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Momo, I’m glad you decided to join us here. It didn’t take you long to see what most every Hep C’er or their supporters who land on this site find, it’s like you said, “family”. As Sven put it so succinctly, “You’re in the right place.”
Welcome to the family,Matt
GT1a; Got it some time in the 70’s; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA NOT DETECTED”Thanks MtG, that’s good advice and indeed it may become necessary to put it to use with my specialist, since he seems to think otherwise regarding what’s required, or the “norm” for EOT testing. Everything I’ve ever read says 4 and 12 weeks after EOT.
I’m waiting to hear back from the office per my request. I have a feeling I’ll get the 4 wk test as requested. If not I’ll order it myself and submit it to my insurance company myself with the reminders you’ve suggested concerning how much money I’ve saved them already.Thanks to you too Sven,
Very encouraging words from you. You’ve become a one man cheerleading section on the forum and I’m happy you’ve included me in your cheers.Matt
GT1a; Got it some time in the 70’s; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA NOT DETECTED”Hey simone! That IS AMAZING! Keeping your fingers crossed doesn’t mean you can’t REJOICE! You’re “UNDETECTED” after 30 YEARS MAN! I think fitz has the right idea …. dance with joy!
Matt
GT1a; Got it some time in the 70’s; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA NOT DETECTED”Greetings to one and all,
I know this is just me but … I’m feeling guilty about my recent absences from the forum. Truth be told, life catches up to us all and as a few, (well, maybe just one of you) know, I had to briefly suspend my retirement from carpentry to help a former employer out. It came at a good time in a financial way for us but highlighted the fact that I’m not as young as I think I am and the work has proved harder than it used to be.
Also catching up to me is my treatment with the generic meds. I took my last pill Wednesday night.
It was, as others have said, mixed with emotions. I find myself in the unexpected circumstance of only having been tested at 3 weeks into treatment. “Unexpected” because originally my Family Practitioner, agreed to follow the testing guidelines as outlined in the Redemption e-trials, then decided to give my Hep C specialist the prerogative to make those decisions. He has decided to wait until 12 weeks after EOT to test. Since I have an appointment scheduled with FP 3 weeks after EOT including standard blood work, I’ve rescheduled that to coincide with 4 weeks after EOT and test to include Hep C levels as well. Have not heard back concerning the blood test request. Hopefully a on that.
Overall, I feel great, despite the return to work. Needed to get off my duff anyway.And now, this I feel impelled to write,
I really appreciate what you’re accomplishing here Dr. Freeman. Thanks to you, GP2U, and MonkMed for making this all possible. Words come hard, (I’m looking back at this post posting, and see that last bit … not so much as I thought) and you’ve heard them all before I know … I guess this must be in a sense, what it feels like to be a kid on the “Make a Wish” program that has been granted his wildest dream to come true. The ones who stepped forward, like yourself, Greg Jeffries and all those who bravely tested the waters for the rest of us and accepted the risks involved, (highly publicized and exaggerated by the Pharmaceutical giants as they were/are), and in spite of it started treatment. I’ve seen you referred to as Dr. Freeman’s “guinea pigs” but I prefer to compare you to the volunteer test pilots of our modern era, and not as witless animals, unaware of your potential fate as you march off to the lab. It indeed takes the same kind of well thoughtout courage and will that it took to step into those cockpits and cabins, not entirely sure how the test would end. Still you stepped up and made that choice. I will always be humbled and grateful for your selflessness and bravery in doing so. Thank you, to those who’ve been there from the beginning and who remain here, steadfast in your support of those of us who arrived later. Giving of your time, your experience, your knowledge, but even more so, sharing of yourselves, personally and literally to help total strangers feel like long lost friends. You may never truly understand the impact you’ve had/have on those who’ve landed here. We come from different countries with different customs and life experience but with one common goal that unites us like family, stopping Hepatitis C, in all its types and manifestations from killing us, and to support each other in the battle however we can on this forum.
You, “old hands” and not so, “old hands” from what we here affectionately refer to as the, “land down under”, I’m sure you’re familiar with the term are among those who went before many of us, and I single you out because you are among the most supportive who post here. You are the “best of the best” IMHO .. and I want to express that to you personally. Thank ye from a Yankee!
Thank you for this forum, especially those who moderate it and work all of us through the “glitches” common to such technology and those that can only be attributed to the “human factor”. I’ve PM’d some of you my thoughts toward you, but let me publicly praise you all for your self sacrificing attitude toward this forum and your indispensable place here and in my heart. Your efforts here are one of the foremost reasons I was able to place my confidence in Dr. Freeman and Fixhepc. In no small way I owe you a debt of gratitude I can only repay in these words and in whatever way I can pay it forward by continuing to support your completely volunteer work here.
Done for now.Matt
GT1a; Got it some time in the 70’s; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA NOT DETECTED”Wow Will, you’ve got me beat. OR is only my 4th unless you count leaving and moving back here 3 times, in which case I just pulled even with you However, if you end up traveling to OZ or India or Bangladesh to procure your meds you’ll win hands down!
Which begs the question, is it the joy of traveling to one of those places, or have you not fully considered the Redemption Trials as an alternative? The reason I ask is that I’m certain, being part of a trial group was a motivating point in getting my doctor on board with writing a prescription. Your doctor, if I understand, is reasonable and supportive.
You don’t have to explain anything to me, I’m just thinking out loud. illy:' /> What do they say…about curiosity and something involving a cat???
Speaking of curious … did you get my PM to you?Matt
GT1a; Got it some time in the 70’s; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA NOT DETECTED”I’m late to the party. AGAIN!
Hey fitz, I’ve been gone for a bit and sporadically checking in, MAN! That is WONDERFUL news.
I just took my last pill Wednesday night. 4 week test next month hmy: can’t wait! I’ve yet to see the “undetected” on my reports, so you can imagine my anxiety level. But truth is I feel great and I have no reason to worry. It WILL happen one way or another brother. (Sorry ’bout that rhyme. Just happened) illy:' />My hope for your continued success in treating and defeating “the dragon” … hey! Did I just rhyme again???
Matt
GT1a; Got it some time in the 70’s; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA NOT DETECTED”Sorry, I don’t know what happened to the rest of the post … Just gone!!!! it happens
Anywho, as I went on to say I had just finished PM to you, (so check your “Private Messages” and I welcome you not only to the forum but to Oregon as well. It’s a beautiful planet we live on and this place is a part of it.
Best wishes. Hope all goes as it should with you getting started on treatment ASAP!Matt
GT1a; Got it some time in the 70’s; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA NOT DETECTED”Hey Will! Nice to meet you
GT1a; Got it some time in the 70’s; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA NOT DETECTED”Hi Whaemmel,
I live in Oregon also. Great to have another “webfoot” on board
I have some experience that may be of assistance in getting your dr. To write a script for you. Happy to PM you with it.Matt
GT1a; Got it some time in the 70’s; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA NOT DETECTED”Hey Fixhepcnow!
Looks like yer livin’ up to yer moniker
Amazing stuff isn’t it. More amazing still, the fact that its available to the masses and not just the wealthy or privileged among us.
Hope you have continued successful txMatt
GT1a; Got it some time in the 70’s; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA NOT DETECTED”SUH-WHEET! Ariel… that’s awesome … thanks for the advice too. Good idea.
Mattt
GT1a; Got it some time in the 70’s; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA NOT DETECTED”5 August 2016 at 5:54 am in reply to: Greedfighter’s Generic Epclusa or Harvoni to USA Journal #21855GF! That IS good news!
Looking forward to your next results palMatt
GT1a; Got it some time in the 70’s; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA NOT DETECTED”Hi jeanmarc,
I think Gaj gave sound advice. Sometimes in this battle we fight against Hep C we find we’ve brought a knife to a gunfight. Don’t despair, there are bigger and badder guns in the arsenal and it just keeps on growing. you’ll get it next time.Matt
GT1a; Got it some time in the 70’s; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA NOT DETECTED”Couldn’t agree more with you LG and with what Gaj cautions. Need some reining in from time to time m’self
This discussion is based primarily on our interest in seeing what’s out there to help each other, whether we’re new to the site or been around here a while, (like how I worded that to avoid offending anyone?) We do owe it to all parties concerned, to be careful not to give the impression that we’re experts if we’re not. Anyone can find internet information about anything and bring it to the forum.
I appreciate too what Meg had to say about the “nature” of many of us who frequent this site. We tend to accept certain risks, but try to educate ourselves and each other before we take those risks. THAT’S why I came here in the first place. I could tell almost immediately that this site was different from any I’d previously visited. Now, as to your experience with the allergy med you refer to, I’m reminded of my wife. She has the complete opposite reaction to the sfx usually included on the bottle or in the documentation of allergy meds. If it says, may cause drowsiness, she’s like she’s on caffeine. So, truly wise to check with your doctor before venturing into any self treatment regimens.Thanks, to all responsible posters,
MK – (patiently waiting for the results of Dr. Freeman’s tests on this one)
GT1a; Got it some time in the 70’s; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA NOT DETECTED”Completely understand now fitz.
Thanks,
Matt
GT1a; Got it some time in the 70’s; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA NOT DETECTED” -
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