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  • 12 March 2016 at 6:06 pm in reply to: UK NHS – Giving out of date meds ! #13722
    Avatar photoSirchinenge
    • Guardian Angel
    • ★★★★★
    @sirchinenge

    Hi Gaj, I was looking at your stats you’re a F4 do you have a decompressed liver whats it being like
    for you pre treatment.

    Sob/Dac from Oct 29 2015
    Geno 1b
    Fiberscan 9.9 Pre treatment
    Fiberscan 7.4 week 10
    VL 1.3 million pre treatment
    Week 2.5 VL 96
    Week 5.5 VL 17
    Week 10 VL UD
    SVR 3 UD
    SVR 16 UD
    Cured:
    All liver functions in normal ranges.

    12 March 2016 at 5:24 pm in reply to: UK NHS – Giving out of date meds ! #13718
    Avatar photoSirchinenge
    • Guardian Angel
    • ★★★★★
    @sirchinenge

    How long is that drug on the market it seems strange its out of date so early considering they
    only started using these drugs recently I would think they can send them back and get new stock.

    I agree with everyone this is totally miserable for the patient in question am pretty confident they
    will sort him out with new in date drugs. At least I bloody hope they do.

    Sob/Dac from Oct 29 2015
    Geno 1b
    Fiberscan 9.9 Pre treatment
    Fiberscan 7.4 week 10
    VL 1.3 million pre treatment
    Week 2.5 VL 96
    Week 5.5 VL 17
    Week 10 VL UD
    SVR 3 UD
    SVR 16 UD
    Cured:
    All liver functions in normal ranges.

    11 March 2016 at 9:54 pm in reply to: Blood Work Not So Good #13672
    Avatar photoSirchinenge
    • Guardian Angel
    • ★★★★★
    @sirchinenge

    Hi Jo have you retested your Viral Load since week 4 I wonder if you are in fact
    Undetected now.

    I’m just curious…..hope all’s well other wise.

    Sob/Dac from Oct 29 2015
    Geno 1b
    Fiberscan 9.9 Pre treatment
    Fiberscan 7.4 week 10
    VL 1.3 million pre treatment
    Week 2.5 VL 96
    Week 5.5 VL 17
    Week 10 VL UD
    SVR 3 UD
    SVR 16 UD
    Cured:
    All liver functions in normal ranges.

    11 March 2016 at 6:03 pm in reply to: Lynne’s SVR4 results are in!! #13667
    Avatar photoSirchinenge
    • Guardian Angel
    • ★★★★★
    @sirchinenge

    Excellent news Lynn!

    Sob/Dac from Oct 29 2015
    Geno 1b
    Fiberscan 9.9 Pre treatment
    Fiberscan 7.4 week 10
    VL 1.3 million pre treatment
    Week 2.5 VL 96
    Week 5.5 VL 17
    Week 10 VL UD
    SVR 3 UD
    SVR 16 UD
    Cured:
    All liver functions in normal ranges.

    11 March 2016 at 12:31 am in reply to: VA Approves Tx for All Vets! #13640
    Avatar photoSirchinenge
    • Guardian Angel
    • ★★★★★
    @sirchinenge

    This is what I call awesome news really chuffed too hear so many will now access treatment.

    Mike,am sure all your work bringing too this to the fore has helped…..

    Sob/Dac from Oct 29 2015
    Geno 1b
    Fiberscan 9.9 Pre treatment
    Fiberscan 7.4 week 10
    VL 1.3 million pre treatment
    Week 2.5 VL 96
    Week 5.5 VL 17
    Week 10 VL UD
    SVR 3 UD
    SVR 16 UD
    Cured:
    All liver functions in normal ranges.

    10 March 2016 at 4:36 pm in reply to: Been offered Sof/Riba, should I add daclatasvir? #13621
    Avatar photoSirchinenge
    • Guardian Angel
    • ★★★★★
    @sirchinenge

    The OP has said her treatment is being done on the NHS as such she has no private
    script she can use to purchase generics.

    I think the main issue is if she go’s ahead and buys generics is how you explain to your consultant
    you’ve decided too change one drug for another they may well decide not too offer anything.

    I guess,the starting point is she has the conversation with her consultant explaining Dac is the best
    option and she’s willing to buy it that’s of course if she is willing to buy generics, I think her initial
    question was why the NHS is not offering Dac we have answered that question….its not available
    on the NHS.

    Sob/Dac from Oct 29 2015
    Geno 1b
    Fiberscan 9.9 Pre treatment
    Fiberscan 7.4 week 10
    VL 1.3 million pre treatment
    Week 2.5 VL 96
    Week 5.5 VL 17
    Week 10 VL UD
    SVR 3 UD
    SVR 16 UD
    Cured:
    All liver functions in normal ranges.

    9 March 2016 at 11:50 pm in reply to: Young J the dragon slayer #13582
    Avatar photoSirchinenge
    • Guardian Angel
    • ★★★★★
    @sirchinenge

    Wonderful news!

    Sob/Dac from Oct 29 2015
    Geno 1b
    Fiberscan 9.9 Pre treatment
    Fiberscan 7.4 week 10
    VL 1.3 million pre treatment
    Week 2.5 VL 96
    Week 5.5 VL 17
    Week 10 VL UD
    SVR 3 UD
    SVR 16 UD
    Cured:
    All liver functions in normal ranges.

    9 March 2016 at 11:48 pm in reply to: EOT today! #13581
    Avatar photoSirchinenge
    • Guardian Angel
    • ★★★★★
    @sirchinenge

    Good news followed by even better news hopefully its all plain sailing from here on in:)

    Sob/Dac from Oct 29 2015
    Geno 1b
    Fiberscan 9.9 Pre treatment
    Fiberscan 7.4 week 10
    VL 1.3 million pre treatment
    Week 2.5 VL 96
    Week 5.5 VL 17
    Week 10 VL UD
    SVR 3 UD
    SVR 16 UD
    Cured:
    All liver functions in normal ranges.

    9 March 2016 at 5:33 pm in reply to: Swollen toe #13569
    Avatar photoSirchinenge
    • Guardian Angel
    • ★★★★★
    @sirchinenge

    Hopefully the hospital can answer your questions I wish I could answer sadly am
    not qualified at all too help!

    Lets us know how you get on. Fingers crossed its non related and resolved quickly.

    Sob/Dac from Oct 29 2015
    Geno 1b
    Fiberscan 9.9 Pre treatment
    Fiberscan 7.4 week 10
    VL 1.3 million pre treatment
    Week 2.5 VL 96
    Week 5.5 VL 17
    Week 10 VL UD
    SVR 3 UD
    SVR 16 UD
    Cured:
    All liver functions in normal ranges.

    9 March 2016 at 5:25 pm in reply to: More nausea-inducing news about Gilead’s strategy #13568
    Avatar photoSirchinenge
    • Guardian Angel
    • ★★★★★
    @sirchinenge

    The add campaign is absolutely disgusting and offensive!

    Sob/Dac from Oct 29 2015
    Geno 1b
    Fiberscan 9.9 Pre treatment
    Fiberscan 7.4 week 10
    VL 1.3 million pre treatment
    Week 2.5 VL 96
    Week 5.5 VL 17
    Week 10 VL UD
    SVR 3 UD
    SVR 16 UD
    Cured:
    All liver functions in normal ranges.

    9 March 2016 at 5:22 pm in reply to: Irish Sunday Business Post Article #13567
    Avatar photoSirchinenge
    • Guardian Angel
    • ★★★★★
    @sirchinenge

    The journalist in who wrote this article has written extensively about the price of generics in
    Ireland am linking to another story.

    You can see quite clearly in Ireland we pay way more then the UK for generics its no surprise
    what so ever you’ll see no desire for Hep C generics in Ireland.

    I was right, Ireland treated less then 500 patients since they started DAA treatment,in fact last year they
    had millions left over for treatment instead of lowering the score for everyone this year they’ve lowered
    it for one group of patients-anyone infected via state blood products is being treated regardless of fiber score.

    http://www.broadsheet.ie/2014/07/28/its-e2-65-versus-e71-97-thats-just-extraordinary/

    Sob/Dac from Oct 29 2015
    Geno 1b
    Fiberscan 9.9 Pre treatment
    Fiberscan 7.4 week 10
    VL 1.3 million pre treatment
    Week 2.5 VL 96
    Week 5.5 VL 17
    Week 10 VL UD
    SVR 3 UD
    SVR 16 UD
    Cured:
    All liver functions in normal ranges.

    9 March 2016 at 3:56 pm in reply to: Irish Sunday Business Post Article #13562
    Avatar photoSirchinenge
    • Guardian Angel
    • ★★★★★
    @sirchinenge

    Interesting. The consultant in the article is actually the Dr managing me whilst I
    was in treatment! Shame he won’t advocate at ICORN instead they have restricted
    treatment even further this year.

    Sob/Dac from Oct 29 2015
    Geno 1b
    Fiberscan 9.9 Pre treatment
    Fiberscan 7.4 week 10
    VL 1.3 million pre treatment
    Week 2.5 VL 96
    Week 5.5 VL 17
    Week 10 VL UD
    SVR 3 UD
    SVR 16 UD
    Cured:
    All liver functions in normal ranges.

    7 March 2016 at 3:45 am in reply to: Been offered Sof/Riba, should I add daclatasvir? #13452
    Avatar photoSirchinenge
    • Guardian Angel
    • ★★★★★
    @sirchinenge

    Hi Tgirl, can you clarify a few things.

    Are you being treated by the NHS with the sob/riba option or have you got a script too buy generics?

    The answer too the above will clarify why they wrote a 12 week script.

    If the NHS is funding your treatment they are offering you the cheapest option I don’t know
    Dac is available on the NHS yet it may well not be.

    Sob/Dac from Oct 29 2015
    Geno 1b
    Fiberscan 9.9 Pre treatment
    Fiberscan 7.4 week 10
    VL 1.3 million pre treatment
    Week 2.5 VL 96
    Week 5.5 VL 17
    Week 10 VL UD
    SVR 3 UD
    SVR 16 UD
    Cured:
    All liver functions in normal ranges.

    6 March 2016 at 3:37 am in reply to: Ireland treats only certain patients. #13405
    Avatar photoSirchinenge
    • Guardian Angel
    • ★★★★★
    @sirchinenge

    The article is written in April 2015 they allocated the funds in May 2015 and started treating
    the F4s and above, by Dec 2015 they have treated everyone they knew of.

    Instead of lowering the score too everyone this year they have lowered it to treat any F4
    ( None left) any patients post transplant( Maybe 40 per year) and anyone regardless of
    fiber score if infected via blood from the state if the budget is the same as last year I think
    about 700/1000 patients will be treated this year.

    If your friends happened too be F0/F3 and infected via state blood products they will be
    treated this year budget depending they no longer have too be a 12 or F4.

    Last year they had 36 Million Euro allocated too treat Hep C patients with DAA medications based on the price
    they paid they could have treated about 700 patients. Apparently there was only 400 patients too treat
    instead of starting to treat F3 they stopped treating,period.

    Now, we have a unique situation you’ll have two F0s one will be treated the other won’t its that simple.

    Lastly, out of the 400 treated last year at least 10 have died from liver disease which is very sad.

    Sob/Dac from Oct 29 2015
    Geno 1b
    Fiberscan 9.9 Pre treatment
    Fiberscan 7.4 week 10
    VL 1.3 million pre treatment
    Week 2.5 VL 96
    Week 5.5 VL 17
    Week 10 VL UD
    SVR 3 UD
    SVR 16 UD
    Cured:
    All liver functions in normal ranges.

    6 March 2016 at 12:06 am in reply to: Ireland treats only certain patients. #13395
    Avatar photoSirchinenge
    • Guardian Angel
    • ★★★★★
    @sirchinenge

    Ariel, the article you reference is before treatment rolled out the policy I am mentioning is
    for this year 2016.

    They treated all F4s they knew of in 2015 and asked ICORN too lower the score this year the Dr in that
    article is my consultant he asked that all F3 be allowed access treatment this year.

    This year, they have lowered the score for one group of patients if you’re F0 and infected via state blood products
    you’ll be treated if you’re f0 and a IV drug user you won’t be treated till every state infected patient has being
    seen and treated.

    In Ireland, the average compensation is about 250K Euros like I said all ready they have benefits no-one else is
    entitled too, I have no problems with them being compensated its the right thing, I do take issue with ICORN
    deciding one group of infected patients should be treated over another which is now the case.

    Sob/Dac from Oct 29 2015
    Geno 1b
    Fiberscan 9.9 Pre treatment
    Fiberscan 7.4 week 10
    VL 1.3 million pre treatment
    Week 2.5 VL 96
    Week 5.5 VL 17
    Week 10 VL UD
    SVR 3 UD
    SVR 16 UD
    Cured:
    All liver functions in normal ranges.

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Viewing 15 posts - 31 through 45 (of 260 total)
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