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  • 30 September 2016 at 10:21 am in reply to: EU – who has the competence to authorize the generic HCV drugs? #23360
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    • Guardian Angel
    • ★★★★★
    @rohcvfighter

    Hi LG,

    Thank you for this view, I see it in the same way.
    Even more, looking at the answer from the EU parliament, I would say that in order for EU to initiate something, it would be required that on a lower level (national level) the countries should initiate an action favorable to HCV generic drugs. But on the national level there exist other systems (healthcare system, governments, pharma companies and distributors, etc) which are very complex and have many rules that perhaps are forbidding them to talk so easy about generics. What these systems might require is that on an even lower level, the citizens, will talk and demand that something has to be done about the HCV generics.
    As a funny thing, the systems have the power to authorize the generics, but not so much freedom to talk about these generics, while the citizens have the freedom (human right) as well as the legitimacy to talk about generics, but less power in accessing the treatment.

    I guess the key is for people to talk fearless about the HCV generic medication.

    Cheers,

    RHF

    In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
    HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
    By sharing this Youtube video you might save someone’s life!
    My TX: HEPCVIR-L[generic Harvoni]-India
    SVR52 achieved

    29 September 2016 at 11:44 pm in reply to: Fitz starts REDEMPTION 3 Trial #23353
    Avatar photorohcvfighter
    • Guardian Angel
    • ★★★★★
    @rohcvfighter

    Hi Fitz,

    well said my friend !
    Apart from the legal right to get the copies of the blood test results, I would add also the human right to freely discuss about the generic drugs.

    Even though we are living what we may call “modern times”, speaking about HCV generic drugs is still seen by many as a kind of taboo, which makes our “modern times” look more like prehistoric times :( ….when people were fearing about non-dangerous things just because they believed it was natural to have fears.

    Cheers,
    RHF

    In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
    HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
    By sharing this Youtube video you might save someone’s life!
    My TX: HEPCVIR-L[generic Harvoni]-India
    SVR52 achieved

    29 September 2016 at 7:22 am in reply to: Fitz starts REDEMPTION 3 Trial #23345
    Avatar photorohcvfighter
    • Guardian Angel
    • ★★★★★
    @rohcvfighter

    Hi Fitz,

    what a wonderful news to read while drinking the morning coffee :+1: ! Congratulations !!!

    defeated-dragon.jpg

    Enjoy the rest of the journey to SVR12 !!!

    Cheers,
    RHF

    In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
    HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
    By sharing this Youtube video you might save someone’s life!
    My TX: HEPCVIR-L[generic Harvoni]-India
    SVR52 achieved

    27 September 2016 at 12:12 am in reply to: Médecines du Monde Campaign & Petition #23287
    Avatar photorohcvfighter
    • Guardian Angel
    • ★★★★★
    @rohcvfighter

    I’ve noticed that in the last 2 months only ~12000 additional people signed this. Quite slow and reaching the target of 275000 signatures seems mission impossible.

    I was wondering whether Fixhepc might tweet this petition? It would be a simple gesture of brotherhood that might help.

    Cheers,
    RHF

    In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
    HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
    By sharing this Youtube video you might save someone’s life!
    My TX: HEPCVIR-L[generic Harvoni]-India
    SVR52 achieved

    25 September 2016 at 4:58 pm in reply to: New Zealand HCV treatment guidelines include link to FixHepC #23276
    Avatar photorohcvfighter
    • Guardian Angel
    • ★★★★★
    @rohcvfighter
    Gaj wrote:

    For our New Zealand members and guests, please see the link below to the New Zealand Society of Gastroenterology latest guidelines for treatment of HCV. While sadly only genotype 1 is currently funded for DAAs by Pharmac it is good to see the direct link to FixHepC as a reliable source of DAAs for those who do not wish or are unable to use Peg-IFN in the section on treatment for genotypes 2,3,4,5 & 6 at the bottom of page one.

    http://www.nzsg.org.nz/cms2/uploads/Hepatitis%20C%20Guidance_FINAL%20July%2011.pdf

    WOW! I do not understand how such miracles happen in NZ or Australia (OZ country perhaps?), but I am so glad that there is a place on Earth where it happens.

    Cheers,
    RHF

    In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
    HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
    By sharing this Youtube video you might save someone’s life!
    My TX: HEPCVIR-L[generic Harvoni]-India
    SVR52 achieved

    24 September 2016 at 5:32 pm in reply to: EASL Recommendations on Treatment of Hepatitis C 2016 #23262
    Avatar photorohcvfighter
    • Guardian Angel
    • ★★★★★
    @rohcvfighter

    Hi Dr. Freeman,

    Thank you for sharing, I find the video highly interesting. The first minutes were imho a little bit boring, but later on things became very attractive, especially the parts related to the hard to treat patients or the various effects / results obtained in each genotype when treated with sof/vel or the situation of the patients awaiting liver transplant.
    I would recommend this ~half an hour video to be seen while drinking the morning coffee :).

    Cheers,
    RHF

    In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
    HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
    By sharing this Youtube video you might save someone’s life!
    My TX: HEPCVIR-L[generic Harvoni]-India
    SVR52 achieved

    24 September 2016 at 2:45 pm in reply to: finished treatment now the wait #23261
    Avatar photorohcvfighter
    • Guardian Angel
    • ★★★★★
    @rohcvfighter

    Hi Another Attempt,

    firstly, CONGRATULATIONS for having started and afterwards finished the journey with the DAAs :).
    secondly, I wish you to have patience and optimism for the following weeks of “waiting and waiting”, but I guess it is by far a much better type of waiting than the “waiting to get treated” times ;-)

    Cheers and … I wish you to have a pleasant waiting, without worries !!! Next destination: SVR12!

    RHF

    In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
    HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
    By sharing this Youtube video you might save someone’s life!
    My TX: HEPCVIR-L[generic Harvoni]-India
    SVR52 achieved

    24 September 2016 at 12:55 pm in reply to: Rohcvfighter reached EOT #23256
    Avatar photorohcvfighter
    • Guardian Angel
    • ★★★★★
    @rohcvfighter

    Hi LG,

    Yes, same thing with me…. Sometimes I feel like a kid waiting for Santa to bring the desired toy…. I hope I am not behaving also like a kid… :). But ….anyway, who says it is wrong to be like a kid from time to time :-p.

    Keep your optimism up !

    Cheers,
    RHF

    In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
    HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
    By sharing this Youtube video you might save someone’s life!
    My TX: HEPCVIR-L[generic Harvoni]-India
    SVR52 achieved

    24 September 2016 at 12:13 pm in reply to: Rohcvfighter reached EOT #23250
    Avatar photorohcvfighter
    • Guardian Angel
    • ★★★★★
    @rohcvfighter

    Hello Everybody,

    I am now 10 weeks after EOT and reading lately so many wonderful news about people here reaching SVR12 or SVR24, I decided to make a blood test for the liver enzymes.
    The results show that TGP and TGO got even better (couple of units lower) than those from EOT (which were already very good – at the middle of the normal range). I would take this as a promising result.

    In 2 weeks time I will make the VL blood test,hopefully SVR12 will be confirmed.

    P.S. last night there was an earthquake in Romania around 2:11 am, quite strong 5.6 on a Richter scale. Luckily no casualties, but some people got scared.

    Cheers and a nice week-end,
    RHF

    In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
    HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
    By sharing this Youtube video you might save someone’s life!
    My TX: HEPCVIR-L[generic Harvoni]-India
    SVR52 achieved

    24 September 2016 at 10:07 am in reply to: First dose today, the journey begins…. #23249
    Avatar photorohcvfighter
    • Guardian Angel
    • ★★★★★
    @rohcvfighter

    Hi Sven,

    as a simple citizen, such answers make me cry.
    In the constant concern of modern people to always say “politically corect” things, you get such scientific letters.

    I would interpret the letter as : you are undetected, but there is a tiny tiny probability some virus might be present, so if you get the same result 12 weeks after EOT, you are cured.

    But that’s juet me, Misa no doctor :).
    Cheers,
    RHF

    In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
    HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
    By sharing this Youtube video you might save someone’s life!
    My TX: HEPCVIR-L[generic Harvoni]-India
    SVR52 achieved

    23 September 2016 at 7:12 am in reply to: FIXHEPC information translated in Romanian language #23228
    Avatar photorohcvfighter
    • Guardian Angel
    • ★★★★★
    @rohcvfighter
    REZUMAT

    In aceasta postare voi face un rezumat al informatiilor care ar putea prezenta un interes foarte mare pentru tine. Fac totusi precizarea ca volumul de informatii disponibil pe acest forum este mult mai mare, prin urmare, in cazul in care simti ca ai nevoie de mai multe detalii, citeste postarile celorlalti utilizatori si…. de ce nu, creeaza-ti un cont (daca nu ai deja unul) si intra in discutie cu ceilalti si plaseaza intrebarile tale. Cu siguranta vei primi un raspuns de la ei.

    Sa recapitulam:
    1. Medicamentele generice pentru hepatita C sunt copii aproape identice ale medicamentelor brevetate originale ce contin aceleasi substante active care trateaza HCV. Sper ca pana acum ai devenit familiar cu denumiri ale DAA (Direct-Acting Antivirals) precum Sofosbuvir / Sovaldi, Daclatasvir / Daklinza, Ledipasvir, Harvoni, etc.
    2. Medicamentele generice pentru hepatita C reprezinta un tratament eficient pentru care este nevoie de reteta de la doctor. Doctorul este cel care iti poate spune cel mai bine care este combinatia de medicamente de care ai nevoie, precum si care este durata tratamentului. (daca nu ai un doctor care sa te ajute si ai nevoie de unul, ia legatura cu dr. James Freeman).
    3. Medicamentele generice pentru hepatita C sunt cu mult mai ieftine decat medicamentele brevetate si la momentul acestei postari este permisa importarea in Romania pentru UZ PERSONAL (poti consulta art. 60 din TRIPS precum si http://fixhepc.com/getting-treated/how-to-do-it/worldwide-import-regulations.html#ROMANIA ).
    4. In cazul medicamentelor generice, lantul de aprovizionare reprezinta un aspect extrem de important. Iti poti procura tratamentul cu generice HCV fie inscriindu-te in studiile REDEMPTION http://fixhepc.com/home/redemption-etrials.html, fie apeland la una dintre sursele verificate de catre ceilalti membri ai forumului si considerate ca fiind de incredere (citeste mai multe infomatii aici http://fixhepc.com/forum/daa-access/457-warning-to-online-buyers.html si aici http://fixhepc.com/forum/daa-access.html)
    5. Medicamentele generice pentru hepatita C sunt disponibile sub nume diferite, de aceea substantele active pe care le contin sunt cele care iti vor spune daca ai primit tratamentul conform retetei doctorului.
    6. Hepatita C este o boală mortală dacă este lăsată netratată. Din nefericire se intampla deseori ca sistemul de asigurari de sanatate nu poate suporta costurile pentru tratamentul HCV. Medicamentele generice pentru HCV reprezinta alternativa de a te trata cu DAA.
    NU DEVENI STATISTICA!
    INFORMEAZA-TE!
    DISCUTA CU DOCTORUL!
    TRATEAZA-TE!

    		SUMMARY

    In this post I will summarize the information that could be of great interest to you. I would like however to mention that the volume of information available on this forum is much higher, therefore if you feel you need more details, read the posts of other users and …. why not, create your account (if you do not already have one) and engage in discussions with the others and place your questions. You will surely get an answer from them.

    Let’s recap:
    1. Generic drugs for hepatitis C are almost identical copies of original patented drugs which contain the same active substances for treating HCV. I hope by now you’ve become familiar with the names of DAA (Direct-acting antivirals) like Sofosbuvir / Sovaldi, Daclatasvir / Daklinza, Ledipasvir, Harvoni, etc.
    2. Generic drugs for hepatitis C represent an effective treatment that requires prescription from a doctor. The doctor is the one who can tell you which is the best combination of medications that you need, and what is the duration of the treatment. (if you do not have a doctor to help you and you need one, get in touch with Dr. James Freeman).
    3. Generic drugs for hepatitis C are much cheaper than the patented medicines and at the time of this posting the importation for PERSONAL USE is allowed in Romania (you may consult the art. 60 from TRIPS as well as http://fixhepc.com/getting-treated/how-to-do-it/worldwide-import-regulations.html#ROMANIA ).
    4. In the case of generic drugs, the supply chain is an extremely important aspect. You may obtain the treatment with HCV generics either by enrolling in the REDEMPTION trials http://fixhepc.com/home/redemption-etrials.htm or by using one of the sources vetted by the other forum members and considered as trustworthy (read more Information here http://fixhepc.com/forum/daa-access/457-warning-to-online-buyers.html and here http://fixhepc.com/forum/daa-access.html )
    5. Generic drugs for hepatitis C are available under different names, therefore the active substances contained in it are those that will tell you if you got the treatment according to the doctor’s prescription.
    6. Hepatitis C is a deadly disease if left untreated. Unfortunately it often happens that the health insurance system can not bear the costs for the treatment of HCV. The generic drugs for HCV is the alternative to get treated with DAA.
    AVOID BECOMING A STATISTIC!
    GET INFORMED!
    TALK TO YOUR DOCTOR!
    GET TREATED!

    In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
    HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
    By sharing this Youtube video you might save someone’s life!
    My TX: HEPCVIR-L[generic Harvoni]-India
    SVR52 achieved

    22 September 2016 at 7:46 am in reply to: Surprise: Gilead’s hep C wonder Harvoni costs less in U.S. than #23208
    Avatar photorohcvfighter
    • Guardian Angel
    • ★★★★★
    @rohcvfighter
    ”James-Freeman-facebook” wrote:

    The fundamental problem is that a 50% discount sounds great until you consider that the mark up is over 10,000%

    The discount reduces that to a mere 5,000% and no matter which way you look at it $50,000 is a shit ton of cash for something that costs a few hundred dollars.

    Gilead have been magnificent in reframing the arguments from:

    1) “Greedy Pharma price gouging” to “Mean insurers refuse to pay”
    2) “Prices are unaffordable” to “We give big discounts”
    3) “Most of the world can’t get access” to “We have an access program for low income countries”
    ….

    Generally speaking, I see “reframing” as a technique having two facets:
    – it can be used to correct a wrong understanding or provide a better clarity for an argument / situation / context / problem, etc. // not Gilead’s case
    – it can be used to divert attention from a certain “sensitive” situation with the goal to either close that situation or to win additional time until a new/different context will arise/appear.

    Thinking on Gilead and the today’s world where people are quite well connected to the internet, I believe G’s strategy to establish an extremely high price for the HCV drugs took into account among other aspects also the following 2:
    – the “20-30 years protection” given by the Patent laws will not resist in front of the generics, NOT when 200 million people are having HCV – especially that the information about the medical tourism, buyer’s clubs, news about generics are spread much much faster than 15 years ago (HIV case)
    – the “reframing” techniques mentioned above allows Gilead to either stay in control of the monopoly they have, either win additional time in which they can make a lot of money and fast.

    Cheers,
    RHF

    In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
    HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
    By sharing this Youtube video you might save someone’s life!
    My TX: HEPCVIR-L[generic Harvoni]-India
    SVR52 achieved

    21 September 2016 at 7:36 am in reply to: How Big Pharma Pressures States to Pay for Pricey Pills #23175
    Avatar photorohcvfighter
    • Guardian Angel
    • ★★★★★
    @rohcvfighter

    Just a quick thought about Big Pharma’s money and ….. the EASL conference from Paris taking place soon.

    After the ILC Barcelona when Dr. Freeman presented the REDEMPTION results and the wonderful press release that followed immediately stating that HCV generic medication is same efficient as the branded treatment, I was hoping that all future EASL conferences will insist more and more on the role of generics.

    But now, when I see that this event from Paris is being sponsored by Big Pharma, I kind of lost my hope… I really hope I am wrong on this one. The program of the conference may be found here: http://www.easloffice.eu/office/paris2016/mobile/index.html#p=1

    Cheers,
    RHF

    In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
    HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
    By sharing this Youtube video you might save someone’s life!
    My TX: HEPCVIR-L[generic Harvoni]-India
    SVR52 achieved

    20 September 2016 at 11:52 pm in reply to: How Big Pharma Pressures States to Pay for Pricey Pills #23159
    Avatar photorohcvfighter
    • Guardian Angel
    • ★★★★★
    @rohcvfighter
    mgalbrai wrote:

    This doesn’t surprise me a bit. People (like me) in the US are howling about their insurers not covering these outlandishly expensive drugs when they should be complaining about the manufacturer charging these ridiculous prices.
    ……………….
    Thank God and James Freeman for generics.
    m

    Similar things I noticed also in RO. I’ve heard many patient’s complaints and also read a lot of “honest” articles where HCV advocacy groups are targeting the budget of the healthcare system in order to create pressure so that the government will allocate and pay more money for treating the HCV patients. Oh, and how they master to play the “song” of patient’s safety…….

    Sometimes I am questioning myself whether keeping the treatment prices extremely high opens the gate for bribery…..
    Here is a short extract from Wikipedia about the bribery in medicine (https://en.wikipedia.org/wiki/Bribery#Medicine)

    Medicine

    Pharmaceutical corporations may seek to entice doctors to favor prescribing their drugs over others of comparable effectiveness. If the medicine is prescribed heavily, they may seek the reward the individual through gifts.[7] The American Medical Association has published ethical guidelines for gifts from industry which include the tenet that physicians should not accept gifts if they are given in relation to the physician’s prescribing practices.[8] Doubtful cases include grants for traveling to medical conventions that double as tourist trips.

    Dentists often receive samples of home dental care products such as toothpaste, which are of negligible value; somewhat ironically, dentists in a television commercial will often state that they get these samples but pay to use the sponsor’s product.

    In countries offering state-subsidized or nationally funded healthcare where medical professionals are underpaid, patients may use bribery to solicit the standard expected level of medical care. For example, in many formerly Communist countries from what used to be the Eastern Bloc it may be customary to offer expensive gifts to doctors and nurses for the delivery of service at any level of medical care in the non-private health sector.[9][10]

    This last paragraph really makes me sad….

    In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
    HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
    By sharing this Youtube video you might save someone’s life!
    My TX: HEPCVIR-L[generic Harvoni]-India
    SVR52 achieved

    19 September 2016 at 7:41 am in reply to: SVR-n is achieved. Now what? #23121
    Avatar photorohcvfighter
    • Guardian Angel
    • ★★★★★
    @rohcvfighter

    Hi Beaches,

    – the first advice that comes into my mind is to watch dr. Freeman here starting from 4min50sec:

    – the second advice – your battle with hep C is finished, however perhaps your mindset is still “engaged” in the fight with hep C. So the advice would be to truly acknowledge the battle is over and start thinking on the things you wish to do for the future. That’s quite interesting and challenges to think on new goals, whichever you will think of, knowing you do not have to “survive” the HCV bastards. Oh, do not think with regrets on the past history when you were having hep c. This is why I am looking on the treatment for hep C as a personal EVOLUTION (things have changed a lot about how I feel and how I think) :).

    Therefore: ENJOY THE LIFE FREE OF HCV !! and MAY ALL YOUR DREAMS COME TRUE !!

    P.S. having a 3 months break sitting under a tree sounds like a nice goal. I would make it also if I could :) :P

    Cheers,
    RHF

    In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
    HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
    By sharing this Youtube video you might save someone’s life!
    My TX: HEPCVIR-L[generic Harvoni]-India
    SVR52 achieved

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