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Hey 2b, how long sgo did you get the blood drawn?
The reason I ask is that I had mine drawn last Tuesday. I checked the Patient Portal a couple days later and I could see every test ordered and that results weren’t in yet. I checked again later, late night Thursday I believe, and the results were in, except the Quantitative test, which was not showing up at all. (It had been there earlier.)
Checked again Friday and no change so I called the clinic. Got a call back a couple hours later, was told that the Quantitative was sent out so would take longer, expect it on Monday.
Looked online late Sunday night.
Both of my providers, one in Washington State and the other in part of America’s third world … western North Dakota … have online patient access to all reports, tests, etc. If anyone out there in a first world country does not have full, complete online access to all of your own records you should be raising hell. This isn’t 1990.
I bet he’s here right now! He just accepted my friend request.
You here Zion?
Edit: Contact made! He’s IN!
Hope to talk on the phone tomorrow and he’ll send all our info to his journalist!And yes Paul, he was already aware we existed.
Aha! The Facebook account is a celebrity style account … messages get sent to a secondary folder never to be seen.
Friend requests will be ignored. It’s meant only for “followers” and such.I found the real one! Tricky guy, but not tricky enough … message sent!
All the paid people searches seem to have been scrubbed. I can see he exists but can’t get the contact info. I think I have an old phone number from a different state, but it’s too late to be trying to call now. But here he is with his keyboard.
[video]https://www.youtube.com/watch?v=0iPW9vi3xhE[/video]
Wait … email address! less than a year old!
Okay … I found him …. but it says on his facebook page that he has now been approved for treatment due to the CBS story publicity.
So I’ll think about this and see if there’s still a way to leverage this. He may still be able/willing to get us in touch with his journalist, or maybe he knows of another case that would make a good story for CBS.
Everybody keep their eyes open for an alternative way to do this.
(Damn … I’d have found him sooner if I’d only read more carefully and seen the “Y” in front of his name.)
Cool … I’ll start working on getting his info tracked down tomorrow … no guarantees, but I think I can do it!
Okay Doc, I see your point … 4 years since the investment/purchase.
______________To everybody … Again I’ll highlight that it took them only 15 days to decide to pursue, negotiate a price, and complete papers …. from Dr. Gane’s presentation at “The Liver Meeting”, or AASLD 2011, in San Francisco, to the completion of sale of Pharmasset to Gilead for $11.1 billion …. that’s gotta be some kinda record.
http://www.ft.com/cms/s/2/542ad524-8b77-11e2-b1a4-00144feabdc0.html#axzz3lD22Lvzo
There is no way this was perceived as a high risk transaction. They saw it as a sure thing … a “cash cow” in marketing terminology. Their idea that they should be getting Venture Capital style returns is ludicrous.
On the other hand, Pharmasset was in fact funded by Venture Capitalists such that it appears Schinazi only held barely over 4% of his own company. Those people did deserve a good return. (Whatever that may mean.) (I’m holding out on my opinion of Schinazi’s relationship with the VA etc. until relevant questions are answered.)
The typical human mind is such that most people don’t mentally grasp big numbers. When they hear $11.1 billion what registers is “really big number” and when they hear $3.6 trillion what registers is “really big number.” Politicians take advantage of this fact to appear like they’re dealing with problems when in fact they’re not.
But I’m going to crunch some numbers here to show why I’m not upset by Pharmasset’s sale price and its investors’ profits while I’m appalled at Gileads prices.
First, it is a known fact that the western world and Japan carry the weight of drug development costs for the rest of the world. In the US, with Medicare/medicaid prohibited from negotiating prices, and insurance companies forbidden to source out of country, the US is the primary cost bearer of Pharmaceutical Company profit taking. Japan with its aging population is likely a distant second with the EU as a single entity coming in third. So let’s look at some numbers to see what happens when you spread that $11.1 billion cost around.
$11.1 billion / various HCV Populations
US HCV population ~5.37 million or $2067/patient
This number assumes that the US carries the entire cost of the Pharmasset purchase alone.
As a US citizen I could actually accept that.If cost is carried by the primary Western World + Japan, S Korea, Singapore * … HCV population ~10.8 million … $1028/patient
If cost is carried by the “developed world minus China” (Vororo’s number above) … HCV population ~43 million … $258/patient
If cost is carried by the whole world …. HCV population ~160 million … $69.39/patient
These numbers really aren’t very big and bear no relationship to Gilead’s price tags. Again, Pharmasset’s profits aren’t remotely the problem.
______________________
* Australia, Austria, Belgium, Canada, Finland, France, Germany, Ireland, Italy, Japan, New Zealand, Norway, Portugal, Singapore, S. Korea, Spain, Sweden, Switzerland, The Netherlands, USA, UK.
Oops, I forgot Denmark …. oh well, I’m not doing it over …. you get the point.One quibble on Dr. Freeman’s post …. not three years …. Two.
The FDA approved Sovaldi (sofosbuvir) on Dec 6, 2013
For those in Australia through EU time zones, the two year anniversary date is … tomorrow.
EU approval was Jan 17, 2014 and approval in Japan was not until Mar 26, 2015.
Harvoni approval dates were:
US … Nov 12, 2014
EU … Nov 18, 2014
Japan … July 3, 2015We should throw an online SCREW GILEAD party!
My, how time flies.
Thanks 2b and GAJ for the links and especially Vororo for the links and number crunching.
And Tina, a special thanks to you for your link.
http://www.canberratimes.com.au/comment/big-karma-hits-big-pharma-as-biotech-shares-plunge-after-pricegouging-accusations-20151202-gldg59.htmlI had a personal little debate battle with someone a year and a half ago on this very issue and I hope the #@(*@! remembers me and my predictions. I also wonder if he’s not the person at Gilead that got fired. (Mr. “he’s no longer with us” who’s name I’m going to be going back looking for later to see if I can determine if I’m correct.) The person I and others were debating took the handle “pharmaguy” and made the mistake of using the personal pronoun “we” when he got worked up, seemingly outing himself as a Gilead exec. (I still can’t prove that.)
Read the comments in this article from the Wall Street Journal Blogs dated July 11, 2014.
As is my custom, I used my real name in the comments. (click “view all comments”
http://blogs.wsj.com/pharmalot/2014/07/11/gilead-faces-new-pressure-from-u-s-senators-europe-over-hep-c-pricing/One clip I’ll highlight here:
3:48 pm July 15, 2014
Kevin Hilde wrote:Pharma Guy, you either missed my point, or you’re not really understanding Capitalist Theory properly. In true capitalism no monopoly is possible. Only under the coercive power of the state can monopolies be sustained. That’s what you’re defending, not true capitalism.
Again, even I as a die hard libertarian am not absolutely anti intellectual property. But I certainly do recognize the arbitrary nature of IP rights and their durations. If you’re curious, google “Mickey Mouse Copyright” . In Donald Passman’s book “All You Need To Know About The Music Business” several times he points out how Copyright laws have been manipulated by the powerful for their own advantage.
It remains true that when government creates levers of power the powerful get their hands on the levers. Regulatory Capture is a growing problem.
To be sure, the US does not have remotely the problems that Russia and China have in that regard, but we are clearly moving that direction, away from true Capitalism, with the EU leading us by a couple body lengths. It’s sad, but authoritarianism is currently winning the political battle, and we’re headed for an awful mix of socialism and fascism. We’ll end up with authoritarian battles swinging back and forth between socialist and fascist with the two gradually ratcheting us away from our constitution and true freedom.
Whether you realize it or not, the pricing decisions of Gilead will play into the hands of the socialist side of the authoritarians. Gilead has a fantastic product. But rather than being happy with very healthy margins they are pricing this drug in such an exorbitant manner that it will bring a backlash that could destroy the industry.
Hi 1folho,
I had consultations, an ultrasound and a fibroscan done at Vejthani Hospital in Bangkok. My Gastroenterologist there was Dr. Sukprasert Jutaghokiate.
While Vejthani was not as impressive as the pictures I’ve seen of Bumrungrad Hospital, it was a very nice facility, completely modern, with a large, very attentive and seemingly very knowledgeable staff. My doctor made the entire experience comfortable and confidence building. The woman that did my ultrasound seemed distinctly more competent than the person who had previously done the procedure two years earlier in the US. I would absolutely recommend Vejthani Hospital as a medical tourism destination.
Would you be willing to tell us what facility you are using and your impressions of them? This is important as others often need to see these types of testimonials to be comfortable trying something as unorthodox as medical tourism.
Ya, it’s a mystery.
Has he been illegitimately profiting from this relationship all along?
Does he have a specific agreement with them that allows for him to take possession of inventions/discoveries?
Is he only a director/supervisor at his companies and not actually participating much in the day to day workings there?
Is there a genuine conflict here or not?
One thing is apparent …. CBS is either not competent or not motivated to get to the real issues. Maybe we should try to get Reason magazine onto the issue.
I watched the CBS story … a couple click-throughs from the above link. They make some pretty strong implications, but strangely they don’t ask or answer any of the pertinent questions.
1) What exactly is Dr. Schinazi’s role at the VA? Obvious question and they didn’t ask it.
2) Was Dr. Schinazi working on any Hepatitis C projects, or specifically drug research on behalf of the VA or any other government entity during this period of time? It’s an easy question to ask, and yet they didn’t.
3) Was Dr. Schinazi using VA or government facilities, grants or other assets to carry out his research? Again, it’s a simple question to ask and yet they didn’t.
4) Was the VA aware of Dr. Schinazi’s outside drug development companies? They play a bit with this issue but don’t actually explain it to the viewer.
Absolutely the VA was aware …. Schinazi has developed many drugs for HIV to the point that 80% of all HIV infected people are taking some type of drug he developed …. virus research is his specialty. In drug development circles the man is about a legend.
With the money he has made, it really seems unnecessary, financially, for him to continue working for the VA … and yet he does.
Think about that.
My father worked as a nurse anesthetist for a VA hospital for a number of years and I can assure you, they are not top salary payers there. So why would Dr. Schinazi work for the VA if he’s independently wealthy and the system doesn’t even pay well?
Maybe CBS is devolving into TMZ.
No, the US is an insurance based system not a single payer system … but I’m not talking about the politics of the situation. I’m talking about money and availability.
I can’t imagine that Gilead has actually agreed to that price. So some government body is picking up the majority of the cost.
Can Aussies buy their meds and have New Zealand’s system pick up the tab?
Do you really believe that these costs won’t force the treatments to be triaged?Generics are the medical equal to the brand name in every way. They are not inferior.
They are available NOW. They cost only a small amount more than this “maybe, possibly, in the future, maybe” price.I don’t understand why anyone would wait.
******* And to top it off, if you buy the generics you are taking a big burden off of your government’s budget. It’s patriotic to buy generics! And screw Gilead.
Just to be clear …. are you saying that the actual price of a bottle is to be $125 or are you saying that it’s a co-pay of $125 with the New Zealand government picking up the rest of the cost? If the latter, then the info is useful only to New Zealanders.
Also, we know from experience the general results of a “wait, wait, wait” strategy. Unless you actually have ZERO other options do not wait.
Edit: OOPs … I misread you. That’s $125 per week not per bottle.
$125 x 12 = $1500
That’s about US$1000, or really not much less than it’s available for right now.And the question about cost or co-pay still stands.
And what if you prefer Daclatasvir? -
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