Jolie - FixHepC - Page 6 of 14

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29 October 2015 at 6:02 pm in reply to: BIG news on Greg’s blog fou UK patients #3026
Jolie
- Topics: 5
- Replies: 126
- Total: 131
- Guardian Angel
@jolie
Greg rocks!

ever since I got the news I started to feel much better already

Geno 3, Fibro 8.7 pKA, tx experinced in 2005 – Peg/Riba, relapsed.
Started tx 1/12/2015 with Indian Sofo & Chinese Dac.
5 weeks result all normal, ALT 18 – down from ALT 73 at the start of tx.
5 weeks HCV PCR RNA – UND. – down from 2 ML
9 weeks HCV PCR RNA – UND.
28 October 2015 at 6:58 pm in reply to: Nadia’s journey #2981
Jolie
- Topics: 5
- Replies: 126
- Total: 131
- Guardian Angel
@jolie
Nadia wrote:

Today I had my 4 weeks appointment with the nurse. She congradulated me on my great response, printed another blood test form and that’s it. Easy peasy lemon squeeze.
I’ve asked her about my baseline test results. My VL was over 1 million and ALT was 375 !
It’s absolutely amasing that it is now within the normal range.

this is so good to hear

Geno 3, Fibro 8.7 pKA, tx experinced in 2005 – Peg/Riba, relapsed.
Started tx 1/12/2015 with Indian Sofo & Chinese Dac.
5 weeks result all normal, ALT 18 – down from ALT 73 at the start of tx.
5 weeks HCV PCR RNA – UND. – down from 2 ML
9 weeks HCV PCR RNA – UND.
28 October 2015 at 6:55 pm in reply to: Gamma GT #2980
Jolie
- Topics: 5
- Replies: 126
- Total: 131
- Guardian Angel
@jolie
Alsdad wrote:

I only found out I should have had a fibroscan when I first went to see my private consultant. When I got my NHS case files through (which I’d obtained under freedom of information laws), I discovered that my NHS Hepatology Consultant had written to my GP earlier this year advising them that they were going to do a fibroscan. Instead, they did an ultrasound scan (but a very special one, as my NHS Consultant informed me). How on earth do places like that get to ‘centre of excellence’ and ‘teaching hospital’ status?
Does Coco The Clown award the accreditations in the UK?

Yes, didn’t you know???

OMG hmy: what the sick people have to go through to get anything on the NHS,
maybe the idea behind this is to make it so difficult, stressful & confusing so majority of patients just give up even trying ….?? & go away,

Geno 3, Fibro 8.7 pKA, tx experinced in 2005 – Peg/Riba, relapsed.
Started tx 1/12/2015 with Indian Sofo & Chinese Dac.
5 weeks result all normal, ALT 18 – down from ALT 73 at the start of tx.
5 weeks HCV PCR RNA – UND. – down from 2 ML
9 weeks HCV PCR RNA – UND.
28 October 2015 at 6:18 pm in reply to: I encourage people to try this. #2976
Jolie
- Topics: 5
- Replies: 126
- Total: 131
- Guardian Angel
@jolie
Thanks for sharing your story,
I too have geno 3 & was on tx 10 years ago with that soul & body destroying toxic cocktail.

It’s interesting what you said that many of your health problems started after you finished that tx 10 years ago as same happened to me, including my hair went grey where before they were naturally brown.
Before the old tx I was healthy & fit 40 years old, after I felt like 80 years old woman!

It is great to hear you are now clear , yes indeed 25 years of life only half lived…
I can totally relate to all you’re describing,

Geno 3, Fibro 8.7 pKA, tx experinced in 2005 – Peg/Riba, relapsed.
Started tx 1/12/2015 with Indian Sofo & Chinese Dac.
5 weeks result all normal, ALT 18 – down from ALT 73 at the start of tx.
5 weeks HCV PCR RNA – UND. – down from 2 ML
9 weeks HCV PCR RNA – UND.
28 October 2015 at 6:04 pm in reply to: Gamma GT #2974
Jolie
- Topics: 5
- Replies: 126
- Total: 131
- Guardian Angel
@jolie
That is a great fibroscan score,
what was your original score before tx ?

It’s good to read more & more people reporting that this new DAA’s tx is not so difficult, almost nothing to report when it comes to sides as compared to the old interferon/Riba toxic blast.

Geno 3, Fibro 8.7 pKA, tx experinced in 2005 – Peg/Riba, relapsed.
Started tx 1/12/2015 with Indian Sofo & Chinese Dac.
5 weeks result all normal, ALT 18 – down from ALT 73 at the start of tx.
5 weeks HCV PCR RNA – UND. – down from 2 ML
9 weeks HCV PCR RNA – UND.
26 October 2015 at 9:18 pm in reply to: Cured #2802
Jolie
- Topics: 5
- Replies: 126
- Total: 131
- Guardian Angel
@jolie
wonderful & amazing!
well done Vicky,

Geno 3, Fibro 8.7 pKA, tx experinced in 2005 – Peg/Riba, relapsed.
Started tx 1/12/2015 with Indian Sofo & Chinese Dac.
5 weeks result all normal, ALT 18 – down from ALT 73 at the start of tx.
5 weeks HCV PCR RNA – UND. – down from 2 ML
9 weeks HCV PCR RNA – UND.
23 October 2015 at 2:14 am in reply to: Nadia’s journey #2647
Jolie
- Topics: 5
- Replies: 126
- Total: 131
- Guardian Angel
@jolie
That is so fantastic, two weeks !
yes, those generic meds are amazing,
I hope soon many more will join the HepCFree Club

Geno 3, Fibro 8.7 pKA, tx experinced in 2005 – Peg/Riba, relapsed.
Started tx 1/12/2015 with Indian Sofo & Chinese Dac.
5 weeks result all normal, ALT 18 – down from ALT 73 at the start of tx.
5 weeks HCV PCR RNA – UND. – down from 2 ML
9 weeks HCV PCR RNA – UND.
23 October 2015 at 12:12 am in reply to: Radio National #2641
Jolie
- Topics: 5
- Replies: 126
- Total: 131
- Guardian Angel
@jolie
LondonGirl wrote:

Almost exactly the same situation as in the UK – although NICE have recently approved the treatments for some patients, not all. Unfortunately, while the headlines look good, the reality is, they have 3 months to implement it and there are severe waiting lists and as the current Gvt are conveniently devolving health authorities to their own devices, there are many hospitals that just don’t have the funds to provide the treatments. In other words, just because they are ‘approved’ – it doesn’t mean patients will get access to them and it will be a post-code lottery.

Excellent interview with Mr Freeman senior, maybe someone in England could listen and learn.

Hi & thanks for the radio interview, totally agree there with you LG, almost an exact situation here in the UK.
I believe NICE aims to have the final tx recommendation next week (?), but if the prices are not cheaper it will not work.
Even if they only treated the HCV & ignore all other diseases in the UK, still there won’t be enough money to pay for everyone’s HCV treatment at the insane prices such as they are so it’s not going to happen.
My own hospital which is one of the largest teaching hospital in the country has bankrupted 2 months ago, 2 top directors have resigned & there is no money left. The hospital is now borrowing in an excess of £2 millions pounds per day to survive!

Geno 3, Fibro 8.7 pKA, tx experinced in 2005 – Peg/Riba, relapsed.
Started tx 1/12/2015 with Indian Sofo & Chinese Dac.
5 weeks result all normal, ALT 18 – down from ALT 73 at the start of tx.
5 weeks HCV PCR RNA – UND. – down from 2 ML
9 weeks HCV PCR RNA – UND.
22 October 2015 at 10:19 pm in reply to: daclatasvir is on the way #2634
Jolie
- Topics: 5
- Replies: 126
- Total: 131
- Guardian Angel
@jolie
hi, this is good to know, thanks for sharing Umair,

Did you have any problems with importing it to your country? where do you live?
Did you need any documents or doctor script?

Testing in the Western countries is very expensive, we’re talking $0000 (!).
The API’s most people used here were tested by Buyer’s Club, but others who don’t live in Australia did not test them & still found the meds safe & effective.

Good luck with the treatment,

Geno 3, Fibro 8.7 pKA, tx experinced in 2005 – Peg/Riba, relapsed.
Started tx 1/12/2015 with Indian Sofo & Chinese Dac.
5 weeks result all normal, ALT 18 – down from ALT 73 at the start of tx.
5 weeks HCV PCR RNA – UND. – down from 2 ML
9 weeks HCV PCR RNA – UND.
21 October 2015 at 12:36 am in reply to: REDEMPTION-2 and 3 Timelines #2562
Jolie
- Topics: 5
- Replies: 126
- Total: 131
- Guardian Angel
@jolie
hello Doc James ,

I have a question concerning the timeline for those trials, you state:

December-January-February: 12 week treatment window

does this word “window” means one can start anytime in December, like after Xmas? or even January after New Year?
or are all participants supposed to start on the same day like 01 December 2015 ?? & be done by the end of Feb?
– assuming we’re talking duration tx of 12 weeks.

I’m trying to work out the best options amongst all sorts of prior commitments already made for December, etc

Geno 3, Fibro 8.7 pKA, tx experinced in 2005 – Peg/Riba, relapsed.
Started tx 1/12/2015 with Indian Sofo & Chinese Dac.
5 weeks result all normal, ALT 18 – down from ALT 73 at the start of tx.
5 weeks HCV PCR RNA – UND. – down from 2 ML
9 weeks HCV PCR RNA – UND.
20 October 2015 at 10:56 pm in reply to: Nadia’s journey #2559
Jolie
- Topics: 5
- Replies: 126
- Total: 131
- Guardian Angel
@jolie
hi Nadia,
Hope the liver discomfort has eased, there are a lot of changes going on with the body’s biochemistry while taking the meds, with the liver being the focus of it, so it makes sense you’re noticing some sensations in that part of your body.

How are you otherwise feeling in “yourself” ?
did you noticed any significant changes in your mood, energy, cognitive functions? since ,
did the fog lifted for you too?

if you don’t mind me asking….
really great to read your story, thanks for sharing,

Jolie,

Geno 3, Fibro 8.7 pKA, tx experinced in 2005 – Peg/Riba, relapsed.
Started tx 1/12/2015 with Indian Sofo & Chinese Dac.
5 weeks result all normal, ALT 18 – down from ALT 73 at the start of tx.
5 weeks HCV PCR RNA – UND. – down from 2 ML
9 weeks HCV PCR RNA – UND.
20 October 2015 at 10:26 pm in reply to: Hopeful in the US #2555
Jolie
- Topics: 5
- Replies: 126
- Total: 131
- Guardian Angel
@jolie
mgalbrai wrote:

Nothing like that at all. I just said I was with the local university doing research, which is true, since I am with the university and I am researching the efficacy of generic HCV treatments-on myself.

Geno 3, Fibro 8.7 pKA, tx experinced in 2005 – Peg/Riba, relapsed.
Started tx 1/12/2015 with Indian Sofo & Chinese Dac.
5 weeks result all normal, ALT 18 – down from ALT 73 at the start of tx.
5 weeks HCV PCR RNA – UND. – down from 2 ML
9 weeks HCV PCR RNA – UND.
20 October 2015 at 10:19 pm in reply to: Hopeful in the US #2554
Jolie
- Topics: 5
- Replies: 126
- Total: 131
- Guardian Angel
@jolie
Mike, once again, many thanks for the info

Sirchinenge, yes, Als did import the API’s some weeks ago to the UK but that was long before this new requirement was added recently that apparently Mesochem needed a letter from the compounding chemist to ensure they encapsulate the powders before shipping the goods.

Maybe the situation has changed again?…anyway, I’m going to contact her & see.
I need to order Sof & Dac,

best of luck with your tx Mike,

Geno 3, Fibro 8.7 pKA, tx experinced in 2005 – Peg/Riba, relapsed.
Started tx 1/12/2015 with Indian Sofo & Chinese Dac.
5 weeks result all normal, ALT 18 – down from ALT 73 at the start of tx.
5 weeks HCV PCR RNA – UND. – down from 2 ML
9 weeks HCV PCR RNA – UND.
20 October 2015 at 9:31 pm in reply to: Hopeful in the US #2551
Jolie
- Topics: 5
- Replies: 126
- Total: 131
- Guardian Angel
@jolie
mgalbrai wrote:

I considered testing them. An FDA accredited lab will test both for $5100.00. I thought about it, but decided if I could find ONE SINGLE reference ANYWHERE online about bogus goods coming directly from Mesochem, I would pay and have them tested. I have found absolutely nothing to refute their claim of purity and I have looked everywhere. The only thing I have read is grumbling on the Gilead share hold web site about competition from Mesochem. The tests they furnish show 99+% purity and everyone I talk to at Fixhepc says that is the case. If I am not “undetected” at 4 weeks, I will be very surprised and disappointed.
I am going for it and will keep everyone posted. My suggestion: get them now before big pharma gets their government cronies to shut down this method of getting affordable treatment.
Mike

thanks for that, good for you!
OMG $5100 that is a robbery ! hmy:

Did you contact Rachel? or someone else at Mesochem?
My confusion is that the last I heard was that we need the letter from a compounding chemist & the private script from the Doc – both almost impossible to obtain here in the UK where I live, which is delaying my purchase.

But if I can get it without the script & letter like you I’ll do it now,
Did they put any customs documentation there or on the box?

Geno 3, Fibro 8.7 pKA, tx experinced in 2005 – Peg/Riba, relapsed.
Started tx 1/12/2015 with Indian Sofo & Chinese Dac.
5 weeks result all normal, ALT 18 – down from ALT 73 at the start of tx.
5 weeks HCV PCR RNA – UND. – down from 2 ML
9 weeks HCV PCR RNA – UND.
20 October 2015 at 9:02 pm in reply to: Hopeful in the US #2549
Jolie
- Topics: 5
- Replies: 126
- Total: 131
- Guardian Angel
@jolie
mgalbrai wrote:

I live in Arkansas and ordered my sofosbuvir and ledipasvir from Mesochem. I paid them on Monday and the package was delivered to my door on Friday. I will get my blood work done tomorrow and start my treatment then. Not more than a 10 day process from start to finish. Sealed, straight from the manufacturer.
Mike

Hi Mike,
That is really great news! congratulations.
It’s good to know that you obtained your API’s without any paperwork & got them through customs OK,

Do you feel confident using the API’s without testing? or will you conduct your own testing in the US before starting the tx ?
best wishes,
Jolie,

Geno 3, Fibro 8.7 pKA, tx experinced in 2005 – Peg/Riba, relapsed.
Started tx 1/12/2015 with Indian Sofo & Chinese Dac.
5 weeks result all normal, ALT 18 – down from ALT 73 at the start of tx.
5 weeks HCV PCR RNA – UND. – down from 2 ML
9 weeks HCV PCR RNA – UND.
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