Forum Replies Created
-
AuthorPosts
-
Thanks M. You were one of the originals and you have always been so helpful to me and everyone on this site. Seems like years ago now – lots can happen in a very short time.
Great news for your BF and you Sonja. I should think with that result his Fibroscan results will improve.
Hi GF,
Thanks so much for your lovely words – it is such a good feeling to be able to think straight and have a much clearer focus on the future.
I know what you mean about our Doctor. He’s quite extraordinary and I can’t begin to think where I and so many others would be if he hadn’t put everything on the line for us.Well hello LG!! Thanks so much – yes it took a while but I seem to have got there although I will feel even happier ofcourse when I reach the SVR24 mark.
You were such a great support for this newbie and many others especially in those early days. I hope your HepC free life is humming along my friend. I’ll send you a separate email.
Thanks Paul, it is indeed a feeling that gets better and better every day.
My friends are amazed that I have a doctor who rings with results – how lucky are we?Hi Keith,
Thanks so much for your post and I can feel how pissed off you are about those 12 months. I also relapsed (after an initial 24 weeks of treatment) and started another 24 weeks of generic medication pretty quickly after discussing the options with Dr J. I know what you mean about falling off the cliff – I think it’s partly because you get just a taste of what if feels like to get the monkey off your back, then it knocks you sideways when it crawls back on. Unfortunately for some of us the road is not as smooth but I have just cleared SVR12 so we get there is the end.
Your post will make a difference for people who may be sitting on the fence. Wishing you the best…..
What a frigging relief RSH! Don’t worry – I’m sure we’ve all had our drama queen moments – I know I have!
Hope you feel better soon – whatever it is.
Hey Gaj, Lynne, RHF, Greedfighter and Sven,
Thanks for your messages. I have said it before but let me say it again – what a lonely and difficult journey it would have been without you all.
Coral
Hi Hazel,
Thanks so much for your wonderful words. They mean a lot to me. Your advocacy for Hep C is such an inspiration and now that I’ve just about won the battle you encourage me to step out and make a real contribution. The old stigma of it all worries me less and less as the days go by. Coral
Hi Hazel, this is a great interview and you managed to get some really key points across. The infection rate within prisons is quite alarming but conversely the environment also lends itself to a high level of cure within the prison population. I also didn’t realise that only treatment for G1 is funded by Pharmac in NZ.
Hopefully the commitment to look at generic treatment options by Department of Corrections representative, Bronwyn Donaldson, will be followed through.
Fantastic news Leesa. Congratulations!
Hi 2bornot2b,
Give it another go but IT admin stuff can be so frustrating, especially with a foggy brain so maybe leave it to one side until you feel a little better. You have HepC and you are being hit with a few more side effects than usual so be kind to yourself.
You asked if I feel better now that the virus is gone. The answer is yes but with some qualification. Physically I have more energy and don’t wake up every morning feeling like I have a hangover without actually having had a drink. The brain fog which had caused me so much angst and frustration is gone which helps with decision making and generally moving forward with life. I’ve also made my health a real focus so I feel really really well. And I can enjoy my beloved champagne again! All good.
Emotionally I’ve had to deal with a bit of baggage in terms of the cost that the virus has had on my career, relationships and family. I don’t dwell on it and I am so thankful that I have been lucky enough to access this new medication at this time but I wouldn’t be honest if I didn’t say that there is a bit of sadness in all of that. The thing is though that feeling so much better physically helps with dealing with all of the other.
Keep posting – we’re here with you.
Coral
Hi RSF. SVR24 is pretty solid but I can understand your anxiety. Waiting with you for those results
I meant to mention 2b that when you get a chance it can be really helpful to put a few details in your signature block about when you started treatment etc. I fight with the actual mechanics of it because it restricts my words but it is helpful for people who are first starting out to read about people’s history and recognise themselves in there.
You just go to Profile then Profile Information.
Hi 2b – That’s great that things seem to be settling down with the reduced dose.
I took the last tablet of my second lot of treatment on 17 February. Just this morning Dr F rang with my 12 weeks SVR results and it’s still gone baby gone which is great news although I could tell that it was ok because i know what the alternative feels like. The next important milestone is 24 weeks SVR when I can confidently say that I am cured.
This will be you before you know it and I look forward to reading your post when that happens.
-
AuthorPosts