Great news Paul!

It must be a relief to get that news.

Well, I’m not sure this discussion detracts from Dr James’ post as I suspect he posted so we are aware of the latest information available to the experts while understanding that none of it is definitive at the moment. So we are just fleshing that out a bit here. But yeah if anyone wants to move it to a seperate area I’m comfortable with that.

Let me paint your meeting with your specialist in a slightly different light:

A new patient has just walked into the specialists consulting room and asked him his attitude to generics. The doctor has responded that he is fully supportive of anything that can restore his patient’s health.
Said patient has a large pile of paperwork with him which the doctor notes and then smiles as he thinks “ah, here’s a patient who is taking charge of their own health and has researched rather than expecting me to just cough up the answers”. Respecting that autonomy but wanting to make sure that he doesn’t have a voodoo follower on his hands, he has asked the patient what they think are their best options. The patient’s responses have reassured him that there are no chicken entrails involved.

Now, at this point he could have leant across the desk, God like, and stabbed his finger down onto any one of the options and said “This Is The One You Need!”
But instead he respected your intelligence and was honest with you……the options you had chosen were all good ones which would be just as likely to work as each other and he wasn’t going to try to pretend to you that there was enough evidence to favour one significantly over another.
I do suspect that if you had been less sure about generics, uninformed about your choices or just plain off track then his approach would have been different.

Though I understand why you could be uncomfortable with the outcome of the meeting based on the age old instilled beliefs we have that the medical profession must have all the answers.

Great results Vicki, both for your health and also for other hepers in the Geelong region.

As more hospitals take this approach the more pressure it puts on the holdouts to start providing the healthcare that is their charter.

G

Thanks and I agree. To clarify for anyone else reading, while the inflammation causes the damage and if extensive can impact the fibrosis reading, it is the bridging/scarring that we are trying to measure to determine the length of treatment as we know that the worse that is the longer the treatment required.

Btw good reduction in F score Dallo. Your LFTs must have been pretty high pretreatment?

Hi Paul,

Would need to check legalities of something like that.

My thoughts were more along the lines of us hosting two lots of data:

1. List of countries with their customs rules and likelihood of meds getting through.

2. “Pharma’s Market” listed reputable suppliers like Julphar who could list which countries they were able to ship to.

Then someone from country xyz could look up whether their customs was likely to let shipments through and what documentation was needed and then find a supplier who could ship to country xyz. They could then directly negotiate with that company to supply an order. Obviously no Buyers Club involvement so no laws broken and all care but no responsibility on forum’s part. Although issues with a supplier would result in them being removed from the Pharma’s Market area.

G

Great idea Mike,

This will help those who can’t access the buyers club services due to no Australian delivery address or travel ability.
Sounds like maybe It should go in the “Pharma’s Market” section?

G

Or attached to it or maybe just pinned where it is so it is easy to find?

Yep, and in 2012 Gilead refused to participate in the Phase 3 trials for Sof/Dac with BMS that had progressed through earlier stages under Pharmasett. BMS eventually went it alone.

http://hepatitiscnewdrugs.blogspot.com.au/2014/01/its-back-daclatasvir-plus-sofosbuvir.html

Nah, the gravity is fine if it helps me clear the hep. I have cirrhosis and failed prior tx so more difficult to treat and my specialist thinks it will give me a couple of % better chance. In my case every little bit counts.

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