Thanks James. I’m 57 very well and fit and weigh 60kg. My Liver test results this past week were very good surprisingly. I had my bloods a week before I started the Sof/Dac treatment.
The Liver Clinic had a very interesting reaction when I told them I was taking the Generics, but thats another story. They could not, or maybe would not, tell me what dosage of Ribavirin I should be taking. My fibroscan a year ago showed no scarring, though the clinicians suggested I should have a biopsy to make sure. As the only quandary is that my platelettes have been borderline for many years without change. Recent Ultrasound showed I do not have an enlarged spleen.
I stopped taking the Ribovirin that day and am just on Sof/Dac making up my own mind with the results I had at hand. I’m feeling good, a bit manic if anything, maybe it’s just Spring fever.
One of the clinicians was very angry and berated me for being so foolish, irrisponsible etc, etc…but her Senior who was flummoxed at the information about the Generics and the Buyers club called the shot and said they would be very interested to keep on monitoring me.
I go back in 3 weeks, four weeks into the Sof/Dac treatment, it will be very interesting to see my results.
I have been corresponding with Greg Jefferys about visiting Hospital Liver Clinics and their sometimes very negative and naive reaction to patients taking matters into their own hands. Which is somewhat understandable. We must remember they are not the enemy, just unawares of a new groundswell. I’d like to start a new topic about Liver Clinics and share our stories and valuable information that could be beneficial for patients and clinicians.
We ants have numbers on our side!
Cheers, Vicki

Thanks Dr. Freeman. I had a fibroscan about a year ago and don’t have my results at hand but I remember being shown the chart and I was on the very low end about a centimetre in to the left hand side; if that helps. The specialist at the Liver clinic wants me to have a Biopsy, which I’m avoiding. I have read that the fibroscan is a much better indicator of liver scarring??
The Specialist also said that it was hard to tell if I had any cirohsis as some of my blood tests showed I might; recent fatty liver deposits and lowish platelet count. But, some of them that I don’t have scarring. He recommended a the 12 week Sof/Dac course. I have only imported 12 weeks of Sof/Dac – I also received 12 weeks of Ribovirin with the Sof from India.
After reading further blogs and different Pharma trial reports, I leant that people with cirrhosis only have a 68% clearance rate using the Sof/ Dac treatment for 12 weeks. So…I stated taking the Ribovirin two days into the treatment. I’m taking 2 x 200mg capsules twice a day.
I’m not sure if this is even the right dose to add to the Sof/Dac..
I have an appointment at the Liver Clinic tomorrow and hope to clarify the situation. I’m not sure how they will respond and want to treat me because I have imported my own Generic meds. What should I expect and ask. Should I insist on another Fibroscan? Will the result of the scan I had a year ago be sufficient?
I will read over the ESL report you attached too, I have read it before but I’ve got a bit of information overload at the moment and am feeling anxious about my interpretations.
I realise I’ve got my self a bit muddle with all of this and am learning every day. I’m sure it will get sorted. I would really appreciate your opinion before I go to the clinic tomorrow.
Thank you so much for your time and efforts.
Kind Regards, Vicki