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Dear Irma88,
The doctor I am seeing at The John Hunter is Dr R Pickels. I am the 1st to do the generics through his clinic. I must say I didn’t give him much room in that my approach was, “this is what I am going to do ( generic’s) what do you think, these are the meds I am thinking of ordering, what do you thnk of that. His reply was he just recently talked someone out of this & waiting for the pbs. But looking at my situation you don’t realy have the time to wait. He then wrote the script for sof & dac, I asked about riba, his reply was lets see & maybe but not straight away.
Since then he has been proven correct about the riba according to the lastest study, & he now has a few people in the pipeline to do generics.
Basically I think I was lucky, my fibroscan was high enough to be eligible for compassionate access to Dac & I got a good open minded doctor willing to have a go at the early stages of all this. Now that was not that long ago say 3 months but it shows you how fast things are moving.
My advice is to be pro active not pushy ie ” I AM GOING TO DO THIS what do you think” just dont have anything to eat before you go & make sure get a fibroscan then with or without them you can move forward. Regards Angus
Geno 3, 24yrs positive, fibroscan 14.5 f4, elevated lfts, V/L 7000. Started sof/dac 20/11. Tested N/D Viral load after 1 week lfts normal. Will be undertaking minium 16 weeks no riba.
I guess I should add the reason I did the viral load test at 1 week. I had been asked by fixhepc if I would partake in the trial of the sof/dac combo tablets for 7 days before I start the medication I had ( sof from fixhepc & dac from Bmc compassionate access) so I did a viral load at the beginning & end of the week trial of the combo to show it worked.
For interested people I should also add I had absolutely no problem with the liver specialist at the John Hunter Hospital in Newcastle NSW. Not only did he write me the script, he did a fibroscan on the spot to speed things up & then rang me the next day to say hold off on placing my order as he may be able to Supply the dac for free through the scheme, which he did. Absolutely outstanding I think, great guy !
Regards Angus
Geno 3, 24yrs positive, fibroscan 14.5 f4, elevated lfts, V/L 7000. Started sof/dac 20/11. Tested N/D Viral load after 1 week lfts normal. Will be undertaking minium 16 weeks no riba.
Hi crazy 8, thanks for that I started today so will be interesting to see how we both go over the next 6 months. I am doing mine monitored by the local hep specialist. He thinkings for now no Riba but may not stay that way. I have read everything, but these guys know me, my numbers ect & are the experts. Lets keep in touch regards Angus
Geno 3, 24yrs positive, fibroscan 14.5 f4, elevated lfts, V/L 7000. Started sof/dac 20/11. Tested N/D Viral load after 1 week lfts normal. Will be undertaking minium 16 weeks no riba.
Great to hear you are automating your system. It must have been really hard to build systems at the same time as have such a high level off demand & inquiry. Thatnkyou for update. Regards Angus
Geno 3, 24yrs positive, fibroscan 14.5 f4, elevated lfts, V/L 7000. Started sof/dac 20/11. Tested N/D Viral load after 1 week lfts normal. Will be undertaking minium 16 weeks no riba.
I am an ardent supporter of generics & am awaiting delivery of mine. But fail to understand why a story a year old which does not represent the current situation is posted as ” recent news & a reason not to wait” I do not say we are in a better situation. But for a minute thought that the PBSAC had changed their mind & unrecommended the DAA to the Goverment. Not everyone is as lucky as us & can afford these generics & are hoping like hell their is good news in December ( I dont think so) but this is misleading untill looked at closely. Regards Angus
Geno 3, 24yrs positive, fibroscan 14.5 f4, elevated lfts, V/L 7000. Started sof/dac 20/11. Tested N/D Viral load after 1 week lfts normal. Will be undertaking minium 16 weeks no riba.
I am an ardent supporter of generics & am awaiting delivery of mine. But fail to understand why a story a year old which does not represent the current situation is posted as ” recent news & a reason not to wait” I do not say we are in a better situation. But for a minute thought that the PBSAC had changed their mind & unrecommended the DAA to the Goverment. Not everyone is as lucky as us & can afford these generics & are hoping like hell their is good news in December ( I dont think so) but this is misleading untill looked at closely. Regards Angus
Geno 3, 24yrs positive, fibroscan 14.5 f4, elevated lfts, V/L 7000. Started sof/dac 20/11. Tested N/D Viral load after 1 week lfts normal. Will be undertaking minium 16 weeks no riba.
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