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– Fantastic news – It must be such a weight off your mind !
So delighted to read this
I learnt a few things. Interestingly, where I have recently feeling discomfort, liver area, is where I have the least fibrosis (right side associated with liver) – In fact, the fibrosis I have, is more on the left side of my liver.
All rather mind-blowing one way or another and I feel grateful and honoured to be part of this research. I really hope this goes on to help many more patients with non- invasive liver disease diagnostics in the future. – These people are doing awesome work
and we are (according to the Doc) “20 years behind other conditions / diseases (such as heart disease eg) in diagnostics, treatments etc “Well, I told him the patient perspective, but I’m sure he knows that 
Thanks Zhuk, Yep, you were right, MRI was easy and kinda cool ! The Doc there said it was the “Rolls Royce of MRI machines with the Luis Hamilton of operators scanning me” .
Debs, it was a pretty amazing experience. This new technology is pretty awesome, so glad I did this. It was part of ongoing trials for this new diagnostic for liver disease. I will post more about it in the week as I just got home and am pretty tired, but amazingly the (top) Doc said my liver is in pretty good shape considering . I saw a full colour scan of my liver (spleen and other stuff too!) – Never knew how far round to the left the liver went and how big it is! Getting my report in writing next week and will post more, but at this point in time, my liver is looking pretty healthy for someone with HepC. Just need to kill of those little ******* virus left.
LMS reading of 1.5 (range between 1-4 anything over 2 pretty concerning) and get this….. Also had a fibroscan to compare which has gone down to a frankly mind blowing <6 !!! I actually can't remember the actual figure, I was so stunned, but it's either 5.2 or 5.6 !!! All I can think is, healthy diet, no booze etc but my instinct is the meds helping liver function has caused this.
Pretty emotional really after the cirrhosis scare - Got a bit teary talking to the lovely Doc .
I need VL to go down to UND now for things to be much more hopeful - let's see what happens hey.
Big
to all .(edit) Fibroscan machine showed an 'accuracy of reading graphic" (something else I learned) - It was pretty accurate
It IS v cold here right now, I read something about the need for a certain body temperature in patients with HepatitisC, v interesting article, not sure if I saved it though I’ve read so much. If I find it I will post.
Great news re UND Dan, pleased for you
I can enjoy the hustle and bustle but retreat at the end of the day.
That sounds perfect to me Gaj.
We have not decided which tx to extend with for definite or for how long. We’re waiting for nxt round of tests and will make a decision week 10, which gives it 2 weeks for the meds to arrive safely
hmy: Sofo/DAC has been mentioned. Know what you mean re this thing taking up so much of our lives and those around us, really be have to have an iron will and to be so strong ! At times I find it exhausting mentally & physically. Anyway, onwards we go. Both GT1a and Sofo/Led. Maybe we should compare lifestyle habits in case there’s a pattern. (small pattern!) I was wondering whether I drank too much coffee in the morning and was also over-hydrating, Drs think with me I may have low absorption, but you seemed to absorb your meds ok, right from the start. I don’t think we can really know unless we have genetic testing and it shows resistant genes, you know? Maybe sometimes it just doesn’t work and it’s the luck of the draw. Anyhow, yes, we go forward – As I am extending, we can keep each other company heh
Hi Tina, I am sorry to read this news this morning, I can see why you are feeling gutted.
I have read that alot of people are not UND in small numbers at EOT but many still go on to clear.
I have a personal friend who was on the Abbvie who was 15 EOT and 3 months later was clear, he spent 3 months thinking he’d failed. Are you going to have another test at 4 weeks? Yesterday I even read of someone who had low figures at 7 1/2 weeks post tx and went on to clear!Not trying to put false hope on you, especially after such a disappointment, but just so you think about testing further down the line, to be sure. (No doubt you have).
I am a slow responder on Sofo/Led and there are concerns here too, so I understand how you are feeling.
Sending you the biggest hug and I’m sure Dr F will know what to do for the best and sort you out.
