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Viewing 15 posts - 391 through 405 (of 1,968 total)
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  • in reply to: UNDECTABLE! #28242
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    Thank you for the kind words mrcleanrt. Great news!

    It’s a bit early but I love this little fella…

    #woohoo!

    He/she kind of speaks to the moment.


    YMMV

    in reply to: Need advise for gt4 treatment #28235
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    Hello kaju,

    There is not need to worry when you are undetected.

    If that changes we do have a good option for you, but for now we should just wait. If you need it we’ll get it for you, but if you don’t there is no point in wasting money on treatment for a disease you no longer have.

    I know it is hard, but please be patient. The wait is hard, but passes quickly. Most people that relapse do that in the first 4 weeks so testing again at that stage would be reasonable.


    YMMV

    in reply to: Need advise for gt4 treatment #28231
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    Hello Kaju,

    Well the “no virus detected” is reassuring.

    It could be a different virus causing AST/ALT to have risen – maybe Hep C or maybe just common cold.

    It could also be things like Heamochromatisis.

    There are many reasons, and often we can’t even find a reason.

    So for now, there is no need to panic. The chances are you will be cured, but if not, we can retreat. With GT4 this is easy with Viekira+Sof+Ribavirin (this is REDEMPTION-XP trial) and so far (knock on wood) we have 100% success rate.


    YMMV

    in reply to: Need advise for gt4 treatment #28229
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    Hello Kaju,

    Sorry to hear about your worry. First let’s see what the result is. Maybe there is no reason to worry, maybe there is.

    Mostly I deal with good news stories and the patients wander away.

    Sadly a few patients do relapse and we have to look at retreatment. It’s not a short story, and what needs to be done varies, but it is always possible to retreat, so even if you have relapsed the chances are you can be cured.

    I have a lot of patients cured first time round, I have some that we cured second time round, and I have a handful where it was “3rd time lucky”.

    We try to live by the moto of the US Marine Corps…

    No man left behind

    Moderated for political correctness as either

    No man, woman or child left behind

    Somehow “no person left behind” does not have the same ring to it.


    YMMV

    in reply to: Questions about medication and treatment #28228
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    Hi John,

    Propranolol typically helps. Stopping it to see if it IS actually helping would be fine. Curiously sometimes it can make things worse.

    So no need to stop it, maybe just try doing a bit of exercise. If that helps, do more exercise. If you’re fixed don’t change anything, if not, see if stopping the Propranolol helps.

    Do one thing at a time so you can know if it was “this change” or “that change” that helped.

    Avoid caffeine, taurine in all off tea, coffee, Coke, Pepsi, Red Bull, V, Max, Monster and other sources.

    Relax. I had PVCs for good 3 months consistently once. At the time I was in a “if I don’t wake up in the morning I don’t care” kind of a mood so I just left it. They went away. No idea why they were there, changed nothing, and they went away. That was a few years ago, so presumably not structural heart stuff. Maybe I just ignored them into going away, but, they came, they went, they were annoying, but… shit happens.

    PS: I do recommend patients see an expert to rule out serious stuff but doctors are notoriously bad at following their own good advice. Mea Culpa.


    YMMV

    in reply to: Questions about medication and treatment #28225
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    http://heart.arizona.edu/clinical-approach-patients-frequent-pvcs

    We need to rule out a structural cause. If there is not a structural cause of the PVCs then either

    a) They will get better with exercise
    b) They will get worse
    c) Exercise will not change them (unlikely)

    So, assuming the usual investigations have been done, and there is not a structural cause, either exercise will make them better or worse. If it makes it worse stop, if not… continue.


    YMMV

    in reply to: Questions about medication and treatment #28223
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    Hi John,

    With your PVCs they will settle if you exercise, so when you get them, get active.

    Coffee is a well known cause, but that would include Coke/Pepsi and Red Bull, V, Max, Monster, etc

    Propranolol is a relatively short-lived medication and needs to be taken at least twice a day to get consistent blood levels. It takes ~2 hours to get to maximum effect if you’re not taking it regularly.


    YMMV

    in reply to: I’m new to the forum #28221
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    Hello don-joe,

    Getting more misinformation from more misinformed people is unlikely to reduce your anxiety.

    Yes, some clear it (95%) and some don’t (5%).

    The 95% that clear it logically spend very little time on Hep B forums.

    It’s the same here. If jump in the time machine and do a search back for posts before 31/12/2015 you will see lots of names of very active members here. While a handful still drop in from time to time most of them have moved on with Hep C free lives.

    Cease and desist from your self-sabotage. You could be vaccinated for Hep B, having safe sex with randoms or unsafe sex with a reliable partner, and you would have zero anxiety about Hep B because you have zero risk.

    Try the serenity prayer,

    Give me the serenity to accept the things I cannot change,
    Courage to change the things I can,
    and the Wisdom to know the difference.

    Or if that does not work for you

    For every ailment under the sun
    There is a remedy, or there is none;
    If there be one, try to find it;
    If there be none, never mind it.


    YMMV

    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    Hello mrcleanrt,

    Itch is one of those things for which medicine has not good symptomatic treatments (other treating the cause).

    It’s great to hear that you seem to have found the cause of your itch and that the treatment has settled it.


    YMMV

    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    Congratulations JoannaCH

    #dance


    YMMV

    in reply to: I’m new to the forum #28217
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    Don-joe,

    Hep B is a disease for which there is an effective vaccination.

    It is also a disease where 95% of adults who get it will develop natural immunity and cure themselves so it’s not exactly the end of the world for an adult to catch it.

    For you, get vaccinated and stop worrying about it.

    ScreenShot2018-06-24at2.50.25pm.png


    YMMV

    in reply to: Viral load #28211
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    Hello sabrecat,

    Yes there is a small, but real risk that having a CT will give you cancer.

    For an adult the risk is roughly 1:10,000 per year post exposure with the risk being cumulative so more scans (say 10) might make this 1:1000. This was the results of a really large Australian study into the risks:

    https://www.bmj.com/content/346/bmj.f2360

    This compares to a 3% 3:100 per annum risk of a cirrhotic patient getting cancer.

    So the risk benefit analysis that HCC is relatively likely (for cirrhotics) and the chances of the scan doing harm are small. So we do the scan.

    For a child, who has a CT of their brain there is a 1:500 risk of that giving them brain cancer, so, it is very rare that we would take that risk (we would MRI).

    Patients don’t typically have the small risk of CT explained, but their doctor (if they are any good) will have considered the risk/benefit – it’s basically what we do all the time.


    YMMV

    in reply to: I’m new to the forum #28210
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    Don-joe

    1) If you have hep C it is curable
    2) If you don’t there is nothing to cure

    Either way…


    YMMV

    in reply to: Viral load #28200
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    Hello Nedgemmer,

    Welcome to FixHepC and the forum.

    Yes, strange as it may seem, your viral load has no impact on cure rate.

    You have a high viral load because your body (immune system) is not really trying to do much. The upside is that your immune system is not destroying your liver in its attempts to kill the virus. The downside is that… well, actually there is not a downside besides the extra ink to print the extra zero after 3 million (this is the average viral load).

    33 million viruses don’t eat much – maybe 1/2 a hamburger a year (they are very small) so you can afford to feed them.

    No reason not to get cured and your chances are as good as anyone else. Not 100% on the first pass, but about 95% for GT1,2,4,5,6 and 90% for GT3.

    Back in 2015, when we were doing RVR testing on a new drug we saw a guy with a 16 million viral load go to 16 in the first week. These drugs are remarkably effective.


    YMMV

    in reply to: I’m new to the forum #28197
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    Why Worry?

    Either you are sick, or you are well
    If you are well, why worry?

    If you are sick…

    Either you are going to live or you are going to die
    If you are going to live, why worry?

    If you are going to die…

    Either you are going to heaven or you are going to hell
    If you are going to heaven, why worry?

    And, if you are going to hell…

    You will be so damn busy catching up with old friends you won’t have time to worry.

    Don-joe

    Life is a gift, each day is a blessing, and the ending is known in advance – none of us are getting out of here alive.

    Life is a journey, it’s not a trial run, so seize the day and make the most of it.

    Here is a hint – every single day you have worried you’re going to die of something tomorrow YOU HAVE BEEN WRONG.

    I’ve held the hands of patients who have been dying and the common theme is “I wish I’d spent more time with family and friends, I wish I hadn’t let my fears control me and I had done X Y Z”.

    Please have a look at get.gg

    Start here: https://www.get.gg/step1.htm

    Arrest the cycle of worry – it would be a pity if you spent your life so consumed by worry that you missed all the fun.

    Be well.


    YMMV

Viewing 15 posts - 391 through 405 (of 1,968 total)