Forum Replies Created
-
AuthorPosts
-
Rather than abandoning the idea, perhaps you should have a consultation with Dr. James with the most recent information you have.
I don’t know this for sure, but Dr. James might have some insights with regard to testing.
No one should have right to deny you testing or treatment for a life threatening infection. Hep C kills. It kills us slowly, taking our lives and wellness from us bit by bit, day by day until we find ourselves at the precipice unable to live in denial, and unwilling to live with further physical, emotional, and mental decline.
I’ve been there, and I don’t think I’m out of bounds in surmising that is exactly where you are today.
Unless you are resigned to dying from this disease, I wouldn’t turn my back on treatment so quickly.
Don’t give up!
Thanks for the kind words, dointime
As for your PM’s treatment, that’s just my theory. Could well be wrong.
I also suspect the US President, Vice President, and not a few of the cabinet are on prophylactic HCQ, and maybe other things. But once again, that’s just conjecture on my part.
Anything besides Remdesivir( with which our media in the US is currently infatuated – because Pharma $$$), is being hyper politicized. A shame, really.
I’m grateful we have Dr. James in our corner, the opportunity to learn about promising new treatments, and to carry on a frank and productive discussion here . What a wonderful thing!
Be well my friend!
You know – and I’m sure my experience isn’t at all unique – when I decided I wasn’t going to take ‘no’ for an answer and simply allow the system to determine my worthiness to live or die from Hep C, a light went on. And, it’s stayed on.
I will never again take ‘no’ for an answer.
“Can do”, or “can’t do” in a connected world is a completely false choice. I sought out Fix HepC because I understand this, and you sought out Fix Hep C for the same reason. James Freeman knows “can’t do” is a false construct, and literally lives, and embodies the spirit of “Can Do”.
If there’s a cure, a better way, he’ll set out to find it, and share it with the entire world when he does.
I rather suspect that your PM didn’t recover on Oxygen therapy alone, but things being as they are, if whatever allowed him to emerge alive on the other side of this plague wasn’t immediately available to everyone, he’d have been tarred and feathered, and run out of office on a rail as an ‘elite’.
Hopefully, whatever that was will make its way very soon into the public health system.
Hope you’re wrong about immunity. For what its worth, the consensus among the talking heads with medical degrees here is that immunity will last a while. If not, it stands to reason that even the best vaccines will have a limited period of efficacy.
We are definitely hearing very positive numbers from physicians treating with HCQ. I didn’t even bother trying to get a prescription personally ( many of the docs here were hoarding it for themselves and their families), but did pick up high doseCinchona (natural quinine) while I was still sick.
In terms of continued mortality numbers, yes I agree. As of today the official count in the US is north of 47,000 and by tomorrow or the next day, we’ll easily surpass 50K.
From all accounts a vaccine is still a year or so out, so here’s hoping the tools we already have work!
Sorry to hear things are so rough in the UK. Here, they’re actually getting pretty good results with HCQ.
And yes the political media WAS reporting that, and all manner of other nonsense, all the time, but that’s long debunked as it turns out one of the blind funds he’s invested in owns a $1,000 share of a company that produces the stuff.
Meanwhile Gilead is running commercials non-stop on the same outlets that ‘broke’ the now debunked story, so use your imagination as to the motivation for the dangerously flawed reporting.
We are also getting real news from a Stanford University study which found the actual rate of infection is between 50 to 85 times the numbers being reported. Because many don’t show symptoms, have no idea they’ve had the virus and widespread serological antibody testing is only now being rolled out, there is discussion that once all is said and done the actual mortality rate will prove to be much LOWER that current models predict, by orders of magnitude.
Common sense tells me that at the truly unprecedented rate this spreads, it’s already washed through large segments of the population, and while the mortality rates are no less alarming, they represent only a tiny fraction of those already exposed, infected, who are or were asymptomatic, and are now (or soon to be) immune.
If I’m right, we’re already closing in on a level of ‘herd immunity’. If not, it’ll be a rough ride for some time to come.
Either way, finding effective treatments for those who do get sick is imperative, and I’m really relieved Dr. James is leading the way on this.
Good to hear you were able to get a supply of Indomethacin
Still nothing reported about this in the US. But given the fact that like Hydroxycloroquine, it’s off patent and difficult for drug companies to charge a ransom for, its not surprising no one is writing about it.
With few exceptions, the politicized media here in the US is panning Hydroxycloroquine while extolling the virtues of Gileads expensive Ebola drug Remdesivir. You’d almost think they were on big pharma’s payroll
One interesting tidbit that’s come out is Covid 19’s clotting effect. Current thinking is that the ‘vampire virus’ (my term) inexplicably causes micro-clots which in turn block oxygen exchange in the lungs, and lead to sypmptoms like ‘Covid toes’, strokes, and organ failure.
Perhaps another reason why the NSAID Indomethacin (aside from powereful anti-viral properties) has promise in treating SARS-CoV2?
Probably a good idea to take a look at the papers Dr. James posted with regard to Indomethacin, as well. As the drug is used for arthritis (with which I have a history thanks to Hep C – hip replacements, spinal stenosis), obtaining a prescription though an online physician wasn’t a problem.
Not taking it currently, but now have a supply available for myself and my wife “just in case”.
From Dr. James letter it looks like Sof/Dac rather than Daclatasvir alone was used by the Iranians to cure SARS-CoV2 (Covid 19).
Have no idea what the going price is, but if I came down with Covid 19 symptoms again, having already tolerated generic DAA’s well during my Hep C treatment in 2016, I would most likely not hesitate to do so again.
Quick update. Just picked up 120 75mg ER, Indomethacin capsules at my local pharmacy.
Will keep them handy, just in case.
Can’t believe no one is talking about this medication in the US.
Best to all, and especially Dr. James!
Fitz
Thank you Dr. James. It has been a long time
I rather suspected you might be out at the tip of the spear with regard to research.
Had not heard anything about Indomethacin as a treatment for Covid 19, so this is very exciting.
Was down with Covid 19 symptoms about 5 weeks ago after a pre-Mardi Gras trip to New Orleans.
Here they were only testing if symptoms were severe enough to warrant hospitalization. My symptoms weren’t pleasant, but fortunately resolved on their own. I wouldn’t necessarily recommend this for anyone else, but I dealt with the symptoms with 800 mg of Ibuprofen every 4 -6 hours to deal the severe body aches, general inflammation, and fever. I also used an Ventolin HFA inhaler (left over from a bout with pneumonia a couple of years ago) when it felt like I wasn’t getting quite enough air.About 10 days in, I sought out and found Cinchona tablets, and some rather powerful low sugar high quinine tonic water, and perhaps it was placebo effect, but I began to feel better within a very short time after starting the Cinchona and tonic combination.
Thanks once again for the fantastic information, and for taking the time to respond at length. I’ll print out the papers and make sure my GP gets them!
Thanks also for saving my life. You’re one of a kind, and the world is lucky to have you!
Warm regards,
Fitz
Was truly touched by your post.
You’ve saved a lot of lives here, Doc. Was on my last legs physically when I arrived here ( test results bore witness to that), and won’t forget the kindness, compassion, courage, and professionalism you share here every day.
I’ll proudly join you in raising a glass to Gaj, to Nick, and to the friends we’ve lost along the way and will always remember.
So very saddened to learn of Guy’s passing. He was truly a good man, and absolutely dedicated to helping others, giving selflessly, providing steady guidance and an even hand with a deep and caring sense of compassion
So glad to know that Ariel was able to be there for him in his final days and hours. I hope he knows how loved he is, and how grateful we are to him.
So long my friend. Rest well.
Hi Redhead.
Assume you have started treatment by now. Everyone’s experience is a little different.
I worked during treatment, but cut myself some slack when I needed to.
The biggest surprise was the emotional ups and downs, which I did not anticipate. The results are well worth it.
Congratulations on taking the leap of faith, and upon your decision to get treated now. It’s the best decision you’ll ever make!
Saw this band in Taos. Absolutely awesome!!!
Damn! So very sorry to learn of your loss, brother.
Love that song.
Thanks Sven.
Well said, rohhcvfighter!
It’s been a year and a month or so since I began treatment with generic DAA’s, and had frankly lost track.
Getting free of Hep C definitely sets one on a different course. Instead of waiting for the next shoe to drop, it’s all about making up for lost time and setting a new course.
Sounds a bit selfish, and so it was. Admittedly, the decision to save my own life was extremely selfish and self serving, and ‘insurance be damned’, making the decision to get well – in retrospect – was one of the best decisions I’ve ever made.
In the intervening time, I’ve lost my former GP to retirement and gained another through insurance. A nice enough guy, who was surprised to learn that I had to wait a year for an appointment to even see a Gastroenterologist, and was shocked to learn that when my specialist finally prescribed Harvoni, the insurance company said in no uncertain terms”you can have your prescription filled, but we won’t pay for it”.
Looking over my stats, he didn’t even mention Hep C. A year after starting treatment, and after a previous UND result ordered by former GP, my labs were normal. Completely unremarkable with a few minor niggles (cholesterol a bit high, need to exercise – walking is fine – watch the diet, etc) .
There was apparently absolutely no reason to bring up an issue that had been resolved long before I had been assigned to him.
So, I brought it up.
Pointed out to him that after loosing both hips to Hep C, undergoing a spine surgery which saved my ability to walk, and after loosing several teeth to Hep C, I was no longer having orthopedic or dental issues, that Hep C was a systemic illness, and that I was thankful to finally, once and for all, to be free of it.
I also pointed out, rather specifically, that I had been cured with generics.
Perhaps I was a bit too insistent, or pedantic, or my breath wasn’t fresh enough. It was like a curtain closing abruptly. Although my new GP remained courteous, and professional, the guy couldn’t wait to get out of the exam room.
No worries though. I’m happy, and well and free of Hep C, and that’s all that really matters
-
AuthorPosts