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Dear Sven,
love your message, especially the 100% <3
Thanks so much! This site, you guys and your stories, are such an inspiration and such a comfort and support.Take care & keepin touch!
Dear Coral,
thanks sooo much for your words! I truly truly hope to bit it with this first attempt, but than, I’ve seen all kinds of different journeys you guys here have taken, so I’m somehow making myself mentally prepared for both outcomes….
Trying to focus on other things & keep myself busy for the next 3 months. I plan to do the PCR mid December and I will surely be back here to share.
Wish me luck <3Thank you Dr James,
I do start worrying and wondering what happens with the shitty virus, as I didnt do any viral load during treatment, especially since finishing the pills (did any remain that will start to reproduce again!?) but I guess I’ll need to be patient for 12 more weeks and do the PCR test. The enzymes look good now versus before, but than, I also used to have them within the normal ranges for years after the infection, so I know that, even though they are a good sign of the liver health, they are still not a 100% proof that nothing’s going on behind…..Lets keep patient for a while more
All the best!
It truly is like this. I lived with the hep c diagnose for almost half of my life, and for a very long time, in a full uncertainty and fear, knowing that i have a scary, uncurable disease that can decide to kill me any moment. There was the awful interferon therapy with side effects outweighing its benefits and the expensive drugs that i could never afford buying. That was it. Quiet a dead end street…
So yes, finding out about the generics was a revelation, I could probably regain some better sleep after years since i found out about them and even before I got them. Because, the very fact of having an OPTION, is comforting by itself….Thanks Hazel,
I truly hope Harvoni helps me reach SVR too, as it has, many others, but than, no matter how it ends up for me personally, I am also, like you said, thankful on daily level and I admire what scientists and medicine have done so far, not only for hep c, with inventing this drug, but also in general, turning the impossible into possible and giving us another chance and hope…take care!
Dear Coral,
thank you so much for your nice words, it means so much, specially from people who have been through so much themselves… I’m often appreciating the possibility of the net and hearing other people’s stories with this, and the possibility to try to cure this… it’s what has kept me, for years,while there was still a lot of fog, stigma and not even an option for treatment.It’ s been going smooth so far, day 35 today counting the days to end and see the result, of course, hoping for the best…
Wishing you all the best.
Hug!Thank you for the words of encouragement guys! <3
I religiously continue the pills to the last one, hoping for the best
All best!
Dear Coral hi,
thanks for your words of encouragement- means so much.The very thought of the possibility to be clear is so motivating, that it makes me feel better than ever… It’s a placebo which comes as a bonus – hope that the drugs work too though Last couple of days I feel few times per day a tingling sensation on the upper right side, and I am imagining that it’s the harvoni beating the virus
I look forward the LFT at week 4. Keeping fingers crossed. Will share results here.
Bests!
Dear Dr. James,
thank you! this what you said sounded very reasuring, i truly hope at the end of this journey, to be among the lucky 90%+ with SVR….I actually planned to do exactly what you suggest: check the enzymes at week 4.And than maybe do viral load just after week 8,cause this was initially the duration of treatment that i was prescribed by my doctor although then we decided to take the full 12 weeks just to be on the safe side.
looking forward to each of this milestones.
thank you for being here <3
Dear Mar,
thanks a lot, I really hope it does its work “behind the scenes”I first thought to follow my doctors advice to test just 12w after treatment, but Ill probably like to also do a check at some mid point too. I hope for the best & I’ll be letting you know. Thank you & bests!
Dear DrJames hi,
thank you for your answer! And thank you for all you’ve done to make this community, for granting access to information and treatment to people who would have otherwise stayed isolated, hopeless and without a chance to try to heal (because they cant afford or because the health systems in their countries suck)Glad to hear that Harvoni itself does not impact iron levels.
I also hope that low iron levels don’t impact harvoni do its work in next 3 months
To your question, I dont have those numbers (ferritin, transferin etc) I have the serum iron levels under the normal range, hemoglobin to the low border of the range.
You are probably right that this is, very likely, linked to heavy periods. I am not taking oral contraceptive and dont intend to. I have avoided any kind of medicines most of my life, specially after being diagnosed with hepc, trying to be tender with the liver, as much as possible
I think I already ate healthy so far, but will try to focus on iron rich foods. Much looking forward to better test results in a month, hopefully the enzymes to go down and to be on the right path of killing the bug My hepatologist told me to just check enzymes during treatment, and do the HCV RNA only 3 months after Im done, not before. I think I will follow her advice, as I think it would only make me nervous if I overdo it during treatment and dont see yet what I want to see. I will wait to finish and than test. Do you think that’s reasonable or any other thought? Cause, I was thinking, whatever the viral load says during treatment, there’s nothing much to do about.
Thanks much & many warm regards!
Hi Mar,
thanks so much for your welcome and all advices. Means so much!Day 2 pill 2. I took it in the morning and went for a long bike ride. I realized that it’s better to stay active, not overthink and do my routine as usual. So far so good. Feeling just OK, energy levels as usual. But it’s early so lets hope to stay like this
All the best to you!
Dear Hazel hi,
thanks for the welcome and the words of comfort. Your path is also inspirational, wish to be over it myself too, I’ve lived with the worry of this for so long that it’s like a dream, like something impossible, at this point…I have a slight headache today which might be or might not be linked with the first pill. Or it simply may be out of the fear and excitement surrounding “the start of treatment”
I’ve agreed with my doc to do monthly blood tests to see how the iron and the liver enzymes will stand. She told me to do the HCV RNA just 12 weeks after treatment not before, but I’m not sure if I will resist the curiosity to check it before….Lets see, I’ll be taking it easy for the moment….
All the best to you too, I will be around here these days, any advice or word of experience from you guys who have been through this, means a lot. Thank you! -
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