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Ariel wrote:
Thanks Hazel for introducing Marlon to my ears
pretty breathtaking isn’t he Ariel. the first time ever I saw his face was a few years ago at a small fundraiser gig at the local eco sanctuary- he was only 18 , so assured, so much stage presence, that voice just stunned the room. On tour in Europe now
https://www.youtube.com/watch?v=Sz32yyexcX4
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
This interview of Tina’s was done quite a while ago, and it was major part of what got the ball rolling here in the New Zealand media. I’d done the first newspaper story, and was at her place listening while Tina was doing this one… the journalist was just stunned to silence and 30 mins later posted that other article on the NZHF website, and there was heaps of interest from that point on. Tina did an epic rant on Gilead which of course got left out but was fairly motivational! And the other bit left out which I think is probably unique among our experiences, is immediately after being diagnosed, she had to go into the operating theatre and assist as they drained the liver of a Hep c patient in their last few days of life. She has actually seen those livers I hate to imagine! And she has also been in the unique position at times over her career of hearing the ‘esteem’ we hep c patients are held in when under anaesthetic and can’ t hear. So bloody good on you again girl for having the guts, to spill your guts, when you have seen the guts!
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
And softer. These are covers but his own are great, Dark Child esp
https://www.youtube.com/watch?v=TB_jcFax5kM
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
We are pretty proud of this young Kiwi’s voice and mana
https://www.youtube.com/watch?v=MWWap-WJAHg
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
“if you think you are too small to make a difference, you have never slept with a flea”
Oscar Wilde
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
Great news Pat these SVR’s are flooding in!
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
“And as as far as I’m concerned, any doctor who says people with F4 can wait 5 years should be taken out and shot…
… with a US Army JetGun![/quote]”
I like it Vovoro but it was: treatment for F4 now, certainly, but everyone else can wait. We beg to differ. I have been F4 17 years but have seen and heard people suffering much more day to day than I did who show far less damage. I am aware that comment has personally distressed quite a few people who feel rubbed out by that analysis. I understand he is doing liver transplant work and sees the very sickest of us but it is disheartening that he doesn’t seem aware of how limiting all the years up to that point are.
The experience, positions held and (justifiable) respect for Prof Gane’s work means he is able to set the authoritative tone for treatment here in NZ, where there is not even a discussion about funding or supplying daclatisvir for us G3’s, Harvoni only is the option for compassionate treatment, Why waste that money. He also says the total cost of treatment is $60-100k, well it might be for 12 weeks but you can double that for nearly all of us getting close to qualifying for compassionate access because we will nearly all be tx experienced and obviously cirrhotic so will need 24. I was told repeatedly (before I got my script from GP2U) i needed 12 weeks Harvoni, on the strength of Prof Ganes study, that it showed 97% success. But my category, G3 tx exp. was buried in brackets below all other results at 82%. I sent it back and forward and eventually had to print and highlight it!
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
Thanks Gaj, for reorganising threads like this. I have tidied up my post here.
I will just say, he has recently said that people who are not F4 can afford to wait 5 years: Tina’s story shows us all why that would be a criminal waste of the only life we have. You will notice she said, she has never told anyone these things- it is a gift from her, for other people to take strength from.
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
I have re-wriiten this for myself, now I am older and much wiser…… every morning I sing;
Sof and Dac and rock n roll……
https://www.youtube.com/watch?v=erGNSQMJ79Q
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
Excellent! will post this link around a bit. Draw a big audience, I would think so
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
She is all our friend Tina (Hill) on this forum LG! I’m just lucky to live nearby. Cute dog too.
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
They masquerade as respectable business people but actually are despotic warlords holding a gun to our heads and saying your money or your life. Our governments are scrabbling around to come up with more and more ransom money, and all the focus in each country has to go into coming up with the ransom, not saying, we will not do business with these (corporate) war criminals.
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
Hi. Lots of people locally in NZ buying, and getting medication in the mail safely, legally and within a week, through Redemption Trial. You need recent test results and a prescription, see the homepage of this site or pm me about doctors in NZ who will prescribe.
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
Great news Gaj. we are at a similar point in treatment, similar treatment history. I hope to celebrate some SVR’s with you, meanwhile, each milestone
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
I will have to ask them to email me its name and stats. I gathered it was an ultra ultrasound. He spoke of algorithms and waves and lost me. I understood the pictures better.
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
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