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Thank-you Isaing
How are you doing
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Hope you’re enjoying and living life to the full
Thank-you fitz & beaches
Not wanting to sound like a drama queen
– I guess my fear is, I was one of a very small % – ie being in the slow lane on tx, so I think am ‘protecting’ myself until I get the result, as It’s possible I could still be in the small %.Heard this morning test is saying ‘ incomplete’ – ie hasn’t been done yet. Will be keeping myself busy with work shortly
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you guys, your support means so much
Here for you Splitdog – Come on you Vox
Prayers and get well wishes from me too Claudel
Thanks Fitz
I haven’t tested since EOT, but at 10 weeks, LFTs were all within range and Alt good.
I’ve kept myself busy this weekend, but every now and then, a feeling of excitement followed by a feeling of panic comes into my head
hmy: to you and wishing you the very best of health and continued excellent results LG
Thank-you Dr F & Ariel
My bloods weren’t included in the Friday tests, still waiting, fingers crossed next week!
LG xx
ps is there a period of time they need to test within?
I have heard St Mary’s London are one of the supportive hospitals, Good luck
LG
ps I have also found,with a variety of hospitals, that when the computer system generates a new appointment date, sometimes you can phone and ask if there’s a closer date, it worked for me a few times as some people cancel or change appointments.
pps (!) Also found Dr Freeman’s GP cheat sheet was appreciated by my GP and resulted in a favourable result, can print out and give them a copy.
http://fixhepc.com/kunena-2015-11-10/gp-cheat-sheet.html
Hi LondonR mate
I was also really ‘fit’ pre diagnosis and very toned muscles. I suddenly developed severe hip, lower back and joint pain and was sent for an x-ray. as I could I could hardly walk. I went to a party one night with old friends and drank wine, the next day the pain had spread to my whole pelvic area. Short story is the Doc said she wanted to run some tests and there it was. My muscles had wasted and could not support my joints and I started to rapidly lose weight and other problems. I was also permenantly exhausted and pretty depressed, I knew the suggested triple tx at that time was Interferon Riba and the even more ugly Boc or Telap
hmy: Thankfully, I found hope. First by reading Greg Jeffereys blog, then on discovering MonkMed on Twitter and FixHepC here – What a revelation ! My London Dr had been very supportive & said I needed to treat soon, but then he suddenly retired and was replaced by another Dr who just said ‘you can wait’ which was devastating, he also said he wouldn’t monitor me if I took ‘the private route’. I found him arrogant, patronising and also told me a few porkie-pies, I was devastated. I had spent over a year in bed mostly depressed and with joint pain which didn’t stop on resting and which I couldn’t take pain kilkers for, just researching. I waited for the licensed Indian generics to come out at the start of this year and started treatment Jan.
Within weeks I actually had a spring in my step and was more energised – Totally Amazing! I was one of 4 % that with a slow responder to Harvoni, but the under advise of Dr Debasis & Dr Freeman I extended with Sofo/DAC and Dr Freeman added a 3rd med for the last 4 weeks. I’ve now been undetected for 10 weeks and I’m waiting on final SVR 12 results to come through.
I am so improved, have gained weight and started to engage with life again. joints and muscle strength will need building up again, but really, although I am cautiously hopeful, even if the result was not perfect this time, my quality of life is so improved and my fibrosis score much lowered. If I had to treat again, I would take the same path, without question. If I had been given NHS treatment, it most likely would have been 8 weeks treatment with no extention, I believe the advise and treatment here is superior, without doubt. NHS are restricted by bureacracy and cost and will try the cheapest option first in many cases. As you are a previous relapser, You have landed ithe best place here for treatment advise and support.
Some London hospitals are totally supportive of patients taking generic medicines via a trusted supply chain such as Redemption, others not. I have learned over time not to say too much until you know their policy on this, but ultimately they do have a ‘duty of care’ and as my current (and only!) lovely Specialist nurse said ‘you have saved the NHS thousands, it’s the least we can do’ but it took me a while to get there via a few ups and downs :-/
If there is a ‘good’ time to arrive here, it’s right now, with the first trial results in and more health authorities supporting, you’ve come to the right place – If you want to PM me for any NHS London advise please feel free, I’ve been around the block a few times with this! good luck and keep us posted , I’m pretty sure you will be starting to feel better soon.
LondonG
Thak-you Sven, RFH, Matt & Nads
Meanwhile, Dear Mr/Mrs Labtester , Let’s get it over with !
Yes Coral
Yes, trust and instinct was necessary back then, and now we have evidence too with the trial results, 90% + success rate and that trust worked out. Who could have dreamed of this 2015, Oh, wait on a min
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The whole experience helps to restore faith in human nature, that there are still good people in this messed up world doing great work for humanity.I send you my wishes for good health and big
LG
Thank-you Fitz,
I have been quite chilled out post tx, but now I just wanna know for sure! I can’t seem to process the Alt result really, I want to see the VL test in b & w before I can relax. Hoping tomorrow my sample will be tested… not sure I can survive another weekend ha ha I’ll be asking Dr F for a valium script
It’s been quite some time since I took my first pill on January 8th!
LG
