b’s test 4 week tests–hmmm #5460
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    @bloot

    I’m far from a doctor or even an expert and all I’ve done is type ‘Hep c Ab <1.00 S/C' into my search engine
    So please take this with a grain of salt
    But I've found 2 pieces that may indicate a reason to feel positive conjecture rather than negative

    Results are calculated as normalized signal-to-cutoff (S/Co) ratios obtained by measuring the signal strength of sample and the signal strength of an internal cutoff. Samples with an S/Co ratio of ≥1.0 are defined by the manufacturer as positive.

    Also here on Page 10
    http://www.cdc.gov/nchs/data/nhanes/nhanes_11_12/HEPC_G_met_Hepatitis_C_antibody_confirmed.pdf

    Final VITROS Anti-HCV
    Test Result (s/c)
    Conclusion from Testing
    Algorithm Interpretation
    <1.00 Negative Anti-HCV IgG not detected.
    Patient is presumed not to be infected with HCV.

    >1.00 Reactive Anti-HCV IgG detected. Patient is
    presumed to be infected with HCV, state or
    associated disease not determined. Follow
    CDC recommendations for supplemental testing

    Couldn’t find anything on the 33.9 value


    52 y.o. G3a for about 30 years
    Previous tx 2004 interferon/ ribavarin
    2004: ALT 624 AST 263

    Pre tx test 23/10/15: ALT 153 AST 128 VL 11 849 493
    6/11/15: Sof/ dac started
    26/11/15: ALT 41 AST 41
    7/12/15: ALT 36 AST 30 Virus undetected

    2004 biopsy F3
    Fibroscan appt Jan 11 2016.

    in reply to: 2b’s test 4 week tests–hmmm #5452
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    @bloot

    In the US. Oh well, gave me a good reason to have a rant anyway lol

    I’m sure someone will be able to shed light on what those results mean
    Good luck mate for an end to the mental conjecture
    Your AST/ ALT are great. so I’m sure you’re on track to be cured
    You’ve still got quite a few weeks for tx to knock off any tough stragglers


    52 y.o. G3a for about 30 years
    Previous tx 2004 interferon/ ribavarin
    2004: ALT 624 AST 263

    Pre tx test 23/10/15: ALT 153 AST 128 VL 11 849 493
    6/11/15: Sof/ dac started
    26/11/15: ALT 41 AST 41
    7/12/15: ALT 36 AST 30 Virus undetected

    2004 biopsy F3
    Fibroscan appt Jan 11 2016.

    in reply to: 2b’s test 4 week tests–hmmm #5448
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    @bloot

    Hey mate – I will only answer the parts I know

    The drop in AST/ ALT liver enzymes is a very positive sign the drugs are working
    Healthy cells in the liver contain these enzymes. When they are damaged they leak these into the blood hence the higher scores.

    I’m not sure what your antibody results mean

    But I do know that liver clinics won’t, as far as I have experienced, test for viral load
    I went for my bloods yesterday and the nurse said (a different nurse this time, but same line)
    ‘Why would we test for viral load. If you have the virus, the viral load is irrelevant.?’
    Well maybe for a psychological benefit to see my VL drop from 11 million to under a million, say, and I could see how well the drugs are working and if I should continue the treatment to 24 weeks.’
    ‘If this test comes in as hep c negative, then we will assess your options then. Viral loads are very expensive and only allowed 1 or 2 a year and the information is not useful. You don’t need a viral load.’

    I know quite a few people who work in, or used to work in the health system
    The fact is that while they are monitoring you, they own you
    While they are instructed to support generic patients, many do it begrudgingly and they still treat you as though you are their property and you really have to agitate for information
    And even then it depends on the individual person you are dealing with

    Every person i have dealt with has been quick to give me a hard time for going with treatment before OK’ing it with them.
    This was with the liver clinic doctor at Penrith hospital
    ‘We support the generic treatment. But you’ve gone off and done it before your fibroscan so we have to come in now and sweep up the mess after the fact.’
    ‘Well just what mess is it you’re sweeping up? I’m a G3 rather than the G1 I thought. But the sof/ dac I am taking is the same for either. And I have got 3 months treatment now and will get another 3. After my fibroscan we can decide if I should continue with the next 3 or not. All I’ve done is access treatment as soon as I could rather than see the door close in my face! So can you explain to me exactly what this mess is that you are cleaning up?’
    ‘Oh look mate, I’m not having a go at you, but,,,blah blah’
    On and on it goes and it just reminds me of the dislike I developed for doctors in particular after my previous interferon/ ribavarin tx.

    If you want a viral load you may have to go through Dr Freeman at GP2U – and you are only allowed 2 a year, so he suggests one at the beginning and one at week 8 (pretty sure – I asked him and it’s somewhere on this forum)
    You may want to pay the consult fee of $99 I think it is and have a speak to the doc to get a blood script and some info not tainted with bullshit.
    One other thing, get him to tick the box that says ‘send a copy to patient’ or something like that. Either that or you will have to get the liver clinic to get the results for you, or get another consult with the doc.

    Good luck mate – pity they can’t even tell you what the results mean??
    Thankfully we have the generic alternate and Dr Freeman so we only have to put up with this crap as a cheaper option to paying out of your own pocket for scripts and tests.


    52 y.o. G3a for about 30 years
    Previous tx 2004 interferon/ ribavarin
    2004: ALT 624 AST 263

    Pre tx test 23/10/15: ALT 153 AST 128 VL 11 849 493
    6/11/15: Sof/ dac started
    26/11/15: ALT 41 AST 41
    7/12/15: ALT 36 AST 30 Virus undetected

    2004 biopsy F3
    Fibroscan appt Jan 11 2016.

    in reply to: After treatment #5368
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    @bloot
    spook77 wrote:

    After treatment will I still test positive for hepc even though I have no VL? Was thinking about getting some life insurance and I’m pretty sure they do blood work. And I’m sure if I test positive I won’t be able to get it or the rate will be crazy.

    Apart from the no questions asked default life insurance on my super, I’m insured with Virgin Life
    You need to be with them for 7 years before they will pay out a hep c related death
    So get in while your healthy lol – no other insurer would touch me

    I’m 52 next week insured for $231,000 and my premium is $89 per month

    As I remember though, all insurers only asked if I was HIV or Hepc pos
    But I would check though because they will find any way possible to wriggle out of paying a claim


    52 y.o. G3a for about 30 years
    Previous tx 2004 interferon/ ribavarin
    2004: ALT 624 AST 263

    Pre tx test 23/10/15: ALT 153 AST 128 VL 11 849 493
    6/11/15: Sof/ dac started
    26/11/15: ALT 41 AST 41
    7/12/15: ALT 36 AST 30 Virus undetected

    2004 biopsy F3
    Fibroscan appt Jan 11 2016.

    in reply to: Drinking alcohol #5158
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    @bloot

    Blimey
    I’ll have a bloody halo around my head by the end of 12 weeks lol


    52 y.o. G3a for about 30 years
    Previous tx 2004 interferon/ ribavarin
    2004: ALT 624 AST 263

    Pre tx test 23/10/15: ALT 153 AST 128 VL 11 849 493
    6/11/15: Sof/ dac started
    26/11/15: ALT 41 AST 41
    7/12/15: ALT 36 AST 30 Virus undetected

    2004 biopsy F3
    Fibroscan appt Jan 11 2016.

    in reply to: Drinking alcohol #5150
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    @bloot
    Gaj wrote:

    (also been known to have a puff but that interacts with Dac so off the menu during treatment)

    Is that right??
    Where did you read that – on this site
    I’m still puffin dammit


    52 y.o. G3a for about 30 years
    Previous tx 2004 interferon/ ribavarin
    2004: ALT 624 AST 263

    Pre tx test 23/10/15: ALT 153 AST 128 VL 11 849 493
    6/11/15: Sof/ dac started
    26/11/15: ALT 41 AST 41
    7/12/15: ALT 36 AST 30 Virus undetected

    2004 biopsy F3
    Fibroscan appt Jan 11 2016.

    in reply to: Viral Load – Quantitative vs Qualitative #5140
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    @bloot

    Thanks for this – I had no idea

    Do you know the cost of a quantitative test in NSW?


    52 y.o. G3a for about 30 years
    Previous tx 2004 interferon/ ribavarin
    2004: ALT 624 AST 263

    Pre tx test 23/10/15: ALT 153 AST 128 VL 11 849 493
    6/11/15: Sof/ dac started
    26/11/15: ALT 41 AST 41
    7/12/15: ALT 36 AST 30 Virus undetected

    2004 biopsy F3
    Fibroscan appt Jan 11 2016.

    in reply to: Drinking alcohol #5139
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    @bloot

    Dr F told me that a couple/ few drinks are OK as I specifically asked him
    But I’m actually abstaining until NYE (8 weeks on tx)
    I will then allow myself a few with a bit of a break in between drinks
    As we are visiting friends over Xmas, maybe another one or two then
    Then pretty much back on the wagon for the remaining weeks to week 24

    Also, what London Girl says is actually a good idea at parties etc
    I wander around with my 600ml plastic bottle of water which can look a bit weird lol

    I’ve always liked a drink, but looking forward to an excuse for a bit of a break
    I think the worst way to give something up is saying NO – I will not ever have any more
    Just play it by ear and see how you feel
    Have a couple if you feel like it, say no if you don’t
    It also allows everyone else to relax a bit rather than feeling guilty because they can drink and ‘poor Andy can’t have a drink’.
    And there’s just so many good boutique beers out there that it is almost your duty to partake in some over the silly season ha ha


    52 y.o. G3a for about 30 years
    Previous tx 2004 interferon/ ribavarin
    2004: ALT 624 AST 263

    Pre tx test 23/10/15: ALT 153 AST 128 VL 11 849 493
    6/11/15: Sof/ dac started
    26/11/15: ALT 41 AST 41
    7/12/15: ALT 36 AST 30 Virus undetected

    2004 biopsy F3
    Fibroscan appt Jan 11 2016.

    in reply to: Any other geno 3, F4’s doing/done treatment? #5136
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    @bloot
    berrinice wrote:

    Hi Bloot you might want to get viral load done at about 8 weeks cause if you count is less than <12 then they are saying there is no need to go much further with treatment. But 24 weeks is what I am doing. Better safe than sorry. Hopefully there are no harmful effects after prolonged use. Maybe the Dr can answer that. My feeling is the jury is still out. kindly

    Like you I'm probably going to go 24 anyway, but not add the Riba if that were the case
    Reason is that the interferon/ riba previous tx showed that the virus was not detectable
    But then they contacted me later and said it had come back
    I'd be pretty pissed off if I went for 12 because i showed nil virus and then showed positive later


    52 y.o. G3a for about 30 years
    Previous tx 2004 interferon/ ribavarin
    2004: ALT 624 AST 263

    Pre tx test 23/10/15: ALT 153 AST 128 VL 11 849 493
    6/11/15: Sof/ dac started
    26/11/15: ALT 41 AST 41
    7/12/15: ALT 36 AST 30 Virus undetected

    2004 biopsy F3
    Fibroscan appt Jan 11 2016.

    in reply to: Any other geno 3, F4’s doing/done treatment? #5020
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    @bloot

    Hey mate
    I’m 4 weeks sof/ dac this Friday
    Nothing to report good or bad re sides

    I am G3 with an F3 biopsy 12 years ago
    My full blood count was normal before tx, so no cirrhosis
    I don’t know if this F3 can go backwards or not progress, but I’m having a fibroscan in January so will be interesting

    I am committed to 24 weeks sof/ dac and am ordering my next 12 in a couple of weeks
    I’m going to buy 12 weeks Riba just in case (just because of my previous poor reading 12 years ago)
    I will make the final decision whether to proceed with the riba at week 12


    52 y.o. G3a for about 30 years
    Previous tx 2004 interferon/ ribavarin
    2004: ALT 624 AST 263

    Pre tx test 23/10/15: ALT 153 AST 128 VL 11 849 493
    6/11/15: Sof/ dac started
    26/11/15: ALT 41 AST 41
    7/12/15: ALT 36 AST 30 Virus undetected

    2004 biopsy F3
    Fibroscan appt Jan 11 2016.

    in reply to: Ribavirin – Maybe you do want it…. #4691
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    @bloot

    Thanks Gaj
    That’s a bummer
    I’ve got about 9 weeks (-4 weeks for delivery) to make a decision
    I’ll see how my results go an play it by ear

    Just looked at the new pricing :-)
    My next course of sof/ dac is down so i can get a course of riba and still be under what it cost previously
    Then I can make the decision at week 12 to finish out the 24 including the riba


    52 y.o. G3a for about 30 years
    Previous tx 2004 interferon/ ribavarin
    2004: ALT 624 AST 263

    Pre tx test 23/10/15: ALT 153 AST 128 VL 11 849 493
    6/11/15: Sof/ dac started
    26/11/15: ALT 41 AST 41
    7/12/15: ALT 36 AST 30 Virus undetected

    2004 biopsy F3
    Fibroscan appt Jan 11 2016.

    in reply to: Emilio’s Place #4687
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    @bloot

    The liver clinic in Penrith is on board – mostly
    My VL 3 years ago was 5 million and the recent script from Dr F they gave me the results yesterday at 11 million
    They then took my blood yesterday and rang me with the result today
    I’m happy with my AST and ALT and full blood count, but when i asked for the VL, that’s when they told me they don’t test for it?
    i would have liked to have known, but oh well
    i go into these things expecting nothing, so whatever I get is a bonus :-)


    52 y.o. G3a for about 30 years
    Previous tx 2004 interferon/ ribavarin
    2004: ALT 624 AST 263

    Pre tx test 23/10/15: ALT 153 AST 128 VL 11 849 493
    6/11/15: Sof/ dac started
    26/11/15: ALT 41 AST 41
    7/12/15: ALT 36 AST 30 Virus undetected

    2004 biopsy F3
    Fibroscan appt Jan 11 2016.

    in reply to: Emilio’s Place #4682
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    @bloot
    zhuk wrote:

    So it’s usual to be told your VL? I never knew what mine was until I asked about it when having a blood test a couple of weeks ago

    Dr Freeman gave me a blood script for my viral load
    But when I visited the liver clinic for the first time yesterday they said that they don’t test for viral load
    Only test to see if the virus is present
    My GP (well, the first GP I have seen in 12 years) said the same thing

    So I’m just going to go with the flow
    if the clinic won’t provide me with the viral load at my next blood test, and i feel like I need to know it
    I’ll just go the Dr Freeman GP2U route for a blood script
    I’m just taking advice and help wherever I can, and putting my hand in my pocket when I have to (I’m not stingy, just the cost of tx is significant for me)


    52 y.o. G3a for about 30 years
    Previous tx 2004 interferon/ ribavarin
    2004: ALT 624 AST 263

    Pre tx test 23/10/15: ALT 153 AST 128 VL 11 849 493
    6/11/15: Sof/ dac started
    26/11/15: ALT 41 AST 41
    7/12/15: ALT 36 AST 30 Virus undetected

    2004 biopsy F3
    Fibroscan appt Jan 11 2016.

    in reply to: Browny working 9 to 5 #4679
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    @bloot

    I’m 17 days into Sof/ Dac and no sides at all
    I sleep well, exercise as normal, and feel no more tired than before
    I actually feel no better or worse and apart from the taste of the pills would think they were placebos (joking about the placebos)

    I take mine about 6.30 – 7pm
    I have them with either turmeric and rice milk, coconut juice, or apple cider vinegar and manuka honey
    Apart from killing the strong taste, these are good for you in general and makes me feel like I’m doing something good for my body :-)

    I am a big water drinker anyway, but now drink 3L+ per day, so being near a toilet is a necessity
    I was out and about yesterday and didn’t drink as much water as usual
    I felt like my mouth was really dry that evening, so I think drinking lots of water is essential, esp when on this stuff

    A consequence of my hep is that I use exercise as a way of warding off bad habits and so now I can’t do without it
    I made a commitment that I would do all i can to keep up my cardio work in particular so i feel good and tired at night
    i try and choose interesting books (paper not screen) to read before bed and soon find myself nodding off :-)

    Anyhoo, hope this helps
    Good luck, but I think you may be surprised (as I am) at how little the side effect are


    52 y.o. G3a for about 30 years
    Previous tx 2004 interferon/ ribavarin
    2004: ALT 624 AST 263

    Pre tx test 23/10/15: ALT 153 AST 128 VL 11 849 493
    6/11/15: Sof/ dac started
    26/11/15: ALT 41 AST 41
    7/12/15: ALT 36 AST 30 Virus undetected

    2004 biopsy F3
    Fibroscan appt Jan 11 2016.

    in reply to: Ribavirin – Maybe you do want it…. #4677
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    @bloot
    tweakmax wrote:

    Maybe add riba to the last two weeks of treatment? Will that help?

    Anyone have any thoughts on this

    I’ve just found out I am geno 3a when I thought I was a G1
    I am 3 weeks into Sof/ Dac and committed to 24 weeks (unconfirmed F3)
    I’m now considering a hit of Riba in the final 2-4 weeks
    (I have used Riba 12 years ago, but a doctor said that I should have no resistance)


    52 y.o. G3a for about 30 years
    Previous tx 2004 interferon/ ribavarin
    2004: ALT 624 AST 263

    Pre tx test 23/10/15: ALT 153 AST 128 VL 11 849 493
    6/11/15: Sof/ dac started
    26/11/15: ALT 41 AST 41
    7/12/15: ALT 36 AST 30 Virus undetected

    2004 biopsy F3
    Fibroscan appt Jan 11 2016.

Viewing 15 posts - 16 through 30 (of 65 total)