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  • 8 February 2016 at 8:47 am in reply to: Anticipation and Thanks #11462
    Rowan
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    @rowan

    Well it’s time for another update.

    First blood results had a small viral load under 30 copies down from 1,900.000! ALTs and ASTs still under 300. I had another a fortnight ago and VL is undetectable (yay!) ALTs and ASTs in the mid 200s which my Dr says is no issue as they are finding that in some they will go down when treatment finishes.

    Coincident with these rather pleasing numbers is that my anaemic feeling (only a feeling not anaemia) is most likely caused by the RBV has abated and I am gaining a small amount of muscle form and subcutaneous fat. 2 weeks to go to completion and the side effects are passing.

    These are wonderful drugs and I cannot think of anything better to spend money on!

    All of us on these medicines have provided a great service to our supervising doctors that are now armed with a wealth of experiences and knowledge to help the next wave (flood?) of people taking them on the PBS.

    Thanks all at FixHepC and best wishes to those on treatment.

    31 December 2015 at 9:09 am in reply to: Anticipation and Thanks #7611
    Rowan
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    @rowan

    Dr J-F

    Many thanks indeed! Unfortunately I was borderline cirrhotic with a Fibroscan of 12 (Up from 6 in 12 months!). so I “had” to have it. Amazing how much we have learned in such a short time!

    I have days of few side-effects and the clarity or “fog-lifting” as some have described it teases me so. I have glimpses of what it will be like post treatment and I know I will feel 20 something again!

    Thanks for all that you do …

    regards

    31 December 2015 at 9:02 am in reply to: Anticipation and Thanks #7610
    Rowan
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    @rowan

    Thanks LG!

    I had RBV as the primary suspect and agree with what you say. I will try fatty stuff with RBV… Yoghurt helped this morning. The other drugs are just marvellous 21st century stuff. if anyone is in trepidation of them because of my post… don’t be. The worst side effect I have is insomnia and a little THC (cannabis) works wonders.

    Cheers, Rowan

    30 December 2015 at 10:53 am in reply to: Anticipation and Thanks #7523
    Rowan
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    @rowan

    Hi Everyone.

    It has been about 4 weeks plus on SOF/DAC/RBV. Initially I felt invigorated slightly and was coping well with medications. But since day 4 to now (day 34) it has been a roller-coaster of slight nausea, insomnia, lethargy, some aches and feeling OK for a while. Some nights I have an elevated temperature, lymph nodes enlarged and restless legs. (Rinse and repeat!)

    Bloods were done yesterday and am waiting for results on 25th. Hoping that it is just side effects but have to admit feeling deflated when things didn’t rapidly improve on day 17 as some have reported. I guess we are all different and each journey is unique.

    Good luck to all and thanks again to FixHepC for making it possible.

    (G1A, previously treated, ALT/AST in the 200s at start, 73 Kgs, VLoad unknown)

    28 October 2015 at 3:42 am in reply to: Anticipation and Thanks #2908
    Rowan
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    Ann Bee

    I am a Geno 1A.

    I see from yr sig that treatment is going well. good luck.

    Cheers, Rowan

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