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Viewing 15 posts - 1 through 15 (of 19 total)
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  • 6 December 2017 at 10:09 pm in reply to: Day 1… here we go #27114
    Edge
    • Topics: 1
    • Replies: 19
    • Total: 20
    • Treatment Warrior
    • ★★★
    @edge

    You’ll be just fine, erica, just fine. Looking forward to hearing your SVRs soon.

    Genotype 1B

    SVR 24 (10/17/17): VL UND / ALT 25 / AST 17

    SVR 12 (7/25/17): VL UND / ALT 21 / AST 14

    SVR 4 (5/31/17): VL UND / ALT 21 / AST 19

    EOT (5/1/17): VL UND / ALT 32 / AST 22
    T+19w (3/27/17): VL UND / ALT 23 / AST 20
    T+4w (12/12/16): VL UND / ALT 31 / AST 24
    T+0w (11/19/16): VL 343,484 / ALT 36 / AST 28

    Previous treatment in 2012: 48 weeks peg-interferon/riba, relapsed at some point in the 24 weeks post treatment (around 2014). Found redemption trials and applied in Aug 2016.

    31 October 2017 at 6:33 pm in reply to: Cimivir-l purchased in India/ Other medical judgments of Hep. C #26969
    Edge
    • Topics: 1
    • Replies: 19
    • Total: 20
    • Treatment Warrior
    • ★★★
    @edge

    Congrats Gert! You made the right decision!

    Genotype 1B

    SVR 24 (10/17/17): VL UND / ALT 25 / AST 17

    SVR 12 (7/25/17): VL UND / ALT 21 / AST 14

    SVR 4 (5/31/17): VL UND / ALT 21 / AST 19

    EOT (5/1/17): VL UND / ALT 32 / AST 22
    T+19w (3/27/17): VL UND / ALT 23 / AST 20
    T+4w (12/12/16): VL UND / ALT 31 / AST 24
    T+0w (11/19/16): VL 343,484 / ALT 36 / AST 28

    Previous treatment in 2012: 48 weeks peg-interferon/riba, relapsed at some point in the 24 weeks post treatment (around 2014). Found redemption trials and applied in Aug 2016.

    31 October 2017 at 6:28 pm in reply to: Day 1… here we go #26968
    Edge
    • Topics: 1
    • Replies: 19
    • Total: 20
    • Treatment Warrior
    • ★★★
    @edge

    Thanks Dr Freeman. It’s a great thing you are doing. Hopefully many others will get to experience this weight being lifted.

    Genotype 1B

    SVR 24 (10/17/17): VL UND / ALT 25 / AST 17

    SVR 12 (7/25/17): VL UND / ALT 21 / AST 14

    SVR 4 (5/31/17): VL UND / ALT 21 / AST 19

    EOT (5/1/17): VL UND / ALT 32 / AST 22
    T+19w (3/27/17): VL UND / ALT 23 / AST 20
    T+4w (12/12/16): VL UND / ALT 31 / AST 24
    T+0w (11/19/16): VL 343,484 / ALT 36 / AST 28

    Previous treatment in 2012: 48 weeks peg-interferon/riba, relapsed at some point in the 24 weeks post treatment (around 2014). Found redemption trials and applied in Aug 2016.

    30 October 2017 at 8:24 pm in reply to: Day 1… here we go #26964
    Edge
    • Topics: 1
    • Replies: 19
    • Total: 20
    • Treatment Warrior
    • ★★★
    @edge

    SVR 24!!

    To all on the forum, and especially Dr Freeman and Dr Devsam, thank you for your support and for making this possible.

    My only question now is what happens next?? Do I take it that achieving SVR24 is a cure? Do I need to get tested again regularly? Just so relieved that this seems to be over.

    Genotype 1B

    SVR 24 (10/17/17): VL UND / ALT 25 / AST 17

    SVR 12 (7/25/17): VL UND / ALT 21 / AST 14

    SVR 4 (5/31/17): VL UND / ALT 21 / AST 19

    EOT (5/1/17): VL UND / ALT 32 / AST 22
    T+19w (3/27/17): VL UND / ALT 23 / AST 20
    T+4w (12/12/16): VL UND / ALT 31 / AST 24
    T+0w (11/19/16): VL 343,484 / ALT 36 / AST 28

    Previous treatment in 2012: 48 weeks peg-interferon/riba, relapsed at some point in the 24 weeks post treatment (around 2014). Found redemption trials and applied in Aug 2016.

    29 August 2017 at 8:49 pm in reply to: Day 1… here we go #26808
    Edge
    • Topics: 1
    • Replies: 19
    • Total: 20
    • Treatment Warrior
    • ★★★
    @edge

    Can’t come soon enough, Greedfighter!!!

    Genotype 1B

    SVR 24 (10/17/17): VL UND / ALT 25 / AST 17

    SVR 12 (7/25/17): VL UND / ALT 21 / AST 14

    SVR 4 (5/31/17): VL UND / ALT 21 / AST 19

    EOT (5/1/17): VL UND / ALT 32 / AST 22
    T+19w (3/27/17): VL UND / ALT 23 / AST 20
    T+4w (12/12/16): VL UND / ALT 31 / AST 24
    T+0w (11/19/16): VL 343,484 / ALT 36 / AST 28

    Previous treatment in 2012: 48 weeks peg-interferon/riba, relapsed at some point in the 24 weeks post treatment (around 2014). Found redemption trials and applied in Aug 2016.

    22 August 2017 at 6:14 pm in reply to: Day 1… here we go #26806
    Edge
    • Topics: 1
    • Replies: 19
    • Total: 20
    • Treatment Warrior
    • ★★★
    @edge

    Hi Kate – good luck with your treatment. You are nearly there!

    Genotype 1B

    SVR 24 (10/17/17): VL UND / ALT 25 / AST 17

    SVR 12 (7/25/17): VL UND / ALT 21 / AST 14

    SVR 4 (5/31/17): VL UND / ALT 21 / AST 19

    EOT (5/1/17): VL UND / ALT 32 / AST 22
    T+19w (3/27/17): VL UND / ALT 23 / AST 20
    T+4w (12/12/16): VL UND / ALT 31 / AST 24
    T+0w (11/19/16): VL 343,484 / ALT 36 / AST 28

    Previous treatment in 2012: 48 weeks peg-interferon/riba, relapsed at some point in the 24 weeks post treatment (around 2014). Found redemption trials and applied in Aug 2016.

    18 August 2017 at 6:38 pm in reply to: Day 1… here we go #26782
    Edge
    • Topics: 1
    • Replies: 19
    • Total: 20
    • Treatment Warrior
    • ★★★
    @edge
    coral wrote:

    There are so many different side effects that you may not be hit with the insomnia stick.

    I was thinking about this thread during the night as I lay awake yet again from about 2am to 4am. I had forgotten we were discussing insomnia! For the past few weeks I’ve been racking my brain about why I’m not sleeping. Hopefully it wears off soon! I’m about 16 weeks post EOT now.

    Genotype 1B

    SVR 24 (10/17/17): VL UND / ALT 25 / AST 17

    SVR 12 (7/25/17): VL UND / ALT 21 / AST 14

    SVR 4 (5/31/17): VL UND / ALT 21 / AST 19

    EOT (5/1/17): VL UND / ALT 32 / AST 22
    T+19w (3/27/17): VL UND / ALT 23 / AST 20
    T+4w (12/12/16): VL UND / ALT 31 / AST 24
    T+0w (11/19/16): VL 343,484 / ALT 36 / AST 28

    Previous treatment in 2012: 48 weeks peg-interferon/riba, relapsed at some point in the 24 weeks post treatment (around 2014). Found redemption trials and applied in Aug 2016.

    18 August 2017 at 10:30 am in reply to: Day 1… here we go #26779
    Edge
    • Topics: 1
    • Replies: 19
    • Total: 20
    • Treatment Warrior
    • ★★★
    @edge

    Little late in posting but got my SVR12! Almost there. Thanks for the continued support!

    Genotype 1B

    SVR 24 (10/17/17): VL UND / ALT 25 / AST 17

    SVR 12 (7/25/17): VL UND / ALT 21 / AST 14

    SVR 4 (5/31/17): VL UND / ALT 21 / AST 19

    EOT (5/1/17): VL UND / ALT 32 / AST 22
    T+19w (3/27/17): VL UND / ALT 23 / AST 20
    T+4w (12/12/16): VL UND / ALT 31 / AST 24
    T+0w (11/19/16): VL 343,484 / ALT 36 / AST 28

    Previous treatment in 2012: 48 weeks peg-interferon/riba, relapsed at some point in the 24 weeks post treatment (around 2014). Found redemption trials and applied in Aug 2016.

    13 June 2017 at 8:46 pm in reply to: Day 1… here we go #26409
    Edge
    • Topics: 1
    • Replies: 19
    • Total: 20
    • Treatment Warrior
    • ★★★
    @edge

    Update for those interested: SVR 4 :+1:

    Plodding along nicely. No real changes in health to comment on at this time. I feel good, energy increasing. SVR 12 next stop.

    Genotype 1B

    SVR 24 (10/17/17): VL UND / ALT 25 / AST 17

    SVR 12 (7/25/17): VL UND / ALT 21 / AST 14

    SVR 4 (5/31/17): VL UND / ALT 21 / AST 19

    EOT (5/1/17): VL UND / ALT 32 / AST 22
    T+19w (3/27/17): VL UND / ALT 23 / AST 20
    T+4w (12/12/16): VL UND / ALT 31 / AST 24
    T+0w (11/19/16): VL 343,484 / ALT 36 / AST 28

    Previous treatment in 2012: 48 weeks peg-interferon/riba, relapsed at some point in the 24 weeks post treatment (around 2014). Found redemption trials and applied in Aug 2016.

    2 May 2017 at 1:17 pm in reply to: Day 1… here we go #25950
    Edge
    • Topics: 1
    • Replies: 19
    • Total: 20
    • Treatment Warrior
    • ★★★
    @edge

    Thanks Dr Freeman. Made it to EOT. Now the road to SVR begins!

    Genotype 1B

    SVR 24 (10/17/17): VL UND / ALT 25 / AST 17

    SVR 12 (7/25/17): VL UND / ALT 21 / AST 14

    SVR 4 (5/31/17): VL UND / ALT 21 / AST 19

    EOT (5/1/17): VL UND / ALT 32 / AST 22
    T+19w (3/27/17): VL UND / ALT 23 / AST 20
    T+4w (12/12/16): VL UND / ALT 31 / AST 24
    T+0w (11/19/16): VL 343,484 / ALT 36 / AST 28

    Previous treatment in 2012: 48 weeks peg-interferon/riba, relapsed at some point in the 24 weeks post treatment (around 2014). Found redemption trials and applied in Aug 2016.

    3 April 2017 at 10:12 pm in reply to: Day 1… here we go #25753
    Edge
    • Topics: 1
    • Replies: 19
    • Total: 20
    • Treatment Warrior
    • ★★★
    @edge
    Edge wrote:

    I’ll need to have some more blood work done and will update on this as soon as I have results.

    All – just received some updated results. Blood taken a week ago, 19 weeks in. Still showing UND, with ALT at 23 and AST at 20. Only 4 weeks to go now to EOT.

    Coral – hoping I’m not hit with the same insomnia!! Haha – first I complain at having now energy and now I’m complaining at the thought of no sleep! Just can’t be pleased, right?!

    Genotype 1B

    SVR 24 (10/17/17): VL UND / ALT 25 / AST 17

    SVR 12 (7/25/17): VL UND / ALT 21 / AST 14

    SVR 4 (5/31/17): VL UND / ALT 21 / AST 19

    EOT (5/1/17): VL UND / ALT 32 / AST 22
    T+19w (3/27/17): VL UND / ALT 23 / AST 20
    T+4w (12/12/16): VL UND / ALT 31 / AST 24
    T+0w (11/19/16): VL 343,484 / ALT 36 / AST 28

    Previous treatment in 2012: 48 weeks peg-interferon/riba, relapsed at some point in the 24 weeks post treatment (around 2014). Found redemption trials and applied in Aug 2016.

    24 March 2017 at 8:10 pm in reply to: Day 1… here we go #25679
    Edge
    • Topics: 1
    • Replies: 19
    • Total: 20
    • Treatment Warrior
    • ★★★
    @edge

    Star… I’d say for me it was around the three week mark. I was generally feeling much better about everything. You will definitely start to feel it too, probably coinciding with your viral load getting close to zero. For me, I’m concerned that the energy didn’t last! You mention ear plugs… haha. My wife says I ignore her at best of times. Adding ear plugs is a no go, though mostly because of the kids. I want to do my fair share with them.

    Keep looking forward. It won’t be long before you get to the end of week 4.

    Edge

    Genotype 1B

    SVR 24 (10/17/17): VL UND / ALT 25 / AST 17

    SVR 12 (7/25/17): VL UND / ALT 21 / AST 14

    SVR 4 (5/31/17): VL UND / ALT 21 / AST 19

    EOT (5/1/17): VL UND / ALT 32 / AST 22
    T+19w (3/27/17): VL UND / ALT 23 / AST 20
    T+4w (12/12/16): VL UND / ALT 31 / AST 24
    T+0w (11/19/16): VL 343,484 / ALT 36 / AST 28

    Previous treatment in 2012: 48 weeks peg-interferon/riba, relapsed at some point in the 24 weeks post treatment (around 2014). Found redemption trials and applied in Aug 2016.

    23 March 2017 at 9:16 pm in reply to: Day 1… here we go #25670
    Edge
    • Topics: 1
    • Replies: 19
    • Total: 20
    • Treatment Warrior
    • ★★★
    @edge

    Hey Cameralady – welcome and thanks for sharing. Hopefully your experience will be a good one!

    To everyone else, I’ve been quiet for a long time! No real reason, just busy with life etc. For those who maybe don’t remember, I relapsed from interferon/ribavirin combination so had been prescribed two courses of generic Harvoni. I am now 18.5 weeks into my 24 week course. Looking forward to getting the last two bottles of pills finished.

    As discussed earlier, my sleeping drastically improved and became much deeper to begin with. Sadly I can report that for about the last 10 or 12 weeks I’m back to being a light sleeper. The faintest sound wakens me most nights. My initial burst of new found energy has been replaced with continual tiredness, which I link to the light sleeping but also pressures from work. Had issues with headaches in the early weeks. The advice of everyone else re. drinking water definitely helped. Pleased to report that even after days when I haven’t managed to drink much water I am not noticing the same headaches.

    I’ll need to have some more blood work done and will update on this as soon as I have results.

    Genotype 1B

    SVR 24 (10/17/17): VL UND / ALT 25 / AST 17

    SVR 12 (7/25/17): VL UND / ALT 21 / AST 14

    SVR 4 (5/31/17): VL UND / ALT 21 / AST 19

    EOT (5/1/17): VL UND / ALT 32 / AST 22
    T+19w (3/27/17): VL UND / ALT 23 / AST 20
    T+4w (12/12/16): VL UND / ALT 31 / AST 24
    T+0w (11/19/16): VL 343,484 / ALT 36 / AST 28

    Previous treatment in 2012: 48 weeks peg-interferon/riba, relapsed at some point in the 24 weeks post treatment (around 2014). Found redemption trials and applied in Aug 2016.

    20 December 2016 at 10:06 pm in reply to: Day 1… here we go #24769
    Edge
    • Topics: 1
    • Replies: 19
    • Total: 20
    • Treatment Warrior
    • ★★★
    @edge

    I had a fibroscan in 2014 which showed normal (5.9KPa) result.

    Genotype 1B

    SVR 24 (10/17/17): VL UND / ALT 25 / AST 17

    SVR 12 (7/25/17): VL UND / ALT 21 / AST 14

    SVR 4 (5/31/17): VL UND / ALT 21 / AST 19

    EOT (5/1/17): VL UND / ALT 32 / AST 22
    T+19w (3/27/17): VL UND / ALT 23 / AST 20
    T+4w (12/12/16): VL UND / ALT 31 / AST 24
    T+0w (11/19/16): VL 343,484 / ALT 36 / AST 28

    Previous treatment in 2012: 48 weeks peg-interferon/riba, relapsed at some point in the 24 weeks post treatment (around 2014). Found redemption trials and applied in Aug 2016.

    20 December 2016 at 7:47 pm in reply to: Day 1… here we go #24767
    Edge
    • Topics: 1
    • Replies: 19
    • Total: 20
    • Treatment Warrior
    • ★★★
    @edge

    Greetings friends. What a long wait it has been to get my 4 week bloods back. Can confirm I am now UND!!! :woohoo: :woohoo: Thank you to everyone who has shown their support so far – it has meant a lot, and to Dr Freeman for providing access to this fantastic trial.

    Just 19 more weeks to go until EOT!!

    Is the consensus still to do 24 weeks if relapsed after 48 weeks of peg interferon/Ribavirin? When I initially spoke to Dr Devsam, he mentioned that it might be possible to only do 12 weeks if I was UND after 4. I’ve got the pills though, so for the sake of an extra 3 months I might as well take them? Thoughts?

    Genotype 1B

    SVR 24 (10/17/17): VL UND / ALT 25 / AST 17

    SVR 12 (7/25/17): VL UND / ALT 21 / AST 14

    SVR 4 (5/31/17): VL UND / ALT 21 / AST 19

    EOT (5/1/17): VL UND / ALT 32 / AST 22
    T+19w (3/27/17): VL UND / ALT 23 / AST 20
    T+4w (12/12/16): VL UND / ALT 31 / AST 24
    T+0w (11/19/16): VL 343,484 / ALT 36 / AST 28

    Previous treatment in 2012: 48 weeks peg-interferon/riba, relapsed at some point in the 24 weeks post treatment (around 2014). Found redemption trials and applied in Aug 2016.

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Viewing 15 posts - 1 through 15 (of 19 total)
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