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Cole,
Get it out of the insurance company’s hands to the external review. That is where I beat them. My complaint was based on extra hepatic manifestations. I had 30 something pages of evidence and references to scientific findings and treatment recommendations. However, the biggest factor was one little note from my doctor saying I have been complaining of severe fatigue for two decades and that he could find no reason for my chronic fatigue other than HCV. The external review committee ruled harvoni was medically necessary and overturned the insurance company’s denial of coverage. That was my third prescription in 18 months. I had taken each through every appeal I thought was available. They never informed me of my right to an external review. I found out when I FOI’d them about whether they covered ANYBODY. It turns out, they only had approved people who were on the transplant list-until me. They also mentioned one other case was still under external review. Based on that, I demanded my review and got my medicine-one day short of my 4 week mark on generics.
The system is so messed up.
I am trying to do what I can to help others avoid it.
Mike
Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtxG 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24Some thoughts:
There are an estimated 2.8 million people in the U.S. infected with HCV. (That is down from previous estimates due to, imagine this, death) Most of them don’t know it. So, say a million people realize they are sick. If one person could help 4 others access affordable treatment, and each of those did the same, After nine “generations” you have over a million people. Thats not going to happen, but ever little bit helps.Who gets helped by widespread access to affordable generics?
1. The people who are sick
2. The insurance companies
3. The government (Medicare/Medicaid/VA)
3. Society as a whole-More healthy contributors.
Who is harmed?
Hmmmmmmmmmmm……
Those big U.S. pharmaceutical companies who register their corporations abroad to avoid taxes and their shareholders, that is who.I don’t think Customs is an issue.
Bottom line: generic importers are being patriotic, doing their duty to help Medicare and the states’ Medicaid programs stay solvent.
We should get some kind of award!
I got mine a week ago……
Undetected!!!!!Mike
Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtxG 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24Hey Zhuk,
I think Cole is not “sick enough” to get insurance approval. My health insurance only covers people on the transplant list, I nailed them on my external review.
Mike
Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtxG 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24The Profunnel works great, but you can just fill the large, bottom portion. I imagine, from my experiece, you could tighly pack 420-430 mg of sofosbuvir in it. When you snap the smaller top portion on, there will be some space. So its not completely full. I don’t think the funnel is made to work any other way, but I don’t know that for certain.
Mike
Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtxG 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24Good. Happy to help. This all goes back to Greg and Dr. Freeman- they are the trailblazers. I am kind of like a U.S. apprentice or whatever…anyhow, one more person gets to escape this Purgatory created by those big pharma jerks, the insurance asses and our spineless government.
Torpac. Not like Amazon. It took 3 weeks to get my funnel in Arkansas. Probably best to call and see if you can pick it up. The funnel makes this easy.
Mike
Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtxG 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24That’s what he paid. I don’t know what the capsules cost. That would only treat for 12 weeks.
Mike
Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtxG 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24Cole,
Each time I hear from people like you its like Christmas felt when I was a little kid. NYC. I’m putting pins on a map now. They are adding up!
Since you are in NY and Torpac is in NJ, you could always switch to the 00 profunnel. What dose do you need to cap?
Mike
Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtxG 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24Maybe put 200 sof and 45 led in each cap. Just take two a day. That way they are all the same.
Mike
Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtxG 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24I don’t know. 400 mg, tightly packed leaves about 1/16 inch remaining in a 00 cap. No room for the 90 mg ledipasvir-so I make 1 sof, 1 led. I think you could get 490 mg in two 0 sized caps.
You can make it work.
Mike
Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtxG 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24Yes,
Rachel: rachel@mesochem.comHe got 34g sofosbuvir & 8 grams ledipasvir. $1916 USD
He said he needed it for a research project. Nothing more.
Mike
Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtxG 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24I think you are fine. I always weigh out 28 doses in bulk and have ended up right on the money each time.
Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtxG 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24Hi Life,
I would assume Torpac would ship anywhere.
Yes, the 400 mg of sof needs to be tamped down firmly to fit in the 00 cap. That is what I like about this funnel system-nothing can “escape” during the tamping process.
Mike
Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtxG 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24Yes. Two 10 gram calibration weights.
Mike
Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtxG 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24Yes!
Amazing and $25.
The little weighing tub is as handy as a pocket on a shirt. Couple that with the Profunnel, and you are off the the races!
Mike
Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtxG 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
These scales would show 400 mg of, say, Sofosbuvir as: .400g
They show 90 mg as: .090gThey are precise and need to be tared(a push of a button) to compensate in gravity fluctuation due to the moon’s position.
Doubt that would make much difference.
Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtxG 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24 -
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