Forum Replies Created
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zhuk wrote:
Hi everyone,
New member to the board, hoping I can learn more about the possibilities of treatment as they arise. Have been HCV positive since 1988 with Gen 1a and treatment naive, largely due to a significant history of depression & other mental illness aspects, which my Dr sees as pretty much contraindicating 12 months of the pegintf/rib combo.
My doc (specialist at a major Sydney hospital) put me off the whole idea of accessing overseas meds at an appointment today,
I’f you have the cash to get the generics I would do so now Zhuk, as Dr John Freeman said in the radio national interview they are living in cuckoo land if they think the new meds will be listed in the PBS anytime soon !
I’ve been getting the wait it’s coming for years now and just been getting sicker and sicker. There is no difference between the generics and the “genuine” meds. The generics work and you will get rid of the disease unless your very lucky and won’t have to speak to your specialist again.
cheers
Two time relapser.
SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeated
GT 3 – about 28 yrs with HCV
zhuk wrote:Yep as I mentioned I have ‘travelling’ pain and strange sensations, buzzing etc quite often at night which keeps me from sleeping sometimes. And its hard to tease out what could be the chronic pain and what could be the Hep C. I do get that “itching” sensation in the liver quadrant, is that also a thing with some people? Sometimes some ‘stinging’ as well, however a GP told me that wasn’t likely to be my liiver…which I found hard to believe as it is spot-on in the right area lol
I’ve had this for many years but over the last 2 years it’s progressed leading to some sleeplessness. It’s very hard to describe it to someone even my wife who has been UND since 2012 and had no liver issues so I don’t bother, just suffer in silence. It was particularly bad a few days ago but for the most part it feels better since I started treatment 2 weeks ago. I have to have regular medicals for work so I tend to keep quiet about my liver issues unless I freak out my GP.
I think that stinging sensation which i’ve had for many years is mild occasional bleeding from the liver, I could be wrong but I have a gut feeling that i’m not.
cheers
Two time relapser.
SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeatedGT 3 – about 28 yrs with HCV
I think thats a good result Emilio, i’m day 15 and going to get my bloods taken in a few hours. I’m expecting the same result you have right there which would make me happy.
Two time relapser.
SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeatedGT 3 – about 28 yrs with HCV
The poor guy had 6 treatments before he was cleared.
Two time relapser.
SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeatedGT 3 – about 28 yrs with HCV
Fingers crossed mate , you will find it an easier trip than last time with the Inf riba combos.
cheers,
Two time relapser.
SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeatedGT 3 – about 28 yrs with HCV
berrinice wrote:people who drink with fibrosis end up with end stage liver failure. most people i know who have died were drinkers. the iv users i know are still alive but some have died from other illnesses not hepc.
i am 3a and stopped drinking in 1990 when i found out. got it in 70’s. took chinese medicine etc and i still got f4 cirrhosis. i think good luck is in your genes. kindlyI’ve been off the drink for 25 years as well and would have been dead years ago if I didn’t, of that I am certain.
Two time relapser.
SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeatedGT 3 – about 28 yrs with HCV
Joy wrote:Hi Paul, for me the link went to ‘We can’t find the page you requested’.
All Fixed thanks for that.
And while i’m at campaigning here is another from NSW https://www.hep.org.au/campaigns/
The QLD link again – http://www.surveymonkey.com/r/HQDraftFactsheetHCVImport
Two time relapser.
SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeatedGT 3 – about 28 yrs with HCV
Just click the link and add a comment or 2 on the survey guys, we are well placed to give an informed opinion.
cheers
Two time relapser.
SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeatedGT 3 – about 28 yrs with HCV
Bloody Brilliant !
Two time relapser.
SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeatedGT 3 – about 28 yrs with HCV
Fingers crossed mate, i’m getting mine done on Saturday day 15.
Two time relapser.
SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeatedGT 3 – about 28 yrs with HCV
I think there going to be a lot of this going on over the next few weeks as results come back hopefully it’s contagious
congrats
Two time relapser.
SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeatedGT 3 – about 28 yrs with HCV
Looks like the packed Incepta drugs don’t infringe anything just the API’s possibly.
Two time relapser.
SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeatedGT 3 – about 28 yrs with HCV
@ Ann Bee your symptoms seem like mine in that I’ve had tinnitus for many years and now a week into treatment it appears to have settled down somewhat. I was so used to the tinnitus it stopped bothering me.
cheers
Two time relapser.
SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeatedGT 3 – about 28 yrs with HCV