And again, it is the time for a

Hello Everybody,

So glad to find this thread .

I am thinking to have the vaccination for hep A and B in order to reduce the possible future risks (I am thinking that hep B can be taken without knowing from where, as it happened to me with hep C….

Is there any known recommendation at which time after the DAA treatment these vaccines can be taken?

Cheers,
RHF

I think my previous post was also confusing…. sorry about that.

The main idea I intended to say was that people need to understand in simple words why Gilead is or is not entitled to hold the patent for Sofosbuvir.
(The patent opposition with scientific arguments may be found here: http://www.medecinsdumonde.org/sites/default/files/M%C3%A9moire-dopposition-MdM-en.pdf )
I look forward for the outcomes of the hearings from next week,

RHF

Hi Vororo,

Thank you, sounds challenging, I look forward for the outcomes.

Do I understand correctly that there will be a public hearing? Meaning anyone is allowed to attend the session?
Cheers,
RHF

Hi GF and LG,
What you are saying are aspects that have been noticed/observed or felt in the real world. Of course, there might be cases when what you said can perhaps be expressed with other words, but that’s more a matter of talking.

Looking at the politicians, they seem to avoid assuming responsibility for sensitive issues (like the case of patent law vs right to health) by claiming that they represent the majority of the people and as long as people were not asking in large number for the access to generic drugs… they can easily claim their hands are tight and cannot do much about it.

The political view will change dramatically if only people would start to talk more and more about the HCV generic drugs…..

BR

RHF

When talking about the treatment of hepatitis, many people seem to lock their brain in the classic “Chicken or the Egg” philosophical question, i.e. prevent&diagnose first or treatment first … Unfortunately this “lock” means delaying the treatment which on its turn lead to people getting sicker and sicker.
Big Pharma seems to use this approach, placing the priorities alternatively:
– setting as high priority the actions of prevention and diagnosis in order to gather as many patients possible.
– then setting as high priority the treatment pretending to provide big discounts for their drugs, which in any case remain very expensive.
This is my understanding when reading the strategy to eliminate hepatitis by 2030…there is too much “talk” and less “facts” and I see this as a simple effect of the “Chicken and the Egg” debate.

As (former) patient, I say this is a completely wrong approach.
We should better think on the spinning wheel approach:
– for sure, diagnosing the patients gives a certain impulse making the wheel spin faster
– for sure, prevention has the same effect on the spinning wheel,
-however treating peoppe with effective drugs (DAAs) gives by far a real boost that makes the wheel spin much faster. If we add generic HCV drugs into equation, we have a turbocharger boost.

The more the healthcare system talks about the efforts being made to slightly increase the number of treated people while continuing to have waiting lists, the more discouragement and lack of interest towards HCV will exist among patients. Not to mention the stigma which will continue to exist.

By contrast, the more people will know that the treatment is really affordable and effective, the more people will seek to get checked, diagnosed and treated. So easy access to treatment will boost not only the treatment rate, but also the rates of getting diagnosed.
In the current political context, only the generic drugs is offering the promise of affordable treatment. So sad that by compare with the number of worldwide patients (~200 millions) only a few know about the path of generics.

BR
RHF

CONGRATULATIONS ARIEL !!!!

So nice to see this wonderful result!

Shall I add that you inspired many of us from here ? Thank you very much ! (Your optimism is so contagious !!!! DO NOT ATTEMPT TO TREAT IT !!! )

Cheers,
RHF

Hi LG,

thank you for sharing this information.
In another thread on this forum I was specifying that the pressure is being wrongly made towards the government or authorities to allocate more money in order to treat more people. So the outcome from the news you posted here was somehow predictable, even though personally I find it very sad.

But perhaps with such an outcome, people and the advocacy groups will realize that the solution stays in the generic HCV drugs. So what they should do is to put on the table the generics. Oh, and to get rid of the ghosts related to generic drugs.

GENERIC DRUGS EXIST, ARE REAL, MUCH CHEAPER AND EFFECTIVE!!!!
So instead of wasting time wondering if the HCV generic drugs really work, people should better focus their minds on how to provide the effective generic drugs to the patients.

The issue of treating patients in mass would be much faster solved if people would start sharing more fiercely the news about the generic drugs.

I end here repeating the message from my signature:

HCV GENERIC DRUGS WORK. SHARE THIS KNOWLEDGE TO SAVE SOMEONE’S LIFE!
Cheers,
RHF