Forum Replies Created
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AuthorPosts
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Hi Chejai,
I know it’s disheartening, but stay strong, you’re not alone, most of us have come up against those negative specialists & doctors, makes it so difficult, but you got to stay positive.
I think that blood test sounds good.
Why not do that.Good luck with it all, it WILL all work out you know, give that lovely boy a cuddle & know that you’ll soon get well & have a happy healthy life.
Love Cindi x
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!Wow! what a great result!!
it must help having such a low VL to start with.
Congrats
x
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!Thank you for all caring so much.
We’ll follow up on that advise.But seen as his specialist is going on holidays for ages & because of the gravity of our friends situation with liver problems,
we’ve realised it would be better to wait ’till he can be monitored closely by the specialist, so will have to wait till he comes back from holiday.Doc James has done his best with this, also talking to all the medics involved, but we’ve come to the conclusion we’ll have to wait.
Paul, our mate knew your friend Ray, & in fact Ray’s the one who got him help with this clinic & other things, he said he was a great bloke who helped so many.
And yeah it’s terrible that our friend’s request to let my hubby talk for him was ignored.
But he will get the generics, he has us & Doc James on his side.
it’ll just take a little bit longer.
he wont fall through the cracks again.
x
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!Sounds like a good idea G, thanks.
x
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!As I mentioned, Dr James has been incredibly helpful through all this, and now we think it probably best to wait ’till he can have full support from his specialist with the monitoring, as he’s a special case because of the transplants.
We don’t want anything to go wrong, best to wait ’till this specialist has had his holiday.
This is probably the best thing for him as he lives close to the hospital in case of any problems.I personally think doc James is the one who deserves a good long holiday, he seems to never stop working. hmy:
Never, ever known a more caring, dedicated & brave doctor, as our special Dr James.
We’re all so very lucky to have such a staunch doc on our side
x
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!Thanks BB, didn’t realise that.
x
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!That’s such good news, happy for you!!
x
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!FOUND IT
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!Doc James if you read this, I’ve just sent you an email regarding this.
Also trying to find the drug interactions part on the forum….???? where is it? ops: ..help?
x
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!I would so like to be an organ donor, I don’t understand why we can’t if we’ve cleared the virus.
What’s wrong with having anti bodies? they can’t cause HCV, can they?
I don’t understand.
x
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!Hi Paul,
Wow, Paul your mate was a hero, good on him.
He & our mate may have been friends.
He knows a lot of the old Viet vets.xo
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!Hi Joan & Zhuk,
I understand what you mean & I did get the feeling like he’d be happy to monitor him. I also think our friend is understanding it all more now & would like to get the orals.
Now it’s all up to the specialist, I gave him a sealed file of his meds from his clinic he’s currently staying at, so he could check meds against the generics fo interactions, I would have rathered also send one to Dr James, but they’re all weird about confidentiality etc. The doc said he’d get around to it………
This worried me.
The next day I contacted his clinic nurse, mustn’t be same one as you guys have though, because this one was quite snooty & didn’t know about the generics, ( so she said) and hadn’t heard of dr James & she just said “is he a liver specialist?” and when I said please, have you checked his meds for the interaction with generics, she got all huffy & was evasive & eventually made out that would take ages to get around to. Like it’s not important.
Felt like pulling my hair out. SO frustrating.
I’m going to try to get a hold of his meds list again & fax them to Dr James I think?
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!Hi Paul,
Sorry about your friend, so sad. Did he have the virus?
It’s amazing how many war vets are finding life so hard, our friend is often staying in a clinic because he gets so down & struggles with the hep.
& visiting there you see so many from Vietnam war & even younger ones from the Afghan war, all poor lost souls, struggling so much with PTSD.
I do think a lot of them get forgotten out in the real world, but the nurses here are always really kind to them.At least your buddy had you as his mate Paul.
x
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!Hi zhuk,
Yeah I agree, I think depression would be a hep side.
The stigma of it is enough to put you into depression.
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!Hi paul,
Oh YES!! I feel vindicated! sure do!
Hope those doubters, from the other forum, see my post
I just hope this helps others believe in these wonderful generics!
x
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!! -
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