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  • 16 June 2016 at 1:52 pm in reply to: Huge Viral Load Fluctuation #19219
    hepCat
    • Topics: 3
    • Replies: 4
    • Total: 7
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    @hepcat

    No, we didn’t do them at the time of the second VL test because I’d been ill.

    GT 3a, tx naive, dx 4/12/16
    4/12/16 V/L 824,000
    2/03/16 AST 119 ALT 239 platelets 109
    4/12/16 AST 87 ALT 164 platelets 118 (different lab)
    5/5/16 FibroScan 8.9 kPa F2
    5/16/16 AST 86 ALT 157
    5/16/16 Fibrotest 0.6 F3 Actitest 0.79
    5/31/16 VL 14,413,000 (uh… YIKES)
    Y93H @ baseline
    6/20/16 Started Redemption 2 Sof + Dac
    7/516 QUANT VL: NOT DETECTED
    7/5/16 AST 34 ALT 60 Platelets 128 (diff lab though)

    12/06/16 EOT VL UNDETECTED
    1/03/17 EOT+4 VL 12,222,000
    no new RAVs; IL28B = CC

    1 May 2016 at 1:11 pm in reply to: But getting 24 weeks worth…? #16473
    hepCat
    • Topics: 3
    • Replies: 4
    • Total: 7
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    @hepcat

    Thanks to everyone for the replies. They really helped soothe my troubled mind.

    Gaj –

    Thanks for the rundown and the welcome. I am assuming 24 weeks simply because of (a) being GT 3 and (b) my AST, ALT and platelets plugged into the SVR calculator on this site says F4 with 24 wks on sof/dac.

    I have yet to get a Fibroscan. My appointment with the specialist isn’t for another two weeks though I do call the office every day to check for cancellations that will get me in sooner. No luck so far but I asked if, since I was pretty sure I needed/wanted a Fibroscan and/or ultrasound if that would be done in their location or if I’d be referred somewhere else and was told it would be another location, which means making another appointment, which means more waiting. I’m not feeling terrible patient with all this. I actually called another clinic to ask about the wait for a Fibroscan and was told I could get in within a few days. I took the weekend to consider it but I’ve decided to do it already. Hopefully the specialist won’t be too sore when I hand him the results.

    Thanks for the link to get advice for the Redemption trials.

    mgalbrai –

    I’ve read so many of your posts very carefully. Definitely helped me make the decision to pursue generics.

    Much appreciation and a deep bow of respect for your considerable efforts to get information about treatment options to others.

    Defeat10 –

    I’m leaning towards the Redemption option since it feels like it offers the best chance of success even if something happens to complicate access (e.g. TPP). It is reassuring to read of your success with this route.

    MtGoat –

    Actually, I have read your story already. :) I went to make an appointment on GP2U but couldn’t find any for Dr. Freeman and it wasn’t clear who else would be appropriate to schedule with. Then mgalbrai posted the TPP warning and I got concerned about access beyond the first 12 weeks. Prior to that, you’re path was pretty much on the top of my list. It still might be if I have reasonable certainty that the second batch can be refilled without a hitch (except, I’m so anxious to start that my head keeps telling me that in less time than it takes to ship, I could hop on a plane and pick up the meds with a bottle of water in hand so I could down the first dose on the spot). Your thoughts on an early refill are intriguing. I have a friend who does that.

    Thanks for your help.

    GT 3a, tx naive, dx 4/12/16
    4/12/16 V/L 824,000
    2/03/16 AST 119 ALT 239 platelets 109
    4/12/16 AST 87 ALT 164 platelets 118 (different lab)
    5/5/16 FibroScan 8.9 kPa F2
    5/16/16 AST 86 ALT 157
    5/16/16 Fibrotest 0.6 F3 Actitest 0.79
    5/31/16 VL 14,413,000 (uh… YIKES)
    Y93H @ baseline
    6/20/16 Started Redemption 2 Sof + Dac
    7/516 QUANT VL: NOT DETECTED
    7/5/16 AST 34 ALT 60 Platelets 128 (diff lab though)

    12/06/16 EOT VL UNDETECTED
    1/03/17 EOT+4 VL 12,222,000
    no new RAVs; IL28B = CC

    30 April 2016 at 12:51 pm in reply to: New member Intro #16429
    hepCat
    • Topics: 3
    • Replies: 4
    • Total: 7
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    @hepcat

    In the U.S. California.

    GT 3a, tx naive, dx 4/12/16
    4/12/16 V/L 824,000
    2/03/16 AST 119 ALT 239 platelets 109
    4/12/16 AST 87 ALT 164 platelets 118 (different lab)
    5/5/16 FibroScan 8.9 kPa F2
    5/16/16 AST 86 ALT 157
    5/16/16 Fibrotest 0.6 F3 Actitest 0.79
    5/31/16 VL 14,413,000 (uh… YIKES)
    Y93H @ baseline
    6/20/16 Started Redemption 2 Sof + Dac
    7/516 QUANT VL: NOT DETECTED
    7/5/16 AST 34 ALT 60 Platelets 128 (diff lab though)

    12/06/16 EOT VL UNDETECTED
    1/03/17 EOT+4 VL 12,222,000
    no new RAVs; IL28B = CC

    30 April 2016 at 12:34 pm in reply to: New member Intro #16426
    hepCat
    • Topics: 3
    • Replies: 4
    • Total: 7
    • Novice
    • ★
    @hepcat

    Hello Everyone,

    So, at the risk of giving away the surprise, I was recently diagnosed with HCV.

    I self-ordered a bunch of tests last Feb because I didn’t have a GP, had never really had basic labs since I’m pretty healthy, (apart from some dental issues and an old back injury that’s now under control), almost never sick. But I realized it would be useful to have some baseline going forward.

    The self-ordered tests had some anomalies that I wasn’t expecting. High AST & ALT (119 & 239 respectively), low platelets (109) and very low cholesterol. A bit of googling, articles on Pubmed and I was freaked. My insurance was new, but I got a referral from a trusted friend for a GP, made the appointment… two months away. He found nothing out of whack in the physical. Specifically said my liver didn’t feel stiff or enlarged; re-tested CBC and CMP and ordered a hepatitis panel. Got the results the next morning: negative for A & B; positive for C. I was truly thrown by that. In the reading I’d done, HCV seemed low probability for me given it’s modes of transmission. My GP did say the “Good news is, there are new treatments that will get rid of this. So we’ll get this.” What he didn’t say is how it’d leave me penniless. Next day I got PCR results, active virus with a V/L of 824,000 and a referral to a hepatologist, which frustratingly, was nearly a month away. Several days later I got the genotype results: 3a.

    Of course, I’d started reading and quickly found info on generics which led me to this site. I’ve been reading quite a bit. Many, many thanks to all of you who’ve not only blazed a path to affordable, effective treatment, but also, for sharing what you’ve learned.

    Honestly, apart from the anxiety over this, I feel fantastic. I’m in pretty great shape. If I can feel better, I’d welcome it. But mainly, I don’t want to feel worse and I want this unwelcome guest in my body out. of. me. now.

    GT 3a, tx naive, dx 4/12/16
    4/12/16 V/L 824,000
    2/03/16 AST 119 ALT 239 platelets 109
    4/12/16 AST 87 ALT 164 platelets 118 (different lab)
    5/5/16 FibroScan 8.9 kPa F2
    5/16/16 AST 86 ALT 157
    5/16/16 Fibrotest 0.6 F3 Actitest 0.79
    5/31/16 VL 14,413,000 (uh… YIKES)
    Y93H @ baseline
    6/20/16 Started Redemption 2 Sof + Dac
    7/516 QUANT VL: NOT DETECTED
    7/5/16 AST 34 ALT 60 Platelets 128 (diff lab though)

    12/06/16 EOT VL UNDETECTED
    1/03/17 EOT+4 VL 12,222,000
    no new RAVs; IL28B = CC

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Viewing 4 posts - 1 through 4 (of 4 total)