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Sounds Awesome Honker – Tassie is beautiful – certainly a Hiker’s paradise
Good Luck on your journey!
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16Dec ’15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb’16 VL UND
AST 24
ALT 26
GGT 50HWelcome The 1B Dude Abides – Wow that’s a mouthful! You will find heaps of info and support here.
Good Luck! I started Sof/Dac yesterday – G3a – having 16 weeks Tx.
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16Dec ’15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb’16 VL UND
AST 24
ALT 26
GGT 50HWelcome Frankiej you have found the right place!
Awesome you’ve started Tx, so many of us starting the New Year, sharing our journeys and having the benefit of experience from so many other members.
Good Luck!!
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16Dec ’15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb’16 VL UND
AST 24
ALT 26
GGT 50Hpoodle wrote:Yes LG bloods at 4 weeks all good alt ast first time they have been low and normal in 35 years. The line up for fibroscans at royal melb hospital is 3 or 4 months. Which is going to slow the line up. The blood test which reads fibrosis sounds like what they should be doing. You cant do that test though once you have started treament, which is where I found myself without ducks in a row. Enjoy your jouney is a good one. Poodle
Poodle when I went for my blood tests the path lab didn’t even know what a Hepascore was and had to ring Head Office and she was told to do another test – the ELF – “Enhanced Liver Fibrosis” test, claiming it was the same because it was a way of using blood to determine Fibrosis level. I spoke to Dr James about it and ‘Yes, it is a Fibrosis measure blood test BUT not the same as the Hepascore because they use slightly different markers (?) to calculate it.’ Apparently, because the Tx for HepC with DAA’s is so new these tests are also new and so some Labs do their own ‘version’. I have read that the Hepascore can’t be done during Tx but maybe the other Fibrosis blood tests can?
Maybe, query that with the Doc?Anyway, as a complete aside, like Chester I’ve been dying to find something to ‘rant’ about because I love that banana But I’ve got nothing so just for fun – Hahah I love them
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16Dec ’15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb’16 VL UND
AST 24
ALT 26
GGT 50HGreat to hear your story splitdog – I’m G3a and started Sof/Dac yesterday. Doc recommends 16 weeks.
Good LuckSabrecat – Congrats for your current results too, YAY for you
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16Dec ’15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb’16 VL UND
AST 24
ALT 26
GGT 50HOk, that’s weird, sorry LG I was quoting part of your post and my comment/query has ended up in the quote. I deleted the end phrase so it deleted the code.
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16Dec ’15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb’16 VL UND
AST 24
ALT 26
GGT 50HLondonGirl wrote:Ah Chejai,
Re GP2U app – I was thinking about the section where you can upload blood results etc?Hi LG, I’m wondering what app you have – the iOS GP2U app on my iPad just takes me to a Patient Home Page and other than appointment/scripts/waiting room and contact info there’s nothing, no place for files to upload. Is yours Android?
Anyway, thankfully it was easier to use the website on my Mac.
Dr James said they did try to keep the Mobile apps as simple and uncluttered as possible but the woman at GP2U I spoke with said they welcome any feedback regarding the apps or website.
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16Dec ’15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb’16 VL UND
AST 24
ALT 26
GGT 50HWell yesterday being 1st day of Magic Pills – what an interesting day
I took Nexium 1st thing and then the MP’s about 1/2 hr later so I could have about another 1/2 hr before morning coffee. I had severe sweats all day long and after about an hour or so of taking them I was really hyper. I couldn’t sit still and was talking endlessly, watching more music vids from the Party Playlist and extra Youtube stuff. Dancing around the room, I had no appetite and forced myself to have my fruit & yoghurt for BF. Nothing for hours but lots of water because of the hot flushes and sweating. Had a highly animated 2 hr non-stop talking call to my mother –
Did all sorts of random chores around the house. Again had to force myself to eat something in late arvo – chia wrap + hoummus.
Hit the wall at around 7 pm – ahhhh, still not hungry but have to feed my boy so he reminds me to eat Dinner – macaroni + boiled egg + cherry toms + cucumber + parmesan. Then herbal tea until bed, I was absolutely trashed, but in bed at 10 pm couldn’t get to sleep for ages.
I use an Aromatherapy diffuser, with blends, at night to help me sleep, so an extra oil and I was out.So what an interesting day – it was like being on ‘speed’ without the rush
Day 2
This morning around 3:30 am I snapped awake and couldn’t get back to sleep. My mind was fully wired but my body was trashed so I tried yoga and breathing techniques but gave up after 5 am.
So, I meditated, read, got up had my MP’s. Did the washing, changed all my birds water and seed, took our dog for a walk to the beach (I never do this 1st thing!), watered the gardens, did some weed kill and more cleaning up and now I’m having coffee! I’m not usually getting up until around now! The profuse sweating has started again hmy:Interesting to see how this day goes
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16Dec ’15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb’16 VL UND
AST 24
ALT 26
GGT 50HI just started Tx yesterday Sof/Dac and have been taking Nexium for a couple of years +. I told the Doc my list of meds when we had our consult and he said everything was fine. I take Nexium as soon as I wake because it’s meant to be 1 hr before I eat. I took the Sof/Dac within around 1/2 hr after Nexium yesterday and today. Seems fine so far.
Good Luck Stew
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16Dec ’15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb’16 VL UND
AST 24
ALT 26
GGT 50HThank you Tina for the Jim Henson Muppets vids – The Devil went down to Jamaica – too bloody funny!
Also Chester’s Star Trek – thanks it was a Good laugh! My son and I have watched them over
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16Dec ’15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb’16 VL UND
AST 24
ALT 26
GGT 50HAnd taking a trip down Memory Lane – just for the sax
[video]https://www.youtube.com/watch?v=Fo6aKnRnBxM[/video]
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16Dec ’15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb’16 VL UND
AST 24
ALT 26
GGT 50HFeeling Pink
[video]https://www.youtube.com/watch?v=JDKGWaCglRM[/video]
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16Dec ’15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb’16 VL UND
AST 24
ALT 26
GGT 50HIt’s officially my 1st day of Tx so I’m going to —
[video]https://www.youtube.com/watch?v=Hg-_uxD3H80[/video]PS LG I was having the same weirdness with ‘woohoo’ the other day! ok testing
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16Dec ’15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb’16 VL UND
AST 24
ALT 26
GGT 50HIt’s officially my 1st day of Tx
Just popped those little babies down, I’m not as sick as yesterday but better.
Big Thank you to you all for your support.
Also, really appreciate Dr James calling me to discuss things and set my mind at ease.Here’s to Good Health, Healing and Happiness!
Regards comments on supplements I’m taking only what is required, I cut out the herbs a couple of months ago, Fish Oil does make a difference for inflammation re arthritis; I’m so stressed I use more Vitamin B; i have Osteo and hence need the extra calcium; magnesium stops the cramping/restless legs at night and for anxiety; because of the IBS I swing between episodes of constipation and then diarrhoea – Super greens help here rather than laxative/fibre formulas. I boost Vitamin C when I get bleeding gums and easy bruising. I don’t take that every day especially if I have diarrhoea, makes things much worse. I just don’t eat enough food to get the requirements I need.
I did speak with Dr James about these in my consult. I will double-check that link re Vitamin C though.Just a query – are we supposed to take the Sof/Dac on an empty or full stomach?
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16Dec ’15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb’16 VL UND
AST 24
ALT 26
GGT 50HEven though I’ve been a member for a few months and posted bits and pieces here and there re pre-Tx symptoms, I want to collate that and use this as my Tx journal.
My Magic Pills arrived yesterday and today i’ve got my Path results, I’m sick today and hoping i’m well in the morning and I’ll start Sof/Dac, a.m., since I take other meds at night.
Daily drug regime is AD – Mirtazepine, before bed as it’s sedating; Nexium 1st thing in a.m before I can eat; Tilade asthma preventer; other drugs used when required – PRN – Valium, Lyrica, Endone, Oxycontin.
Vitamins/supps – Omega 3 fish Oil, Calcium + D, Magnesium, Multi B complex, Zinc + Vit C, Super Greens (not when I have diarrhoea), Inner Health Probiotics for IBS.I have Clinical depression, anxiety, PTSD, OCD, Asperger’s. I also have Osteoarthritis that has rapidly progressed in past 2 years with many sections on my spine ‘bone on bone’ crushing nerves, Carpal Tunnel and Peripheral Neuropathy – this started a few years ago periodically, intense burning, numbness in hands waking me constantly at night, then my feet, a year ago it set in permanently 24/7 and a few months ago it started on the left side of my face – turns out I have arthritis in my TMJ and swelling is putting pressure on the Trigeminal nerve. An endoscopy a few years ago revealed Reflux and Duodenitis.
I’ve suffered from migraines for the past 40 yrs too. Otherwise I’m doing greatI spent the 70’s as an adolescent experimenting with everything, growing up on the central coast in NSW, beachside, hippie chick. I started smoking pot and drinking around 12-13 yrs, dropping acid and generally partying hard. When I was 18 I was introduced to ‘shooting up’ a range of drugs by my brother (18m younger) and cousin (a yr older) – typically heroin and Pelfium. We were completely ignorant of needle sharing, despite the disinfecting process and hanging out in Sydney’s Darlinghurst district with my cousin’s friends in some ‘drug den’ meant the sharing was very high risk.
I was working full-time in Hospitality and would drive down there for my 2 day binges. It wasn’t until I passed out one Sunday arvo, in this place, and someone woke me Tuesday arvo that I thought something wasn’t right! I had begun swelling up everywhere and had crushing fatigue. I went to the Dr’s and he took one look at me and said, ‘OMG! You’ve got hepatitis we better get you and your family/friends tested!’ My results showed ALT/AST’s sitting around 1500!! Non A-Non B hepatitis – later to be named Hep C, I also had co-infection EBV (aka Glandular Fever) My skin and eyes were so yellow and my body was blown up like a balloon, everyone thought I had suddenly put on lots of weight, even though I couldn’t eat, but it was the Glandular Fever and oedema from kidney dysfunction. My Dr didn’t know how I was still alive. At that time I was the only one with Hepatitis but later my brother and cousin were also to test positive but never got as sick as me.
So, they set up quarantine at my Dad’s house, looking after me because I couldn’t walk from one room to the next without aid. I didn’t touch anything other than pot for some time. I eventually moved to Qld to travel and work; lived in Melbourne with my cousin for a bit; went OS; went back to go to Uni in Sydney. So for about 10 years I drank inconsistently and occasionally smoked pot. Then my brother introduced me to ‘speed’, so a few years getting messed up and 3 rehabs later, my father died unexpectedly at 51 yrs and I knew if I stayed in that town I would die so I moved back to Qld nearly 20 years ago. I’ve had long periods of being clean but usually end up drinking wine (spirits don’t agree with me) especially when stressed. Don’t smoke cigs and haven’t had pot for about a year.
My youngest brother died suddenly at 41yrs in 2013 from drug overdose. My other brother has HepC and cirrhosis and is hoping to get Tx this year.
After seeing a Private Specialist for around 12-18m, I was referred to the RBWH Liver Clinic and have been going there for 2 yrs+. I had a fabulous GP for 8 yrs here, since moved on, who regularly monitored me. My LFT’s have always been out of range and fluctuating. I’ve been feeling worse in the past 2 yrs. Episodes of diarrhoea that makes me housebound, with sweats, nausea and dizziness. Fatigue that can be so crippling, waking constantly from the intense pain in my hands and feet and now the side of my face. I would do anything for a good night’s sleep!
I am a single mother of a precious little guy 10 yo, who has ASD and I Homeschool him. We have no family/friends here where we live.I have Genotype 3a
In 2013 I had a Fibroscan score – 4.7 kpa F0-F1
Viral Load was only 16 000 IU/ml Log 4.2December 2015 Path Results
I was given an “Enhanced Liver Fibrosis Score”, rather than the Hepascore as requested, don’t know the difference just that the Hepascore range is 0.00 – 1.00. My Fibrosis score is 8.5 which apparently puts me in F1-F2 range.
Viral Load 100 000 IU/ml Log 5.00
Total Protein high 86
Albumin high 46
ALT high 89
AST high 70
WCC all in low ranges, have been for a long time.So, that about some it all up. I plan to take the Sof/Dac in the a.m. since I take my AD’s at night.
As long as I don’t have diarrhoea or throwing up tomorrow ick:' /> then i intend to take my 1st dose!!
Wow, can’t believe this is happening after years of being told to wait and thinking I’d never get a chance to be rid of this virus and it’s finally about to happen. I wonder if these DAA’s will knock out the EBV too, as I have had relapses of this.
I’m grateful to people like Dr James Freeman and Greg Jefferys who opened the door and let the light in
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16Dec ’15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb’16 VL UND
AST 24
ALT 26
GGT 50H -
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