Forum Replies Created

Viewing 15 posts - 196 through 210 (of 307 total)
1 2 3 … 13 14 15 … 19 20 21
  • Author
    Posts
  • 21 January 2016 at 1:48 am in reply to: VA in USA urged to invoke emergency powers #9934
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Well, I always like a good debate, and I can accept other peoples point of view, even if I don’t always agree. In the end, if I don’t agree with someone, its because I think I understand the basic facts.

    Concerning today’s treatments for Hepatitis C, the basic facts are that the price charged by Gilead for a life-saving treatment are extortionately high for those that can afford it, and absolutely out of reach for those who cannot. The end result is that hundreds of thousands of people are dying each year and millions more are suffering needlessly. So please don’t anyone try to tell me its a complex problem. Its only the solution that seems complex… But only if you want it to be.

    Dr James has just posted today (20 Jan 2016) a very informative fact-based article on fixHepC BLOG;

    http://fixhepc.com/blog/itemlist/user/1419-marko.html

    Here is another one (02 Dec 2015) about the (fact-based) investigation of Senators Wyden and Grassley (with easy links to the facts of the investigation):

    http://fixhepc.com/blog/item/29-us-lawmakers-allege-gilead-used-revenue-driven-pricing-model-for-hepatitis-c-drugs.html

    Will these basic facts change anyone’s mind? They should!

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    20 January 2016 at 2:16 am in reply to: VA in USA urged to invoke emergency powers #9857
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Dear A.L.,

    If you bought a new top of the range car with all the latest gadgets (speed control, air conditioning, parking assist, econo-boost engine, interior LEDs, the lot) for $50 000, you’d probably be pretty happy with the deal, right?

    Suppose you then learn that the true cost of manufacturing that car (including all R&D and a fair profit margin) was only $1 000?

    How would you feel about that?

    This is how it is today with Gilead’s prices …

    http://fixhepc.com/blog/item/25-the-real-development-cost-of-sofosbuvir.html

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    19 January 2016 at 10:28 pm in reply to: FixHepC – Party Playlist #9846
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Changing gear again… Infected!

    (no joke intended)

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    18 January 2016 at 10:38 pm in reply to: US Moderator announces our drugs are ILLEGAL #9694
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo
    Price wrote:

    Tell her she’s not allowed to visit Australia :lol:

    P

    Hmm, this might take a lot of anonymous posts. First you have to explain that the world is round. Then you have to explain that ‘other countries’ really exist…

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    18 January 2016 at 1:19 am in reply to: FixHepC – Party Playlist #9563
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    For everyone who used to have hepatitis C – its hip to be square…

    https://www.youtube.com/watch?v=LB5YkmjalDg

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    18 January 2016 at 12:22 am in reply to: FixHepC – Party Playlist #9561
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Eric Clapton…

    https://www.youtube.com/watch?v=UThsJeJ7BfU

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    17 January 2016 at 11:05 pm in reply to: psavic started TWINVIR treatment #9552
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Hi kenbasman, psavic,

    There is a conversion chart on relating Kpa numbers (liver stiffness) to F-scores here:

    http://fixhepc.com/getting-treated/how-to-do-it/doctors.html

    In my opinion, Fibroscan only gives a rough indication of the F-score… I had one done, and I’m sure if a different nurse did the test or if it was done on a different day then the Kpa number would probably have been a bit different. But compared to having a biopsy (sample of liver extracted with a terrifying-looking needle) it is non-invasive.

    Little personal story:

    I also had a liver biopsy done. My specialist told be that he normally does it under a general anaesthetic (for the patient not for him ;) ), because apparently it can sometimes be painful. But because I didn’t know better, I turned up at the clinic having had a full breakfast and he refused to give me a general anaesthetic. So he gave me a local anaesthetic instead, and then did the biopsy while I watched (no pain at all). Weird experience!

    In the end, the biopsy showed F0, but the Fibroscan showed F0/F1. Which one was more accurate? Most probably the biopsy. But maybe the sample came from a still-healthy bit of the liver? Or more likely, the fact that I also have a couple of harmless cysts in the liver threw off the fibroscan result a bit. The cysts are just filled with fluid, so they will have a different density from the rest of the liver…

    …

    Probably everyone on the forum will agree that the F-score should only be used as a rough guide for how many weeks of treatment should be followed, and not as a justification for ware-housing people who are infected with a seriously dangerous virus….

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    16 January 2016 at 8:25 pm in reply to: translation of viral load please? #9461
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Dear Teacher.pet,

    1.97E+4 = 1.97 x 10^4 = 1.97 x 10000 = 19700.

    This is low if is before treatment. Still a bit high if you have started treatment.

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    16 January 2016 at 3:54 am in reply to: Hetero … Sof, Sof/Led Combo #9369
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Thanks, Alsdad,

    Obviously, I do not see the weird posts that you see (and maybe have to remove from time to time).

    It is really amazing how constructive most of the posts on this site really are… Thank you for all your efforts to keep it that way.

    Still, I am for knowledge and against censorship, so unless a post clearly breaks the site rules, I hope you and the other mods will let it ride…

    Cheers,

    [now on 2nd beer]

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    16 January 2016 at 2:47 am in reply to: Hetero … Sof, Sof/Led Combo #9351
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    On-line? Well, that would change the world as we know it!

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    16 January 2016 at 2:06 am in reply to: Hetero … Sof, Sof/Led Combo #9343
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Duh, excuse me again guys,

    It seems to me that this site gets a few hundred visitors per day who are not registered, but who are following certain posts with interest…

    … So if one of these visitors suddenly reads a thread that he wants to comment on it, he has to register with the forum in order to make a post, right?

    So does that make him suddenly “pop up” as a sock-puppet?

    Come on guys, please! Do I really have to say it? Don’t you all remember the story of Evil Joy…?

    [Oor Wullie goes for a beer to cool off…]

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    16 January 2016 at 12:49 am in reply to: Hetero … Sof, Sof/Led Combo #9327
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Hey guys, what’s going on here? Have you never heard of shooting the messenger?

    https://en.wikipedia.org/wiki/Shooting_the_messenger

    Well, that’s what I think you just did.

    Do you really think it is *legal* to buy prescription medicines in India without a prescription? I very much doubt it.

    Is it *possible* to buy prescription medicines in India without a prescription? Sure! There is less regulation in India than in many other countries.

    Is it a good idea to buy prescription medicines in India without a prescription? Probably no problem if you are there in person and you know exactly what you want.

    Is it a good idea to buy prescriptions medicines *on-line from India* without a prescription? Now you are starting to take a personal risk…

    If One Million people buy prescription medicines *on-line from India without a prescription* Big Pharma are not going to stand idle…

    If Big Pharma perceive the possibility that One Million people are going to buy “their” prescription medicines on-line from India without a prescription they are not going to stand idle… Now we are heading for a clamp-down at government level. At TRIPS level.

    Please read again the posts from abal. He is only recommending to that people get a prescription (which they should anyway) and not buy on-line without a prescription. What’s wrong with that?


    I totally agree with abal’s advice that FixHepC should not be encouraging people to break the law in his country. FixHepC must remain whiter than white in all countries. FixHepC must stay legal to be able to keep the moral high ground.


    Clearly some of you don’t give a f**k about other countries.
    Clearly some of you don’t trust anyone who doesn’t post their LFT and VL stats here.
    Clearly some of you don’t trust anyone who comes on this site with a “foreign-looking” handle.
    We are all anonymous on this site if we want to be. Why is it now necessary to reveal personal details to be trusted?
    And who the f**k are all you guys anyway? Are you real? Are your stories real?
    And while we’re at it, who the f**k am I anyway? Have I got a secret agenda?
    OK, I have posted more than 100 times here… But maybe I faked all my stats and my story?

    Come on guys, if someone posts something on here that you don’t agree with why not just let it ride. If some one posts something on here that is factually wrong, then correct it. But show the evidence! Me, I don’t think anyone needs to show any evidence that buying prescription drugs in India without a prescription is *illegal*. But I would be very interested to see hard evidence to show that is in fact legal.

    I have said it once before, and I hope I don’t have to say it again. There are people on this site who shoot before they think…

    Think about it!

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    15 January 2016 at 2:35 pm in reply to: Hetero … Sof, Sof/Led Combo #9245
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Thank you abal,

    Here is a recent story (yesterday, 14 January) from The Indian Express about a court action against websites selling schedule H drugs without a prescription.

    http://indianexpress.com/article/cities/mumbai/action-against-nine-websites-selling-schedule-h-drugs/

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    15 January 2016 at 4:15 am in reply to: ‘In which LG seeks Redemption & makes new friends’ #9163
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Me again!

    To continue my rant about NHS Good-Speak, here is a good example:

    A recent news article on the BBC describes how Hepatitis C came to Scotland “through the mass treatment of soldiers in field hospitals across the country during WWII. …”

    http://www.bbc.com/news/uk-scotland-34658098

    OK, fair enough. Hep-C goes back to WW2. But then the article goes on:

    Within Scotland, transmission of the virus began to increase in the 1970s, with different strains being discovered in Glasgow and Edinburgh. … From then until 1991, about 2,500 people were infected with hepatitis C through NHS blood products – mainly those imported from the US – during a contaminated blood scandal described by a Scottish inquiry as “the stuff of nightmares”. Children being treated at Yorkhill Hospital in Glasgow for haemophilia during this time were given plasma products sourced from donors in the US, which were known to be high-risk. As a result, many were infected with HIV and Hepatitis C by the age of five. Lord Penrose launched a six-year inquiry, the conclusions of which were met with cries of ‘whitewash’ from angry victims and their families when it was published in March 2015.

    So much for progress. Maybe we can learn something from all that… But the thing that really bothers me is how the authors of the latest study now want to leap into action:

    “Lead scientist of the University of Glasgow study, Dr Carol McWilliam Leitch, said: “HCV poses a significant public health challenge in Scotland as well as globally. There is currently no vaccine against the virus and the recently developed antiviral drugs are not only extremely costly, but resistant strains have already emerged. Pinpointing regions of Scotland driving HCV spread will allow us to more effectively target treatments, monitor their effect and track resistant strains. These measures are essential if we are to combat the virus. We now intend to focus our attention on HCV spread in other Scottish regions and to extend the study across the UK.”

    OK, Dr Carol McWilliam Leitch works for the University of Glasgow, and not the NHS. But I ask you!!??

    “Pinpoint regions of Scotland driving HCV spread…”??? “Track strains…”??? “These measures are essential to combat the virus…”??? “”Focus on HVC spread to other regions…” Extend the study across the UK???

    I ask you again! Why is there no mention of actually treating anyone in this article??

    WTF!!!

    I’m flying to Australia! No, wait. I already did!

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    15 January 2016 at 2:27 am in reply to: ‘In which LG seeks Redemption & makes new friends’ #9150
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Tell me about it! Along with all those enormously expensive conferences and meetings that a large variety of teams, charities, medical people, think-tanks, etc etc and business types hold and then make some sort of statement that means absolutely nothing to us, the patients.

    Right. I just spent the last two hours watching the presentations of those guys at the Paris Hepatitis Conference. They are all obviously well-meaning people. and they have devoted their careers to trying to treat liver disease. And no doubt well-paid careers, I must say (did you see the number of suits in the audience, and the number of declarations of interest in the slides?).

    And all those good Drs are all fully aware of cost of Gilead’s treatment. But nobody seems ready to really talk about it head-on. It is as if COST is a four-letter word to those guys, even the most well-meaning. The brave ones mentioned the C-word a few times, but only in passing between slides. Hey! I said the C-word once but I think I got away with it….

    … Don’t laugh, you stupid patients, we’re trying to help you! Will you please stop mentioning the COST!

    https://www.youtube.com/watch?v=yfl6Lu3xQW0

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

  • Author
    Posts
Viewing 15 posts - 196 through 210 (of 307 total)
1 2 3 … 13 14 15 … 19 20 21