tweakmax - FixHepC - Page 2 of 14

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18 September 2016 at 11:53 am in reply to: My twinvir story #23099
tweakmax
- Topics: 18
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- Guardian Angel
@tweakmax
I gave the fixhepc translated Romanian article URL to him. Pmed u.
17 September 2016 at 5:37 pm in reply to: My twinvir story #23079
tweakmax
- Topics: 18
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- Guardian Angel
@tweakmax
He told me a lot of Romanians are type 1b hence using twinvir
17 September 2016 at 5:36 pm in reply to: My twinvir story #23078
tweakmax
- Topics: 18
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- Total: 256
- Guardian Angel
@tweakmax
A Romanian guy named Vlad rusu told me. Are u on the hep c without borders fb group? There are quite a number of Romanian friends there.
16 September 2016 at 4:39 pm in reply to: MonkMed #23034
tweakmax
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- Guardian Angel
@tweakmax
cdmazoff wrote:

Hi CD here from HepCBC. Thanks to all for sharing your stories. We are getting a lot of requests from people who want to import treatment, and our biggest problem (here in BC and I suppose the rest of Canada) is getting a physician to oversee the treatment (bloodwork, monitoring for complications –for example, I am cured now!!!! —Harvoni–but my 4th clinical trial was with Zepatier and it triggered atrial fibrillation and I was pulled off although it was working against the hep). So, how does a person who successfully imports the drugs into Canada proceed via getting blood work done? Here in BC everything is done through Pharmacare… or, is there a private pay option?

Anyways, a roadmap that we can share with people who ask us what to do would really be helpful

All the best

CD Mazoff
http://www.hepcbc.ca

There is one guy Michael Hillman on the fb group treatment without borders who managed to get his insurance to pay for his generics. He is in Alberta canada
16 September 2016 at 7:55 am in reply to: NHS funding cuts forcing people to buy medicine through Facebook #23013
tweakmax
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- Guardian Angel
@tweakmax
This article is full of crap

Scaring pple not to get generics

Even my doc says, she won’t earn a cent from medicine, and if i want to source on my own she can still monitor me
15 September 2016 at 10:27 am in reply to: My twinvir story #22987
tweakmax
- Topics: 18
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- Total: 256
- Guardian Angel
@tweakmax
very encouraged to hear the Romanians on fb, 200 of them cleared their G1b with twinvir!
14 September 2016 at 9:22 am in reply to: Incase of Harvoni relapse whats next ? #22947
tweakmax
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- Guardian Angel
@tweakmax
Marilen-Conti-facebook wrote:

RELAPSE after four treatments!
HCV, G1b, F4, Child A-B!
Bad news! Mom has four treatments, the latter is Harvoni and she has relapsed!
First Treatment – 2000 Interferon / Ribavirin
Second Treatment – 2009 Peg Interferon / Ribavirin
Third treatment – 2015 Sovaldi / Ribavirin 24week
Fourth treatment – 2016 Harvoni 24week
Relapse!
Please give me advice what medicine to continue?

Probably velpatasvir and something else
14 September 2016 at 9:21 am in reply to: Incase of Harvoni relapse whats next ? #22946
tweakmax
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- Guardian Angel
@tweakmax
Gaj wrote:

Hi Marilen,

Sorry to hear that your Mother relapsed again. As splitdog says Sofosbuvir/Velpatasvir (Epclusa) + GS-9857 is an option that looks excellent for the future although there may be others available now that would suit genotype 1b.

However, as four treatments have already failed her and noting her cirrhosis status, I would recommend that she seeks further expert advice by making an appointment for an international (Skype) consultation via GP2U Telehealth https://gp2u.com.au where her history and medical records can be reviewed in detail and recommendations made. Dr James Freeman usually has appointments available on Friday’s but other doctors there could assist if those days don’t suit. If you have further questions for GP2U their “contact us” details are here https://gp2u.com.au/contactus

Have u started retreatment GAJ?
14 September 2016 at 9:20 am in reply to: Incase of Harvoni relapse whats next ? #22945
tweakmax
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- Guardian Angel
@tweakmax
edited – duplicate post
14 September 2016 at 9:19 am in reply to: My twinvir story #22944
tweakmax
- Topics: 18
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- Guardian Angel
@tweakmax
thank u one more week to go!
8 September 2016 at 6:13 pm in reply to: My twinvir story #22856
tweakmax
- Topics: 18
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- Guardian Angel
@tweakmax
2 more weeks to svr24!
8 September 2016 at 6:11 pm in reply to: Epclusa is up for PBAC consideration in November #22855
tweakmax
- Topics: 18
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- Guardian Angel
@tweakmax
tats fast!
11 August 2016 at 6:41 pm in reply to: Treatment options for patients who have failed #22098
tweakmax
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- Guardian Angel
@tweakmax
fitz wrote:

Considering that is roughly the price for an entire 12 week course of Sof/Vel (Sofosvel) that’s a tough choice. 12 weeks of medication or a test which may or may not inform ones choice as to which medication to use.

Perhaps this is a simplistic suggestion, or a course of action you have already taken…. If I were in your shoes, I’d be booking an appointment with Dr James to help sort out the dilemma.

Whatever your decision, you now have options and good ones Splitdog.

I think Sof/Velp is good even with presence of RAVs. Probably just need to do the treatment a bit longer.
11 August 2016 at 6:39 pm in reply to: Treatment options for patients who have failed #22097
tweakmax
- Topics: 18
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- Guardian Angel
@tweakmax
splitdog wrote:

Just thought I’d share– I asked about an HCV RNA NS5a resistance test and it is over $900 USD. They said they could do a cash price of $748. This test is specialized, not many labs can do it, and it is not cheap!

Can buy a 12 weeks supply with this $$$
6 August 2016 at 4:41 am in reply to: Options for retreatment #21898
tweakmax
- Topics: 18
- Replies: 238
- Total: 256
- Guardian Angel
@tweakmax
U can use sof+sim+dac! (Possibly with riba also at the start of treatment to hit the virus hard)

Don’t give up!
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