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AuthorPosts
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Great news Chester
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepCWhat a worry for you Ariel,
I do hope all is well.
When it comes to daughters, nothing can tug at your heartstrings more.
Still, she’s not alone and probably holed up somewhere safe but maybe some communucations are down due to storm.
Sending BIG love
Let us know when you hear all is well
LG xxx
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepCThank-you all for your support. It wouldn’t be so bad except for 2 things.
one is, I have experienced this kind of thing so many times and it wears you down, especially when ill.
Two, I had already delayed getting bloods done because I had a chest infection & my GP told me not to go out in the cold (our coldest spell this winter here in the UK) . There’s a biting wind, not good for chest infections! I had a low fever for 2 weeks.TheNHS has been brilliant until recently. This Gvt have an idealistic plan to ruin it so they have an excuse to privatise.
We will be left with a substandard skeleton NHS which only the very poorest will be able to access with very long waiting lists if it carries on.My concern is that our age group, especially those who have a medical history of a chronic condition, will not be able to get affordable insurance, so where will that leave us?
I am so pissed off re blood test delays, not so much FBs although I am a bit interested in CR&e and white bloid celks, but VL !
My GP is lovely and very supportive but also v busy, he probably can’t keep up with all the latest changes made bu DOH and this Gvt and outsourcing of publiic services to private with new rules for each different one like the rest if us. He had filled in the usual forms & printed for me with his details & surgey, my details , the test details etc etc So now he, a busy GP has to write a letter too? Waste if GPs time and more paperwork, madness. I know GPs are getting very fed up and so oyr our junior Drs who have been on strike for the 1st time in 40 years and are leaving the NHS in droves. The Gvt have also taken away training grants for nursing. What we have held so dear since the days when you died if you couldn’t afford medical help (my grandma’s era) is being slowly eroded away.
I am trying not to let them upset me too much, they have managed tonso many times before, but it us hard! I think it’s the total rudeness and abusive attitude that really gets me, I mean, bureacracy there may be, but why take it out on a sick patient???
Here’s to more success without incident next week and no doubt another week waiting fir my VL result (Grrr)
Love to allps I should point out, that we all pay into the NHS
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepCthanks dt, It reminds me of the train companies after privatisation, too many different companies not knowing what the others are doing and no common IT system. A mess.
I typed loads then lost it as page froze, so I’ll keep it short(ish!), but will tell you this, I said to mrs Bolshy bad mood ‘Are you saying you won’t take my bloods’? Her answer ‘ Yes… (shouting) Next! ‘ – I was dismissed. You could see shecwas enjoying her power trip.
Her excuse was that although I had all the necessary forms signed by my GP with info on etc etc He hadn’t written a letter too. Ridiculous, I’ve never needed a letter before! (a few weeks ago) – The previous phlebotomist said I was entitled to have my bloods done there if I was ‘difficult’ as did my GP. The thing is, that medic could have called my GP surgery and got them to fax a letter over, but she just refused to engage with me any further. I called him and he suggested this other place (a privately run phlebotomy place that NHS patients can be referred to) . I wisely rang them the next day to check I could come in, usual abrupt manner and said no, we shut at 11.30 am and are overrun. Maybe the Gvt just want us to pay? So bad is the service. I would, except the last time Ai did that it took 2 nurses and a Dr an hour to get any blood out by way of a drip, squeezing the blood out with their hands and I didn’t really fancy that either! At the hospital, they don’t have any problems, took 30 secs last time (a few weeks ago!) Also at the hospital wherecI see my consultant, very quick, painless and no mark. What is it with my home area?!
I guess Monday morning, long cold journey at 7.30 am iand hope – basically.
Yesterday was end of week 6, lasts bloods were week 3.What a total palarvar mate hey?
ps It’s all going in the Big Blue Book!LG
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepCThanks Ariel ,
Results will be delayed as I haven’t even had them taken yet!
A long story involving the usual NHS bureacracy, a very rude medic and an upset me.
Got a cab there, wrapped up warm & everything due to recent chest/sinus infection and they rudely refused to take them even though I had the signed forms from GP.There’s more, but I am so fed up with this kind of thing locally, the rudeness is what gets me! It is what it is, try again next week!
Could get it done at GP surgery, but the last 2 times they had trouble. Pre Christmas bloods left me with a huge painful lump in vein and black & yellow painful bruise about 12″ long for 2 weeks! which is why my GP sends me to have bloods taken at the hospital. Oh well, it is what it is!
Glad your BP is calming down
Sending 2 U across the miles
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepCHey Tomas, How’s it going?
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC18 February 2016 at 8:29 pm in reply to: Tonights Newsnight UK Feature Meds, Access, Generics #12184If there ianyone in the UK happy to talk on camera about treating with generics, please PM me.
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC18 February 2016 at 4:39 am in reply to: Tonights Newsnight UK Feature Meds, Access, Generics #12146Dr Andrew Hill from Liverpool University put the question effectively: why is a course of medicine that is, to use his words, “fundamentally cheap”, costing £100 to produce, being sold to the very hard-pressed UK National Health Service at a list price of £35,000.
Yep. I thought all angles were covered. How HepC affects the patients., how some are accessing and the possibilities for those that haven’t yet. A Drs incredulous view of the price charged to a struggling NHS and pharmacuticals response (the weakest link I feel).
The presenter actually laughed at Virginia Acha denying she would access medicines abroad if she was in the same boat and she came across as if she was in a team leader corporate meeting orvsomething and totally lacking empathy.
I wanted to hug the three patients
Great job Kate Brown.
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC18 February 2016 at 4:27 am in reply to: Tonights Newsnight UK Feature Meds, Access, Generics #12144
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC18 February 2016 at 4:23 am in reply to: Tonights Newsnight UK Feature Meds, Access, Generics #12141Cheaper drugs in India were also mentioned, actually whispered about quickly in passing.
Really? Patient was clutching his bottles throught his interview and mentioned ‘talking to a physician in Australia who tested the meds saying they could be accessed much more cheaply’ ? Don’t think they’d actually be allowed to blatantly advertise a such? Clever move having the patient talking to his own Dr and hearing he was SVR 12 (edit sorry UND at EOT thx dt) was an excellent call. Also thought Dr Andrew Hill excellent with his nice calm Dr demeanour stating that we won’t be able to rid the world of HCC at this cost.
Agree with you re Virginia Archer, a non biased person watched it with me and said she came across as totally weak after the previous feature. Pity they put her on at the end though.It’s the best report we’ve had yet
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC18 February 2016 at 3:19 am in reply to: Tonights Newsnight UK Feature Meds, Access, Generics #12136It was a brilliant report. Really excellent. Newsnight brought on a woman at the end from the pharmacutical world and she sounded pretty weak and incredibly corporate in comparisson. Dr Freeman got a mention and plenty of time given to all we value – A fantastic job by Kate Brown. I hope it helps some of those ‘sitting on the fence’ to decide rather than risk their health further.
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC18 February 2016 at 2:01 am in reply to: Tonights Newsnight UK Feature Meds, Access, Generics #12130íHmmm it seems like Newsnight may be possibly shortening the feature a little and added an ‘alternative’ view as the final say at a late hour, I wonder who that could possibly be ?
Meanwhile, a reminder of todays Times article :
http://www.thetimes.co.uk/tto/health/news/article4692556.ece
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepCChejai – Don’t know how I missed this ! So very pleased for you and cheering you onwards
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepCYes, the Times, The Telegraph and the Daily Snail so far, but some good MPs are asking questions.
Plus of course, good ol’ Twitter. Please help spread the word UK people, don’t let them slither away with it ….
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepCYes, my previous consultant’s education was funded by all the big pharma. He who lied to me and offered no monitoring which ever route I took and quite clearly wanted me to wait using emotional blackmail among other tricks along with two wopping lies, one on paper.
Drug companies do need the advise of medical experts, it’s ho far that ‘advise’ goes … and if it gets into ‘murky waters’.
The good news is, they’ve been rumbled, let’s hope UK ‘civil socity’ actually DO something about it.
To think that these peoples actions cause restrictions to patients accessing these meds while raking in the dosh is uttery contemptable the fact that they work for the NHS makes it doubly so.
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC -
AuthorPosts