Forum Replies Created
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Hello there Ariel
-I’ve been thinking of you
I can really understand the anxiety. I am not looking forward to that period myself, (well I am and I’m not !) but if you have been there before it must bring back some very stressful memories Ariel. Remember, that was a different
drug and a totally different experience. Also thinking of you Debs . Poor dt had failed twice pre the new meds, must be hellish.I think it’s totally understandable that at EOT we will feel tired ( and anxious) and Ive read many have experienced ‘liver twinges’ that cause anxiety – These are strong meds and it’ makes total sense our bodies need to adjust on stopping them , as they did when we started them, you know?
Easy to say but hard to do, but try to do some things you really enjoy/ it’s good for the spirit and therefore the body. As Dr D from MonkMed said “there ‘is something’ to be said for your own immune system” …You are both UND remember? so eat well, rest well and ..play well too
(but I don’t suggest eating Mars bars ha ha ).I hope my lovely treatment friends are still around for me end June when I am in the same situation and trying to avoid the same anxiety, remember I am only <12 unq - such a slow coach ! Another online treatment friend booked a holiday to Costa Rica for 3 weeks and walked through rain forests etc - Unfortunately for us in the UK it's still freezing, (will spring ever come)? so walking here is still a chilly affair and you can forget swimming in English waters at almost any time of the year! it's good you can get in that surf Ariel - you always seem so cheered after a surf - so go get those flippers out ! Mother nature seems to be quietly calming in these situations. (Canary islands Debs? 
)I guess there is no real easy way to help distract and we are 'so‘ i the habit of waiting and worrying and waiting again with this
attacker of our bodies and souls. However, as Gaj says, you have come such a long way, are UND and have been for some time with much better medicines 
So be kind to yourselves and your immune system as much as you can, this is your final big wait. I send BIG 
and hugs and warm wishes to you both.ps amused my liver is becoming rather ‘famous’
btw – You can dowload an app, create notes and keep up to date with the ILC2016 Barcelona meeting here :
#ILC2016 mobile app : bit.ly/1RRbljJ
Good luck Dr F
So very pleased for you Pat !
Fantastic news .
Wow Hazel, that’s shocking
hmy: GT3s struggling in UK, they’re tending to put them on Int/Sofo/Riba …
DAC is very expensive here, along with the other meds. it seems. The whole one treatment fits all concerns me too you know? we are all unique. One size may fit many, but what about the ones that don’t fit one size, you know?I can see things hopefully improving in the future, there are a few articles coming out re tailoring treatment to fit the individual patient, but if course, cost will still be an issue , but they’re talking about SVR predictions, shortening some treatments but also extending others. No doubt they have their eye on shortening, but that could hopefully help patients needing other treatments to access too? That’s the feeling I get coming from a few good Drs. who can think ‘outside the box’ and don’t just amble along getting paid and just accepting health authority guidelines without question .
One poor patient relapsed in this trial, they said that patient could have benefited with another week of Sofo/Led – So feel for that anonymous patient and so grateful I have the chance to consider my own options.
Dan also got his 4 weeks post UND today too
(in case anyone’s reading)
Life
How are YOU?! and how was your trip ?!
hey Paulino – Let me be the first to say
I may just have to change my mind about this ah ha ha !!!
Fantastic !! Onwards in happiness and better health my friend
