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Thank you Emilio, I have been reading through your posts from the start – i’m trying to acquaint myself with the members here and reading all their stories. I admire your fortitude and passion to want to help others, like us, to access affordable treatment. Good on You☺️
You have been on a long journey re tx, so I hope that this time it’s a success.
I have had this for so long that many symptom, which have worsened in the past couple of years, leave me confused as to whether it’s part of the chronic Hep C or something else. Dr’s have usually said it’s nothing to do with the Hep C – the periods of extreme fatigue, persistent nausea, GI issues, brain fog, insomnia etc. Guess I won’t know until i have it cleared out of my system. Although I do have EBV, got it at the same time, and it lays dormant in my system but flares up when under stress. Don’t suppose the DAA’s will work on that too?
Thanks again, all the best!
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16Dec ’15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb’16 VL UND
AST 24
ALT 26
GGT 50HHi Sarah, I used to pay privately for a Gastro Specialist (at Caboolture) he was the one who sent me privately for a Fibroscan. Realising I needed a Psych assessment and ongoing monitoring and I couldn’t afford it he referred me to the Royal Brisbane – their Liver New Clinic. I had to wait a long time – more than 6 mths? to get in. being public. You don’t get any choice about who you see hence the ‘nice’ Dr with highly prejudiced views It was decided I was not eligible for Interferon (Yay! didn’t want it anyway) but ‘new’ drugs were on their way and I needed to stay in the system. So, I’ve been waiting in the system for the past couple of years or so. Finally, got a great Specialist that encouraged me, somewhat conspiratorially, to contact this site, do some research and offered to give me a script and monitoring. I’m just waiting to see my GP this week who’s supposed to have contacted him to discuss my plan.
So, if you go public then you get no choice who you see. If you want to know the name of the private Specialist who did my Fibroscan I can tell you but you will still need referral.
Good Luck
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16Dec ’15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb’16 VL UND
AST 24
ALT 26
GGT 50HSo sorry Cindi to hear J is so sick. Glad Dr James has advised what to do. Hope it turns out to be a temporary ‘bug’. All the Best!
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16Dec ’15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb’16 VL UND
AST 24
ALT 26
GGT 50HThat is fantastic news Joan, re your blood tests. Also sounds like things have worked out better than if you had of been pushed down the inter/riba road. So the insomnia you’re experiencing – is this something you have had before treatment or now as side effect? Others are mentioning this too. I’ve always been an insomniac, so I’m wondering if it will stay the same.
Great to hear things are going well, Good Luck!
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16Dec ’15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb’16 VL UND
AST 24
ALT 26
GGT 50HThank you Joan. It is amazing to read people having good LFT’s after such a short time on treatment. I have never had mine in Normal range since 1st contracting it. I am interested in other chronic symptoms people have had for years BEFORE treatment. Fatigue and nausea seem typical. I frequently register high levels of Urea and my Cholesterol level has been steadily rising over the past year – can’t be explained by diet or hereditary factors – my Dr can’t explain why? Severe bouts of bright orange diarrhoea that was lasting up to 5 days, I couldn’t leave the house. I’ve been prescribed Lofenoxal. I use Inner Health capsules daily – that helps. I understand we are all individuals and will react to the treatment side effects differently.
I just want to get started on it
Thanks again for sharing.
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16Dec ’15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb’16 VL UND
AST 24
ALT 26
GGT 50HThanks Coral, I’ve decided i’ll see what my GP says next week and what my brother’s says when he gives her all the info I printed out and if we get more ‘wait until…’ answers then i’ll go the GP2U route. Because I know from experience the Hospital clinics pretty much shut down over xmas school hols period and i won’t get to see the Specialist until Feb. I’m sick of waiting.
Sounds like your sides aren’t too bad. Given what i’ve been living with for so long now, fatigue, nausea, severe bouts diarrhoea, migraines, peripheral neuropathy and joint pain – surely can’t be worse
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16Dec ’15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb’16 VL UND
AST 24
ALT 26
GGT 50HGreat to hear the drugs were fine and yes, how lucky for you to have Dr Freeman contact you so quickly. Glad to hear J is feeling better, I’m constantly reminding my J to drink water – he wonders why he has a headache and is dizzy hms: Yes, 10 yo I will make the most of it before the dreaded teens, he’s so sweet and affectionate and talkative now
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16Dec ’15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb’16 VL UND
AST 24
ALT 26
GGT 50HThanks to Joy and you Coral for that info. I spoke to my Medical Centre yesterday, my GP has been off this week, so I don’t know if she has contacted the Specialist in Brisbane yet to find out if he can send the script or if she can write it herself. I now have to wait until next week to see her. This GP2U option sounds interesting – what does it cost? It might be a way for my brother to do this. I’ve sent him the genotype treatment article and other sections from this website to take to his GP because he’s fed up waiting to get into the Liver Clinic down there. He has cirrhosis and is not well at all but really wants to do this.
I’m relieved to have Dr Freeman say I will only require 12 weeks instead of the 24 my Specialist had thought. I’ve been reading the posts on Sof + Dac side effects to get an idea what I might be in for. I have to plan my son’s homeschooling for next year and factor in my treatment/health issues.
This is a great site and everyone is so supportive. I was registered with another HepC forum a couple of years back and a particular person was unnecessarily unkind to me so I left.
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16Dec ’15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb’16 VL UND
AST 24
ALT 26
GGT 50HHi Cindi, Yes, our stories are ‘spooky’ similar! My son is 10 yrs now and he was non-verbal until around 3 1/2 yrs, had speech and occupational therapies. I homeschool him now. I didn’t make the 3rd trimester, my waters broke at 25 weeks and I was hospitalised to be given drugs to keep him inside me as long as they could with him stuck in breech position in around 10% fluid. But he was impatient and came out at 27 weeks!
So sorry to hear your son is going through this. I really hope his tx is successful.
Just read you got a delivery of different drugs – hope this is part of his regime and not a terrible mistake.
Best wishes.Cherie
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16Dec ’15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb’16 VL UND
AST 24
ALT 26
GGT 50HWow, Cindi reading your story gave me chills. I have had HCV for 34 yrs, i too had tried and tried for a child, many years ago. After losing 2, I finally got my awesome miracle boy, 13 weeks prem., now a healthy 10 yr old (with ASD). I always dreaded I may have passed it on to him but when he was born I was told he was tested and didn’t have it. Was your son tested at birth?
I can’t get over your CJ – we use that too, I’m ‘C’ and he’s ‘J’!
Wishing him all the best in his treatment
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16Dec ’15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb’16 VL UND
AST 24
ALT 26
GGT 50HThanks Coral, so what is the GP2U you mentioned re Dr Freeman? I feel like I’ve spotted it written somewhere else but can’t remember.
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16Dec ’15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb’16 VL UND
AST 24
ALT 26
GGT 50HThank you James Freeman, once i returned from that appointment i looked up this site and read that article and hence decided on the Sof + Dac treatment – noted it did say 12 weeks was recommended. I’m waiting to get back in to see my GP because she wanted to call the Specialist and discuss things with him. I was hoping she could write the script so that I don’t have to travel to Brisbane – it’s a big hassle a whole day, bus journey lots and lots of sitting around and putting my son in Respite Care I’ll know within a week anyway.
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16Dec ’15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb’16 VL UND
AST 24
ALT 26
GGT 50H -
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