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Viewing 15 posts - 241 through 255 (of 338 total)
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  • Avatar photorohcvfighter
    • Guardian Angel
    • ★★★★★
    @rohcvfighter

    YOUTUBE videos with subtitles in your native language

    Adding a subtitle in your own native language to a youtube video and having it published on youtube in your country increases the chances that one of your compatriots will see it.

    There are now quite many videos on Youtube talking about generics for HCV. Many are available in English, so you may chose one that you consider relevant.

    Couple of tips:
    – check the video’s licensing terms
    – you may add a subtitle by using the caption option from Youtube or embed the subtitle in the video (the free tool Windows Movie Maker is very easy to learn and use).
    – you need an youtube account
    – usually, the work to embed the subtitle for 1 minute video requires about 10-15 minutes, depending on your language skills and ability to type. So for a 10 minutes video you will work about 2-3 hours.
    – on youtube you may add additional information about the video material and its content, but make sure you are not exagerating nor posting info that are against Youtube rules (false info, discrimination, etc) as it might lead to the video being removed (possibly also other consequences for breaching the rules).

    Advantage: videos are very convincing, so you need to make sure that the translation is of a good quality

    Disadvantage: the videos are not so much visualized ( like the news from an online website) but hey, if at least one single person will use the information from the video in finding the way to get treated from HCV, you may still call it a BIG WIN.

    Cheers,
    RHF


    In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
    HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
    By sharing this Youtube video you might save someone’s life!
    My TX: HEPCVIR-L[generic Harvoni]-India
    SVR52 achieved

    in reply to: Long-term Reduction in Liver Fibrosis After SVR #20896
    Avatar photorohcvfighter
    • Guardian Angel
    • ★★★★★
    @rohcvfighter

    Hi Fitz,

    here are couple of articles about reverting cirrhosis that I’ve been reading.
    Some of the medical terms confused me, so I am no longer sure if any of the drugs galectin or simtuzumab will apply to the cirrhosis caused by HCV or to the cirrhosis caused by other factors:

    http://www.ncbi.nlm.nih.gov/pubmed/27170396
    http://www.fiercebiotech.com/r-d/strike-two-gilead-chalks-up-another-setback-for-top-pipeline-prospect-simtuzumab
    http://perspectives.galectintherapeutics.com/the-potential-for-treatment-of-liver-fibrosis-with-galectins-drug-candidate-gr-md-02/ (I think this is the case of cirrhosis from fatty liver)
    http://www.news-medical.net/news/20160303/Modified-protein-appears-to-reverse-liver-fibrosis-cirrhosis-in-rats.aspx // no solution yet for humans.

    Cheers,
    RHF


    In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
    HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
    By sharing this Youtube video you might save someone’s life!
    My TX: HEPCVIR-L[generic Harvoni]-India
    SVR52 achieved

    in reply to: FIXHEPC information translated in Romanian language #20876
    Avatar photorohcvfighter
    • Guardian Angel
    • ★★★★★
    @rohcvfighter

    Postez in acest mesaj un link Youtube catre materialul video, avand subtitrare in limba romana, cu dr. Freeman si prezentarea powerpoint sustinuta la ILC Congress Barcelona in aprilie 2016.
    ——
    I post in this message a Youtube link to the video material, having Romanian subtitle,with dr. Freeman and the Powerpoint presentation held at ILC Congres Barcelona in April 2016.

    https://www.youtube.com/watch?v=TVO_lFY7j2U


    In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
    HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
    By sharing this Youtube video you might save someone’s life!
    My TX: HEPCVIR-L[generic Harvoni]-India
    SVR52 achieved

    in reply to: Way high AST 230 #20875
    Avatar photorohcvfighter
    • Guardian Angel
    • ★★★★★
    @rohcvfighter

    Just a thought, but better ask a doctor: did you got checked also for other diseases that might give high numbers of AST ?


    In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
    HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
    By sharing this Youtube video you might save someone’s life!
    My TX: HEPCVIR-L[generic Harvoni]-India
    SVR52 achieved

    Avatar photorohcvfighter
    • Guardian Angel
    • ★★★★★
    @rohcvfighter

    Avoid becoming an HCV statistic. Generic works. Google for “generic hep C medication” to find the $1.500 answer for Gilead’s $94.000 question. Use your right to get free from HCV.


    In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
    HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
    By sharing this Youtube video you might save someone’s life!
    My TX: HEPCVIR-L[generic Harvoni]-India
    SVR52 achieved

    in reply to: Long-term Reduction in Liver Fibrosis After SVR #20865
    Avatar photorohcvfighter
    • Guardian Angel
    • ★★★★★
    @rohcvfighter

    I was reading some days ago an article about a certain drug that is still in R&D and which can revert fibrosis scar tissue into normal tissue.

    I need search for it, but it was somehow similar with this one:
    http://beforeitsnews.com/health/2016/01/researchers-work-to-reverse-liver-fibrosis-scarring-of-the-liver-2606712.html

    Cheers,
    RHF


    In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
    HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
    By sharing this Youtube video you might save someone’s life!
    My TX: HEPCVIR-L[generic Harvoni]-India
    SVR52 achieved

    Avatar photorohcvfighter
    • Guardian Angel
    • ★★★★★
    @rohcvfighter

    in the last couple of days, in a separate thread, there was a discussion about e-mail signatures and slogans.
    So far we collected 2 pitches that might be used as e-mail signatures by whoever wishes to support this action:

    Message 1 (@dr. Freeman: thank you for the message as well as for the tips ;-) )
    Don’t become a Hepatitis C statistic. Get treated with affordable generic medication and rediscover what it feels like to be well again. Generic medications are identical copies of effective medicines, but carry a far lower price tag. In a world where half of all HIV patients take generics, why is it that less than 1% of the 180 million HCV patients worldwide been able to access the new miracle cures? Imagine how good you will feel to be free of Hep C. Google for “generic hep c medication” to find the facts. Sharing this post could save someone’s life, so please help spread the word and share this with your friends

    Message 2
    500.000 people unnecessarily die every year because of HCV. The cure exists as branded and generic medicines and the worldwide mass treatment of HCV patients is the key for making the world free of Hepatitis C! Generic medications are identical copies of effective medicines, but carry a far lower price tag. In a world where half of all HIV patients take generics, why is it that less than 1% of the 180 million HCV patients worldwide been able to access the new miracle cures? Imagine a world free of HCV and with millions of lives being saved. Google for “generic hep c medication” to find the facts. Sharing this post could save someone’s life, so please help spread the word and share this with your friends


    In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
    HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
    By sharing this Youtube video you might save someone’s life!
    My TX: HEPCVIR-L[generic Harvoni]-India
    SVR52 achieved

    Avatar photorohcvfighter
    • Guardian Angel
    • ★★★★★
    @rohcvfighter

    Hello Dr. Freeman,

    Thank you for this solution :). It has a great sounding and should attract a lot of attention for HCV patients (and their relatives/friends).

    Going further with this pitch, just for the sake of this exercise of creativity, I would think that the following pitch would be attractive for someone which does not work in the medical world nor is an HCV patient:

    500.000 people unnecessarily die every year because of HCV. The cure exists as branded and generic medicines and the worldwide mass treatment of HCV patients is the key for making the world free of Hepatitis C! Generic medications are identical copies of effective medicines, but carry a far lower price tag. In a world where half of all HIV patients take generics, why is it that less than 1% of the 180 million HCV patients worldwide been able to access the new miracle cures? Imagine a world free of HCV and with millions of lives being saved. Google for “generic hep c medication” to find the facts. Sharing this post could save someone’s life, so please help spread the word and share this with your friends

    P.S. I tried to add the message to my signature, but it seems there is a count character limit, as I cannot add the full text. So… I have to go now back to think on the slogan :)

    Cheers,
    RHF


    In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
    HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
    By sharing this Youtube video you might save someone’s life!
    My TX: HEPCVIR-L[generic Harvoni]-India
    SVR52 achieved

    Avatar photorohcvfighter
    • Guardian Angel
    • ★★★★★
    @rohcvfighter

    Hello Everybody,

    many thanks to all of you for your involvement in this small exercise of creativity.
    After having looked at all suggestions, this is the result. Not so much as motto, as I initially thought, rather a message which I hope will raise the interest of many:
    “The worldwide mass treatment of HCV patients is the key for making the world free of Hepatitis C!
    The cure exists as branded and generic medicines, both having the same power to eradicate HCV. While branded drugs have opened the way for treating hepatitis C, the affordable generic drugs boost the endeavors to wipe HCV from the face of Earth.
    DECIDE for the much cheaper generic medicine, if the patent holder’s high price for the branded treatment raises barriers for you. It’s your right as patient to act and break free from HCV, not a patent right!
    Don’t let you or those around you become an HCV statistic! Visit http://www.fixhepc.com to find out how and join our efforts to spread the news! “

    The work is still in progress and I am open to further improvements / ideas. Please feel free to make any comment, either here either via PM. (Also my grammar might suffer a little bit … feel also free to make any corrections you think are necessary)

    Many thanks again,

    Regards,
    RHF


    In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
    HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
    By sharing this Youtube video you might save someone’s life!
    My TX: HEPCVIR-L[generic Harvoni]-India
    SVR52 achieved

    Avatar photorohcvfighter
    • Guardian Angel
    • ★★★★★
    @rohcvfighter

    A key element is converting the doctors to believe in these new medication. That’s what happened also with our dr. Freeman(see his statement “I’ve been converted by these new medication” in the video available on the homepage of Fixhepc.com).
    A “converted” doctor has the power to treat hundreds / thousands of patients, while hundred of patients can convert at least one doctor. And so the wheel is spinning….
    I would look at the 85% percent doctors mentioned by Woobia and try to identify how many “Freemans” are among them, open to be converted :)

    In the end, it is not a matter of who is right or wrong, rather a matter of knowledge and information share.

    What we as patients (or former patients) can do is to facilitate this information share.

    Cheers,
    RHF


    In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
    HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
    By sharing this Youtube video you might save someone’s life!
    My TX: HEPCVIR-L[generic Harvoni]-India
    SVR52 achieved

    in reply to: Epclusa … Gilead’s Sofosbuvir/Valpatasvir #20775
    Avatar photorohcvfighter
    • Guardian Angel
    • ★★★★★
    @rohcvfighter

    Hi Everybody,

    looking at the information available about Velpatasvir and Ledipasvir, we can see that both are NS5A inhibitors.

    In my understanding, this means that they do action in similars ways in the replication process of the HCV virus …..

    So, let’s assume that one gets treated with Sofosbuvir+Ledipasvir and …will unfortunately relapse. Does it make any sense to get treated again, but this time with Sofosbuvir+Velpatasvir?

    P.S. perhaps it is a stupid question, but my logic got locked on this….

    Cheers,
    RHF


    In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
    HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
    By sharing this Youtube video you might save someone’s life!
    My TX: HEPCVIR-L[generic Harvoni]-India
    SVR52 achieved

    Avatar photorohcvfighter
    • Guardian Angel
    • ★★★★★
    @rohcvfighter

    Hi Tina,

    I received it, great message, thank you very much,

    Regards,
    RHF


    In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
    HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
    By sharing this Youtube video you might save someone’s life!
    My TX: HEPCVIR-L[generic Harvoni]-India
    SVR52 achieved

    Avatar photorohcvfighter
    • Guardian Angel
    • ★★★★★
    @rohcvfighter

    Hi Cheese

    I agree on this :). In an ideal world, treating a patient is in fact a team work patient <-> doctor, where we as patients “know” more than the doctor in terms of what and how we feel, while the doctors knows more than us about the treatment options. In real world however, there are 2 more things to take into account:
    – the patient learns something from the doctor and the doctor learns also something from the patient. I see here important that both, the doctor and the patient are open to such learning and do not reject the learning. Sometines it happens that a certain information reaches the patient first. Being open to learn, no matter if one is doctor or not, is an important skill that is to admire and foster and which creates room for new approaches. And informing your doctor and obtaining his/her support for “unofficial” generic medication from India is a new approach (even if in other parts of the world is a known approach)
    – teamwork does not always happen …. and this is why most dramas happen. And also here is where one start to hear more about clichees like “acting in patients interest”, “safety first”, etc, as means to justify the lack of action and the preference to stick to the knitting.


    In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
    HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
    By sharing this Youtube video you might save someone’s life!
    My TX: HEPCVIR-L[generic Harvoni]-India
    SVR52 achieved

    Avatar photorohcvfighter
    • Guardian Angel
    • ★★★★★
    @rohcvfighter

    In my case, I was lucky to have support and obtain answers from my local doctor, however the main issues were related to the fact that the medical staff was very busy, the available treatment was inefficient therefore there were/are many patients worries to be managed by the medical staff and last but not least a very conservative medical system that does not have the ability to test or try new approaches. This keeps doctors away from information like Redemption trials.There are a lot of doctors who are ready to blame other doctors colleagues if they try a different approach…. under the false umbrella of patient safety…. It is like in arts: very hard to create a masterpiece of work, but very easy to criticise the work of someone else.
    And yes, in case of dr. Freeman, apart from his medical knowledge&experience it is to admire his “out of the box” and “out from the comfort zone” way of thinking and acting. A big thanks you for this.

    Regards,
    RHF


    In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
    HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
    By sharing this Youtube video you might save someone’s life!
    My TX: HEPCVIR-L[generic Harvoni]-India
    SVR52 achieved

    in reply to: World Hepatitis Alliance. #20655
    Avatar photorohcvfighter
    • Guardian Angel
    • ★★★★★
    @rohcvfighter

    And also heartbreaking to see who gives them money….
    Does a pharmaceutical company having a GIL…D name sound familiar? :(
    http://www.worldhepatitisalliance.org/en/node/671


    In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
    HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
    By sharing this Youtube video you might save someone’s life!
    My TX: HEPCVIR-L[generic Harvoni]-India
    SVR52 achieved

Viewing 15 posts - 241 through 255 (of 338 total)