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Viewing 15 posts - 16 through 30 (of 39 total)
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  • in reply to: labs in the UK #24675
    countless
    • Topics: 6
    • Replies: 39
    • Total: 45
    • Recovery Champion
    • ★★★★
    @countless

    My GP has sent me and consultant a letter stating she is not going to be involved in monitoring as it is beyond her expertise and responsibility of a consultant. To be fair I never organised for a proper letter from a consultant being sent to her asking for monitoring and she had only my word for what was needed and when. A week ago I been seen by hepatologist on the NHS so I given them a call and as I had to travel today for an ultrasound anyway asked for viral load test to be ordered , they promised the form will wait for me at reception. Fingers crossed. I shall ask hepatology unit to write to my GP , may be it will result in her being more cooperative for the future. I suppose I shall need/want apart from today’s 8 week test an EOT , 3 months, 6 months, 12 months and 24 months tests. That is if there is no new information – I am quite worried about today’s ultrasound given my fibroscan, chances of previously existing undiagnosed HCCs developing fast when on sof+led and me feeling more tired and despondent now than I was before diagnosis/at the beginning of treatment. .
    Thank you wilko , I shall keep that in mind.


    Diagnosed September 2016.
    1b
    ALAT in 40s.
    VL 460 000
    Fibroscan 12.5
    Start of treatment 18/10/16
    Wk 2 VL 145
    Wk 4 VL detected unquantifiable
    Wk 8 VL detected unquantifiable
    Wk 12 undetected
    week 30 after eot – undetected

    in reply to: Ademetionine and liver fibrosis #24532
    countless
    • Topics: 6
    • Replies: 39
    • Total: 45
    • Recovery Champion
    • ★★★★
    @countless

    Could it be good to take it alongside sof+led?


    Diagnosed September 2016.
    1b
    ALAT in 40s.
    VL 460 000
    Fibroscan 12.5
    Start of treatment 18/10/16
    Wk 2 VL 145
    Wk 4 VL detected unquantifiable
    Wk 8 VL detected unquantifiable
    Wk 12 undetected
    week 30 after eot – undetected

    in reply to: Ademetionine and liver fibrosis #24398
    countless
    • Topics: 6
    • Replies: 39
    • Total: 45
    • Recovery Champion
    • ★★★★
    @countless

    Thank you for this info , Dr.
    Is mechanism of action of this medication such that it is benefitial for cholestasis symtoms only or is it good for liver health in general ?


    Diagnosed September 2016.
    1b
    ALAT in 40s.
    VL 460 000
    Fibroscan 12.5
    Start of treatment 18/10/16
    Wk 2 VL 145
    Wk 4 VL detected unquantifiable
    Wk 8 VL detected unquantifiable
    Wk 12 undetected
    week 30 after eot – undetected

    in reply to: UK GPs #24364
    countless
    • Topics: 6
    • Replies: 39
    • Total: 45
    • Recovery Champion
    • ★★★★
    @countless

    My GP surgery does blood tests for me although I have not seen NHS consultant and using generics. They had to phone call the lab and ask what heading do they ask for tests under as they were not in the list , were advised to go to “other” column and type by hand the name of the test so it did requre extra effort from them.


    Diagnosed September 2016.
    1b
    ALAT in 40s.
    VL 460 000
    Fibroscan 12.5
    Start of treatment 18/10/16
    Wk 2 VL 145
    Wk 4 VL detected unquantifiable
    Wk 8 VL detected unquantifiable
    Wk 12 undetected
    week 30 after eot – undetected

    in reply to: Hello #24304
    countless
    • Topics: 6
    • Replies: 39
    • Total: 45
    • Recovery Champion
    • ★★★★
    @countless

    Good news :kiss:


    Diagnosed September 2016.
    1b
    ALAT in 40s.
    VL 460 000
    Fibroscan 12.5
    Start of treatment 18/10/16
    Wk 2 VL 145
    Wk 4 VL detected unquantifiable
    Wk 8 VL detected unquantifiable
    Wk 12 undetected
    week 30 after eot – undetected

    in reply to: EOT Day #24282
    countless
    • Topics: 6
    • Replies: 39
    • Total: 45
    • Recovery Champion
    • ★★★★
    @countless

    Congratulations :)


    Diagnosed September 2016.
    1b
    ALAT in 40s.
    VL 460 000
    Fibroscan 12.5
    Start of treatment 18/10/16
    Wk 2 VL 145
    Wk 4 VL detected unquantifiable
    Wk 8 VL detected unquantifiable
    Wk 12 undetected
    week 30 after eot – undetected

    in reply to: spontaneous reduction of viral load ? #24238
    countless
    • Topics: 6
    • Replies: 39
    • Total: 45
    • Recovery Champion
    • ★★★★
    @countless

    Thank you ! A week ago it was 145 only so now it probably is 0 and I no longer have it. Thank you for that as well.
    Now only seeing what will be left from my career and liver.


    Diagnosed September 2016.
    1b
    ALAT in 40s.
    VL 460 000
    Fibroscan 12.5
    Start of treatment 18/10/16
    Wk 2 VL 145
    Wk 4 VL detected unquantifiable
    Wk 8 VL detected unquantifiable
    Wk 12 undetected
    week 30 after eot – undetected

    in reply to: Wair – 4 weeks into the treatment #24162
    countless
    • Topics: 6
    • Replies: 39
    • Total: 45
    • Recovery Champion
    • ★★★★
    @countless

    Hey lurker
    Thank you for posting and adding to information and positivity
    Well done in becoming proactive
    Happy for you feeling good
    From a fellow eastern european


    Diagnosed September 2016.
    1b
    ALAT in 40s.
    VL 460 000
    Fibroscan 12.5
    Start of treatment 18/10/16
    Wk 2 VL 145
    Wk 4 VL detected unquantifiable
    Wk 8 VL detected unquantifiable
    Wk 12 undetected
    week 30 after eot – undetected

    in reply to: Hepatitis C and Neurological Damage #24125
    countless
    • Topics: 6
    • Replies: 39
    • Total: 45
    • Recovery Champion
    • ★★★★
    @countless

    Supose the result would be similar (slower response /higher chances of recurrence ). It is just it would happen not due to virus being resistant to medication but because virus is hidden from medication in the brain. Hope it makes sense.


    Diagnosed September 2016.
    1b
    ALAT in 40s.
    VL 460 000
    Fibroscan 12.5
    Start of treatment 18/10/16
    Wk 2 VL 145
    Wk 4 VL detected unquantifiable
    Wk 8 VL detected unquantifiable
    Wk 12 undetected
    week 30 after eot – undetected

    in reply to: labs and their techniques? #24121
    countless
    • Topics: 6
    • Replies: 39
    • Total: 45
    • Recovery Champion
    • ★★★★
    @countless

    Thank you. Shall be ready to look at my 2 weeks results then. Curious it went from 460 000 to 60 000 without any treatment.


    Diagnosed September 2016.
    1b
    ALAT in 40s.
    VL 460 000
    Fibroscan 12.5
    Start of treatment 18/10/16
    Wk 2 VL 145
    Wk 4 VL detected unquantifiable
    Wk 8 VL detected unquantifiable
    Wk 12 undetected
    week 30 after eot – undetected

    in reply to: time of the day for taking medication #24107
    countless
    • Topics: 6
    • Replies: 39
    • Total: 45
    • Recovery Champion
    • ★★★★
    @countless

    Thank you everybody. Have not missed a single pill yet :cheer:


    Diagnosed September 2016.
    1b
    ALAT in 40s.
    VL 460 000
    Fibroscan 12.5
    Start of treatment 18/10/16
    Wk 2 VL 145
    Wk 4 VL detected unquantifiable
    Wk 8 VL detected unquantifiable
    Wk 12 undetected
    week 30 after eot – undetected

    in reply to: labs and their techniques? #24076
    countless
    • Topics: 6
    • Replies: 39
    • Total: 45
    • Recovery Champion
    • ★★★★
    @countless

    Thank you for that.
    Looked again at my test – 673.62 fmol/L
    May be it is not “l” but “1” as it looks similar..
    Never mind , I had 2 bloodbtests before with one if them given readings in units so notbthat relevant. If monitoring labs give results inbthe same format I shal make enquiries. Will keep your conversion table handy :)


    Diagnosed September 2016.
    1b
    ALAT in 40s.
    VL 460 000
    Fibroscan 12.5
    Start of treatment 18/10/16
    Wk 2 VL 145
    Wk 4 VL detected unquantifiable
    Wk 8 VL detected unquantifiable
    Wk 12 undetected
    week 30 after eot – undetected

    in reply to: labs and their techniques? #24060
    countless
    • Topics: 6
    • Replies: 39
    • Total: 45
    • Recovery Champion
    • ★★★★
    @countless

    Thank you.
    On the topic of lab results – does anybody know how to convert viral load counts in units into ones in fmols and viceversa ?


    Diagnosed September 2016.
    1b
    ALAT in 40s.
    VL 460 000
    Fibroscan 12.5
    Start of treatment 18/10/16
    Wk 2 VL 145
    Wk 4 VL detected unquantifiable
    Wk 8 VL detected unquantifiable
    Wk 12 undetected
    week 30 after eot – undetected

    in reply to: labs and their techniques? #23951
    countless
    • Topics: 6
    • Replies: 39
    • Total: 45
    • Recovery Champion
    • ★★★★
    @countless

    I did not exactly realise that 2 years ago neither these medications nor this site existed , what you saying makes sense now..


    Diagnosed September 2016.
    1b
    ALAT in 40s.
    VL 460 000
    Fibroscan 12.5
    Start of treatment 18/10/16
    Wk 2 VL 145
    Wk 4 VL detected unquantifiable
    Wk 8 VL detected unquantifiable
    Wk 12 undetected
    week 30 after eot – undetected

    in reply to: labs and their techniques? #23672
    countless
    • Topics: 6
    • Replies: 39
    • Total: 45
    • Recovery Champion
    • ★★★★
    @countless

    O yes I can not wait to start trratement , I hope medicines would be shipped tomorrow and my immense gratitude to you for giving me this opportunity. Just been pondering trying to make sense of me and my hepatitis


    Diagnosed September 2016.
    1b
    ALAT in 40s.
    VL 460 000
    Fibroscan 12.5
    Start of treatment 18/10/16
    Wk 2 VL 145
    Wk 4 VL detected unquantifiable
    Wk 8 VL detected unquantifiable
    Wk 12 undetected
    week 30 after eot – undetected

Viewing 15 posts - 16 through 30 (of 39 total)