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Excellent. always some of that happy place here, and you especially make it like that Gaj. I haven’t noticed any different a week after eot of same treatment, maybe sleep not quite as great but still a breeze
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
But look, it really does say no access criteria, and posted to your door direct by AbbVie. This is pretty good news for a lot of people.
” There would be no access criteria or restrictions for funded access to Viekira Pak
and Viekira Pak-RBV……………
In the case of Viekira Pak/Viekira Pak-RBV, it is proposed that a direct distribution
mechanism would be funded and managed by AbbVie Ltd and that the dispensing and
distribution of Viekira Pak/Viekira Pak-RBV would be as follows:
In order to access funded treatment, in both the Community and in DHB Hospitals, a
request form specifying, amongst other matters, an address for delivery, along with a
prescription would be sent to PHARMAC’s Hep C Coordinator for processing.
The Hep C Coordinator would then pass on the prescription and delivery address to
the distributor (and dispensing pharmacy) arranged by AbbVie Ltd. Patient
information would remain confidential between PHARMAC, the pharmacy and the
distributor to ensure that patient information is not disclosed to AbbVie Ltd.
Viekira Pak/Viekira Pak-RBV would be delivered to the patient at the address
specified in the request form.
AbbVie Ltd, would be required to ensure that patient counselling is offered by a
health professional to patients requiring advice and support on taking their Viekira
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
This is big news though- read through the consultation doc now and it looks like Viekira Pak for all GT1’s no restrictions, wow! but nothing for G’s2-6 at all until on transplant list. Pretty brutal division but must mean they are looking for something to fill that gap too. This is what they say about us, just this, in 6 pages:
“The proposals would not result in access to a registered funded treatment for patients with
hepatitis C of genotypes 2-6 who are early in their infection. Under the proposals, patients
with genotypes 2-6 would have access to a registered funded treatment should they develop
severe liver disease. We note that more treatments for patients with chronic hepatitis C are
in development, including treatments that would be suitable and registered for patients with
genotypes 2-6. PHARMAC continues to explore more options to widen treatment coverage
for those with hepatitis C.”
By “early in their infection” they mean all the years before you get to transplant stage.
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
Today I got an email from Pharmac, in response to a submission I sent, the day before I heard the momentous news about generics, last September. I’m G3 and was contemplating how to raise the money for the harvoni I was told I should take. 5 minutes on the internet showed me it should be sof /dac not sof/ led for me, particularly if it meant selling everything we have to get it.
Good Afternoon,
As a result of the Government’s budget announcement today, we have opened consultations on funding proposals for seven medicines, including the hepatitis C treatments ledipasvir with sofosbuvir (Harvoni), paritaprevir with ritonavir and ombitasvir copackaged with dasabuvir (Viekira Pak) and paritaprevir with ritonavir and ombitasvir copackaged with dasabuvir and ribavirin (Viekira Pak-RBV). Noting your previous response to PHARMACs request for information on hepatitis C treatments, we thought this may be of interest to you.
You can read about these proposals on our website. I have attached a copy of the hepatitis C treatments consultation for your reference.
We are seeking feedback on these proposals by 25 May 2016. Final decisions will be made by the PHARMAC Board in time for implementation from as early as 1 July 2016.
Please feel free to contact me should you have any questions.
Kind regards,
So it looks like there will be a range of options for GT1’s, but still no even mention of daclatisvir or anything as useful for GT3’s. Kiwis could make submissions
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
Fantastic news Ariel.
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
Buyers club could start selling DAA’s as hair growth promotion and make a billion dollars! or 30 ! illy:' />
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
Ha Vovoro, I have just finished tx, if I get hair growing back, knowing my luck it will come out of my chin. Nothing else to report, feel the same as on pills, which is extremely well compared to the whole rest of my life.
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
Vororo wrote:What does “investor-state” arbitration mean with the TPP?
http://www.theatlantic.com/politics/archive/2015/06/tpp-isds-constitution/396389/
Every country who signs up is called an investor state. There is an arbitration and dispute settlement process, between corporations and governments, who those corporations think are infringing their right to do, whatever, to make money in that governments country. It’s unacceptable to most legal systems because there is no appeal process, at all. none. The small group of appointed corporate lawyers who run it take turns to prosecute and adjudicate.They can set fines in the tens of millions.
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
We have some very impressive people working on it legally. The news is all bad for anyone with a brain and an attention span. Issue by issue these links are really good at explaining exactly what the text means in practice and what sort of limits are really being imposed, The legal analysis is done, by someone who knows how, and presented for an interested, non law audience. Apart from our specific indigenous treaty things, these apply to everyone who is signing up. Try the last link for the relevant patent stuff, or the environment one if you want to scare yourself: each summary is not very long.
https://tpplegal.wordpress.com/
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
Wisdom with humour as ever Gaj.
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
Someone might have posted this but a good one for my EOT
https://www.youtube.com/watch?v=KSuB4t3q_dA
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
How about after HCV, does that risk subside? And, I get the message that there is an associated risk, but I can’t quantify it:
On a scale of slightly worse than not doing it, to really going to slay the liver and an absolute no-no, where does it sit? Because there is the same balancing of quality of life etc as there is over the occasional alcoholic drink or unhealthy food or any choice we make.
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
I swing back and forward between thinking, so much has been done in such a short time by so few and one in particular, it is really evolving incredibly fast compared with building a house or anything- it is rapid spread and progress. Then I think of people like me who only just heard about it in time, and I want more! and want to know where are the doctors, media, advocates, there should be more, now! Then I calm down again and say wow. Really going at it to get one doctor anywhere on board is excellent grass roots activity, requires no publicity or personal exposure but tenacity. Tina and I dragged the medical staff along here, albeit in private capacity, and they have written scripts for a couple dozen people now. They then take pride in that and others will follow. Pockets of change will link up a lot this year.
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
I am bumping this back up because it is one of the links I copy and paste the most when ‘informing’ (hassling) media, politicians, doctors, and my poor lecturers. It shocks and shuts up everyone as their first objection forms. I usually preface it with ” not double, not triple, not ten times but 19.1…”
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
”James-Freeman-facebook” wrote:Mandarin would be great.
Sorry, she says it is beyond her and has family emergency atm. Trying for a French.
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
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