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You’re welcome. There are several “whois” services. Just type “whois” in Google (without the quotes).
Its always a good idea to check out a web site with one of these services before sending any money to an on-line retailer or posting anything personal. But its not foolproof. Quite a few on-line retailers hide behind an anonymous hosting service and all you will see is something like nobody@nowhere.com. Still ICANN (https://whois.icann.org/) is the central registry of all internet domain names.
Any legitimate company or organisation should have nothing to hide, and its whois record should show a real postal address and contact name.
A good example is https://whois.icann.org/en/lookup?name=fixhepc.com
Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).Hi,
I took a quick look at the delphi site… It seems to have been going for a long time. I suppose the moderator you are talking about is “Joy to You”? She has been a member since 1999, and is obviously quite used to waiting for a long time. About 60 000 out of the 360 000 posts are from her. So it very much looks like she is running a little kingdom of waiters.
But unless I am mistaken it is not a high volume site, with only a handful of visits / posts per day? And mostly it seems to be a place to swap kind messages of hope and support. Let’s not forget that some people need that kind of thing. So I would recommend we should not be too critical of this site. Let’s just hope that anyone who lands there has the good sense to keep moving if they are looking for real information or how to get a treatment.
I suspect that many more people are visiting sites like http://www.hepchope.com/ which is an official on-line marketing arm of Gilead (https://whois.icann.org/en/lookup?name=www.hepchope.com).
The above site clearly belongs to Gilead…. What bothers me more are certain “Hep-C information” web sits that give some kind of “LLC” as owner. So clearly they are commercial sites, but who is paying for them?
Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).Wow! Skip the report. Just go straight to the clip of Jane Kibble…
Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).Totally agree, dt. It will take time, but we must start now on multiple tracks. As James said: nobody left behind!
Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).Thanks Paul, Sir. Good points. The idea is not to do anything suspicious. Just to do a legal experiment. The aim was only to avoid risking problems or delays with customs on what should be a perfectly legitimate shipment.
If it has to be done, it has to be done right.
On the other hand, if anyone already has experience of importing Sof+Dac/Led to France, Spain, Italy, or else-where. please say so!
Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).Ok, let’s hope that sofosbuvir isn’t flammable
Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).Hi Mike,
Sending a few test packages seems like a really good idea for people in certain countries. I have some friends in France, Spain and Italy who could help.
I am thinking along the lines of asking someone to just send baby formula or similar (so no real risk for anyone involved), but clearly marked as Sofosbuvir + Daclatasvir in the customs declaration.
Any suggestions on practicalities would be welcome.
I will follow up in PMs.
Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).Hi dt – you previously mentioned “tipping points”. I do believe we are heading towards one…
Yeah, of course national health services or insurance companies should be paying for our treatments, but thanks to the extortionate price charged by Gilead they obviously have to prioritise who they treat. Imagine the headlines stink if liver cancer or cirrhosis patients went untreated while a good treatment exists and is available (well, don’t even imagine it – it is happening now in Australia!).
I totally agree with all the cost-saving arguments about getting insurance companies to pay for health tourism, but they will never do it.
Apart from embarrassing the heck out of said health services and insurance companies, we just have to keep pressing on with legal alternative solutions.
Of course, fixHepC cannot do anything illegal. So…
* Find a good doctor in Australia or India or wherever who will write a prescription
* Find a friend in Bangladesh or India or Australia who can receive the prescribed meds legally. Get them to post it onwards to you or your friend in need.
* Christmas is approaching! Lots of little parcels should be flying around the world!
* Write to CBS or the BBC or Al Jazeera or any other news agency and tell them the story!
That will be your tipping point!
(ps. from now on, I think I am going to write “thanks to the extortionate price charged by Gilead” in every one of my posts)
Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).Well, mail order should be ideally suited for HepC treatment. Already this is not a problem for the USA, UK, NZ…
The only problem at the moment is the price. Very few people would want to risk having a shipment worth $1000 confiscated. But if it was reliably available for say $100 per month (or whatever is your cost/risk threshold), just order it on-line. For other countries, who cares if one or two packages get stopped? Customs services can’t check every package.
Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).Here is some number-crunching for the UK, but it is not intended is a criticism of the UK’s NHS. As before, this kind of calculation is only necessary because of Gilead’s price-gouging.
And I’d just like to add it’s nothing personal. I am sure that John C Martin and the rest of his team are really nice folks if you know them personally. But for the first time in my life I find there is a bunch of people in this world who I wish will rot in hell.
So anyway, here goes…
…I am still trying to get my head around the number of people with Hep-C who are actually getting treated with the new DAAs from Gilead, or who have any chance of getting treated soon through their national health services. We all now know that Gilead are guilty of price-gouging on a global scale. But what is the scale of the problem in human terms?
I have already posted some number-crunching on this, but I suspect I am still over-estimating the percentages Hep-C victims who are actually getting treated. Since I’m from the UK, let’s start again from there.
In June 2015, NHS England announced a special budget of £190 Million for antivirals for Hep-C
https://www.england.nhs.uk/2015/06/10/patients-hep-c/
At around £50 000 per treatment, this will pay for about 3800 treatments. The web site announces “Thousands more patients to be cured of hepatitis C”, which is very positive…
In Scotland, the Scottish NHS are paying Gilead £22 Million for Harvoni.
http://www.publiccontractsscotland.gov.uk/search/show/search_view.aspx?ID=JUL214258#
This is estimated to treat about 501 people (costing about £44 000 per head):
and the headline is “hundreds will benefit as Hepatitis C ‘cure’ is approved for use on the NHS in Scotland”. Since population of Scotland is about 5 Million, and in England it is about 53 Million, this is in fact a one-nil win on spending for the Scottish Team (but only after extra time to do the math). Again, quite positive…
So lets put the two numbers together: 3800 + 500 = 4300 UK citizens likely to get treated in the next year. From the numbers from hepcoalition.org (see my previous post http://fixhepc.com/forum/media-news/396-worser-and-worser-should-be-a-scandal.html?start=6), the UK has 659 032 infected people. So the actual rate of treatment in the UK is more like 4300 / 659 032 = 0.65 % of people in the UK with the virus (which is half of my previous estimate for the non-USA “developed” world).
Now it is hard to say exactly how many people in the UK are seriously ill or dying as a result of end-stage liver disease caused by Hep-C. Still, according to some figures from the British Liver Trust, 16 000 people in the UK died from liver disease, of which only about 4 500 (in 2007) were alcohol-related. OK, not all of the rest were due to Hep-C. But the further down the page: “The number of people with HCV-related cirrhosis is expected to more than double to 8,280 by 2015”.
http://www.britishlivertrust.org.uk/about-us/media-centre/facts-about-liver-disease/
So the point this post is to highlight the fact that the UK is currently treating about 4 000 Hep-C patients with life-threatening cirrhosis, while the number of new patients arriving at this level of severity is over 8 000 per year… Do the remaining math for yourself!
Conclusion #1. Despite best efforts, the UK is going no-where fast on fixing Hepatitis C.
Conclusion #2. In the UK, only people who are almost dying of Hep-C are getting treatment.
Conclusion #3. In terms of people: 659 032 – 4 300 = 655 000 (approx). The real UK headline should be: over half a Million people in the UK are NOT getting treated for hepatitis C thanks to Gilead price gouging.
Conclusion #5. If you are F0, F1, or F2, and your doctor tells you to wait, forget it. At current prices and current treatment rates, the queue in front of you is getting longer. As far as getting treatment through the NHS is concerned, you are “F-ed”.
Conclusion #6. If you have Hepatitis C, and if you can afford it, don’t wait! Get onto http://fixhepc.com now and get yourself treated now!
Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).Mike, Just in case anyone lands here without having seen your previous posts, it could be worth emphasising that the “Hep Forum” on Hepmag.com is a completely separate entity to the Forum here on fixHepC.com.
http://fixhepc.com/forum/welcome/368-this-forum-is-censored-only-for-spam.html#3732
Cheers,
(… just saw your edits of 10 mins ago – thanks!).
Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).Well, it’s great that Zion Yisrael has got his treatment.
Of course, fixHepC is welcome to use my donation in any other way it chooses.
Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).Great Idea! I’m in!
I just wired $500 USD to fixHepC for Zion Yisrael.
Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).Thanks, khilde,
Just read the “full comments” exchange on your post. I gotta say, y’all got some real tough-talking red-necks in the US!
You have my full respect for trying to argue some kind of basic humanity back into guys like your “pharma guy”, who comes across (only slightly) as a more articulate version of Martin Shkreli (he of the soon-to-go-belly-up Turing Pharmaceuticals fame).
It would be very funny (not) if “pharma guy” does indeed turn out to be a former employee of Gilead. But certainly worth forwarding all details directly to the Hilary Clinton camp if you every manage to make the link concrete.
Well, shit happens. And sometimes even good shit might happen.
We live in hope.
Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).Yeah, let’s hope for a Class Action. Or many. It seems to be the only way to straighten out the big corporations…
Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3). -
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