Donna - FixHepC - Page 4 of 14

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7 November 2016 at 10:04 pm in reply to: I don’t understand my bloods results, or my viral load…. #24213
Donna
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- Recovery Champion
@donna
So an emotional day for me today, got the results from my 8 week blood tests. ALT level has gone down again to 11.
Virus is still not detected, so all looks good on that. Took my son to get tested. Should have the results in a week. Only 3 weeks left on medication.
5 November 2016 at 12:02 am in reply to: time of the day for taking medication #24168
Donna
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- Recovery Champion
@donna
i started off by taking mine in the afternoon…
then it went to early evening…
also have not ever missed pill….
only 3 weeks treatment left for me
16 October 2016 at 6:31 pm in reply to: ‘In which LG seeks Redemption & makes new friends’ #23914
Donna
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@donna
happy for you London Girl
14 October 2016 at 9:41 am in reply to: Beaches Treatment – Harvoni (Aus PBS) #23831
Donna
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- Recovery Champion
@donna
Congratulations Beaches
12 October 2016 at 8:46 am in reply to: Rohcvfighter reached EOT #23772
Donna
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@donna
Good morning Rohcvfighter,

The message to me 6 months ago from NHS was also the same “wait until they approve the new medications for you” ….. they couldn’t tell me when that would be… it seemed so unfair… a genotype lottery….
I really didn’t want to wait and so went ahead in August and ordered my meds from fixhepc….. 5 weeks and 3 days ago I started taking them…
I’ve taken great comfort from reading everyone’s stories and all the advice from my buddies on here…
Thanking everyone from the bottom of my heart…

Have A Beautiful Day My Friend

Donna
8 October 2016 at 11:14 pm in reply to: Fatigue – my first post #23638
Donna
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@donna
Hi London _R
I was only diagnosed 6 months ago
I asked Consultant to monitor me when I got my own meds from fixhepc
He didn’t say “yes” but I told him I was going to go ahead and get meds…..I also told that to my liver nurse and GP
I got the meds and luckily for me they will be monitoring me…
My GP practice is a large one in the city centre, and it has a liver clinic one day a week.
I think that this may have helped me somewhat?
The only meds on offer from NHS were interferon and riberviron.
I didn’t want to take them!
I would have contracted the virus 20 years ( or longer) ago…
As a final thought I was willing to take the meds and not get monitored till the end of treatment….
I think they must have a duty of care….
And I just went ahead and got the meds, all the time keeping liver nurse and GP and Consultant informed…
Best wishes
8 October 2016 at 11:11 am in reply to: Fatigue – my first post #23626
Donna
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@donna
Hi London_R

I was diagnosed in April, massive shock for me….. I’m 48 with a 12 YO child. I’m not sure when I got the virus….
It was either 30 or 18 years ago….but we will never really know. I had brain fog but no other symptoms.
NHS offEred me interferon and ribaviron, as I wasn’t eligible for the new meds ( to be eligible fibro had to be 9.5)
I read an article in newspaper ( returning home from London) that mentioned generics and fix hep c.
I decided to go along that path, I told my GP, nurse,and Consultant…
I got the meds from fixhepc on Monday 5th September 2016, I started taking them that day.
My ALT went down to 20 and my VL UNDETECTED at the 1st blood test.
I have always been a high energy person who either swims,goes the gym, or does yoga 3-4 times a week.
I’m 5 weeks into treatment. I am still doing all this stuff, but not my usual 30 minutes…. just 15 minutes at the moment.
Side effects for me have been difficulty with sleep, and fatigue ( occasionally)
It’s difficult on an emotional level, this is because I haven’t been able to tell many people ( just 2)
But looking at my blood results and the fact I’ve got undetected on the virus…..it’s going to be worth it.
Good luck with your journey, I’ve found this site to be invaluable. I don’t feel so alone, and get good advice from the members and Dr James Freeman….
best thing I’ve done this year is find fixhepc and hopefully clear this Virus
Donna
8 October 2016 at 12:58 am in reply to: I don’t understand my bloods results, or my viral load…. #23615
Donna
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@donna
Made me laugh that rohcvfighter
7 October 2016 at 2:39 pm in reply to: I don’t understand my bloods results, or my viral load…. #23608
Donna
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- Recovery Champion
@donna
Thanks for that Gaj
It’s been difficult with lack of sleep. The first month of treatment I managed alright, but it’s kinda caught up with me. I’ve been all over the place emotionally, and the last few days I’m tearful. I know the medications are working so just trying my best to stay positive.
I really appreciate all the support on here, thanks to everyone who has replied to my post ❤️
6 October 2016 at 10:26 pm in reply to: First dose today, the journey begins…. #23582
Donna
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@donna
Sending my heartfelt Congratulations Sven
6 October 2016 at 5:44 pm in reply to: I don’t understand my bloods results, or my viral load…. #23575
Donna
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- Recovery Champion
@donna
Thanks for all the lovely messages… not feeling great at the moment… very tired due to the insomnia..
Its great that it’s all working with the meds…. only got 8 weeks left till I’m finished
3 October 2016 at 3:06 pm in reply to: I don’t understand my bloods results, or my viral load…. #23466
Donna
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@donna
These results were from 3 weeks after I started treatment
( it’s written as 2 wks on form)
Undetected !!!!!
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1 October 2016 at 9:58 am in reply to: Rohcvfighter reached EOT #23420
Donna
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- Recovery Champion
@donna
Been following your journey Rohcvfighter, am so happy for you
30 September 2016 at 6:40 pm in reply to: I don’t understand my bloods results, or my viral load…. #23367
Donna
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- Recovery Champion
@donna
So I just got VIral Results for my 3 wk test
ALT had dropped to 20
My liver nurse just told me its undetectable….
Will go and see her Monday
She said they will do 8 wk and 12 wk testing on me….
She said she had told my consultant…
And he yes ” they are the real deal” he was so positive when I said about fixhepc …
Although he couldn’t actually help me with the meds….
Feeling so relieved that it’s all working
26 September 2016 at 6:40 pm in reply to: I don’t understand my bloods results, or my viral load…. #23283
Donna
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- Recovery Champion
@donna
21 days on treatment and had a few results today. ALT has dropped to 20. Liver looks fine. Will get viral load result next week. I’m massively relieved, it all seems to be working!
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