Forum Replies Created
-
Thank-you everyone
I post this, because previous consultants have actually made me so miserable I have felt more ill. The they say ‘try to relax’ and suggest massage or yoga etc Apart from the fact many of us are working parents, many on low incomes and short of time with fatigue,the best way we can ‘relax’ is knowing we have a consultant offering Appropriate duty of Care ! Their hands may well be ‘tied’ in some respects, due to health authority rules, but there is no excuse to be arrogant, dismissive or rude, even telling lies and not offer even the most basic of observations while waiting for or during treatment. My GP said ‘It’s important to have faith in those who are treating you’ –This so true ! It’s a negative thing all round if not – I still don’t get the reason why some public health care medics feel they have the right to treat patients like this . It should be a mutually respectful relationship and not one of one with power lording it over an already ill /stressed patient!
I have been through quite a lot getting where I am now, with a supportive GP and consultant. I had to travel quite a way to see my new consultant and it cost me in train fares and an over-night hotel, but it was worth every penny. If you are living in an area that has an alternative option, I say change. Find out what it takes to change, investigate, chase up, contact other specialists, do not give up. It is not right that we live in fear of some of our health care providers. (or anyone else for that matter!)
This also applies to receptionists etc – Regarding my previous post on the abusive (yes DT is correct, it IS abuse) receptionist at my local hospital, I am pleased to report that I mentioned her behaviour to someone who is in a more senior position and has beaten HepC themselves ; They have had a ‘quiet word’ with her manager. Don’t let these people bully you. It’s not acceptable – at all and if more of us stand up to them, a picture should emerge as to who these individuals are.
I shall go armed with the facts and ready for my own little ‘ray of sunshine’ for next bloods there. It’s a pity my new hospital is such a journey, staff were lovely, the nurse was so caring and kind and who got my bloods without pain, lumps or bruising and barely a mark and didn’t flinch at my request of a butterfly needle. A sign of a well-run treatment centre with a Dr who makes sure the attitude is good and an example of what can be done with good leadership, even when the NHS or other health authorities may be struggling. There has been pro-active work to create this attitude from what I read, it isn’t just luck, good for that person. It helps to create a happier clinic for patient and staff.
From personal experience of what DT is saying, I find this to be true in some cases at least. I definitely think these extra-hepatic manifestations should be considered at least as possibly linked to the virus and entering into a possible life – long dependency on strong drugs with sx for some of the eg Thyroid & Glaucoma type meds eg should be carefully considered. The problem is, most Drs, especially here in the uk do not look at patients holistically at all. Specialists often seem to be only concerned with their speciality & don’t seem to communicate with each other much (!) I got rid of my personal freaky mis-diagnosis with good quality Magnesium tablets. (after much research and looking at my symptoms holistically, ie supplements that also didn’t harm the liver) my old consultant didn’t seem to think it was relevant, but Magnesiumm also is said to help joint pain which I also had, and it did.
Of course, I’m sure, this is not always the case, especially when so many of us are baby-boomers and prone to certain ailments within the ageing process, but as I say, I believe a bit of research is definitely worth doing first, you never know, it may work and you may avoid some nasty drugs.
Thanks Chejai
Onwards I go.Saw my new consultant today – Just brill – I made the right decision to change.
Interestingly, at their clinic, they test at 3, 9 and 12 weeks on tx for those doing the12 weeks.It was so refreshing not to be ‘talked down to’ and Iearned some stuff too.
All in all, I’m a very happy bunny after the hotpotch of arrogant so-and-sos I’ve encountered over the past couple of years.
So refreshing and good to know there are still some genuine caring Drs out there fighting our corner.
Had to travel, but so worth it. Delighted.
Totally agree re that last paragraph DT & just wrote a post about it but the server lost it
Will attempt it again later on laptop.
Hey Sirch, I know what you mean. but then again, who can we share our news with apart from each other?
It’s a tricky balance. There doesn’t seem to be any pattern to it does there, I guess length of infection, original VL, age and just our immune systems all play a part, Plus if we get a cold, dont sleep enough pre rest, it may all play a part, who really knows? Worth bearing in mind . Maybe after these treatments are studied, some kind of vague pattern will emerge? Until then, all we can do is our best and hang on in there
Although I guess we’re not the most patient types ha ha
Wow – That’s awesome Frankiej !!
Hooray, these meds are amazing!!
Hey Jolie
I was just curious! Didn’t do FBs or anything, just LF, CR&e & VL,
Will still do the 4 week, with FBs too.You Sound like you’re on the mend ?
Hope so xox
VL down from 913575 to 1157 , 14th day of tx
Can’t work out the maths, but that’s looking like a great % of those little buggers gone to me !
On NHS my treatment would have stopped today at 8 weeks
. Good point !
Remember to tell your hospital that when this is all over & you are better.
