Sensational news Nadia
Completely stoked for you

That’s all sounding very positive (being negative) Chester

Regarding the 12 weeks + Riba
I don’t think the EASL would take the $ considerations into account
But somewhere on this site the good doctor has talked of the ‘bang for buck’ of conventional government funded treatment
12 weeks worth of the new drugs is hideously expensive, whereas Riba is as cheap as chips
So assigning a $ cost to an extra 12 weeks of treatment for only a few more cases of +ve outcomes does not make for a great ROI
For those not previous users of Riba, the low cost to +ve outcomes gives a greater ROI

So as Chester says, it is an individual decision
For my wheezy old liver, an additional 12 weeks can increase my chance of success by 5% (I think i have that correct)
If the price of this is $1500 (as opposed to the exorbitant price the govt would have to pay those swines from Gilead)
Then it is a price worth paying

My viral load 3 years ago was 5 157 834
My GGT was 47 – this is odd as in 2004 during inter/rib treatment it was 27 (My AST and ALT at the time were very elevated)

I ordered my Sof/Dac yesterday morning – I’ve ordered 12w but know I will need 24w
Dr Freeman has given me a script for new tests which i will be doing late next week
I’ll be monitoring things closely and posting the results in a separate thread rather than hijacking others

I’m quite excited and very grateful but nervous as well
My liver biopsy results were dismal 12 years ago and I’m mostly nervous that my fibroscan will show Cirrhosis
Apparently you can have it without necessarily showing symptoms – I will know in a couple/ few weeks
But i will leave the negativity there and think only positive thoughts from now on
i’m preparing myself for battle against this virus and will do everything i can to help it work

This has all happened very quickly and quite out of the blue after reading the SMH article
I’ve ignored my hep for a long time mainly because there has been nothing i can do other than try and look after myself
Nothing makes me feel sicker than hanging around doctors surgeries, hospitals, and blood labs with worry inducing results

Thanks to all of you here, and particularly Dr Freeman, who can think outside the box and give the finger to the rich and ruthless
i taped Dallas Buyers Club on the telly the other night and will be watching it for the first time this week

Edit: Sorry for the thread hijack, Em but not worth starting my own thread yet and wanted to get my thoughts on a thread i follow

I’m reasonably open about it
But i did tell the doctor that i got it from a blood transfusion (I had 2 serious injuries that required transfusions before you could test)
However during my misspent youth i also shared needles with a guy I knew had hepatitis
But it was just an off the cuff comment someone said about him being yellow
I thought it was something you got from eating dodgy food in poor countries and thought no more about it- until i tested positive
whoops
that’s the problem with a war on drugs – it’s a war on education as well

i told the doctor this because i reckon the info goes on a database
And i reckon the more needle users that have it, the more reason no-one needs to care
i reckon there is definitely a stigma of it being a ‘junkies’ disease
We live in a punitive society and i reckon regular punters see Hep c as your punishment for being a fool
That’s my theory anyway

Great news mate!
Just imagine all those nasty little virus thingies getting decimated to the point of extinction

Another article in todays Sydney morning herald about how the hits to this site have increased from 5000 to 217 000 since last weeks article that alerted me to this site

I read the case story of the 58 year old brickie to my wife and said it sounds like me
Well it probably sounds like 100’s of thousands of people out there being screwed over by those grubs from Gilead

Dr Freeman, what you are doing is brilliant and I don’t know what I can do to help, but I’m in
I’ll do whatever – I don’t mind taking risks. in fact, taking risks is built in to me

Up here in the Blue Mountains we have an active mountain bike community
We also have an active aging, fun police community that think we are out to destroy the bush
I won’t bore you with details, but all our MTB forums were monitored by the fun police and it led to infighting and mistrust

I have a real aversion to being told what to do, so set up a private facebook page – all members have to apply to get in
usually by looking at their profile I can tell they are legit, but for something like this, just a small explanation perhaps
The good thing about a blocked FB page is that no one can see the content
Perhaps more importantly, it is the spot everybody can go to if this site is closed down for example
We could give the new website address/es to those on the FB page

Anyway, it’s just an idea
If anyone is interested, message me or reply or whatever

Personally, I don’t care if Gilead drop their prices and it is listed by the PBS
I would prefer to go through the buyers club and doctors that aren’t afraid to do the right thing rather than the easy thing

As someone said, the genie is out of the bottle and it will never get put back in

Interesting the different side effects (or lack off) people seem to experience
How long has your treatment been going Berrinice

I’m yet to confirm but from 10 years ago think I am G1 with level 3 scarring
A big scar is also on my psyche from my previous peg interferon/ribavarin treatment
Very nervous about debilitating side effects, particularly if I need Ribavirin