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  • 21 March 2016 at 6:44 am in reply to: Ariel takes the Plunge #14306
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Great to hear you’re still UND, Ariel!

    I’m not a beach person (OK, maybe in winter lol) but those are awesome pics. Thanks for sharing your awesome part of the planet :)

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    21 March 2016 at 4:55 am in reply to: Afraid to take the meds due to severe anxiety #14305
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Great that you are doing better Hope :)

    (and my apologies for not tracking down your thread sooner, I’ve been trying to catch up here and evidently missed you)

    I can vouch for the fact that my lifelong anxiety/depression issues (which Hep can only have exacerbated!) have been lessened noticeably since I’ve been on tx…and I’m sure you will feel it lift in time too. For your worrying thoughts, I can relate its easy to get into ruminating about all the worst possible outcomes – been there and done that! I can really recommend looking into CBT and mindfulness; it will help to separate yourself from your thoughts and see that that is all they are – and more importantly you don’t have to believe every one/take them onboard if they aren’t helping you. Just a suggestion anyway :)

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    21 March 2016 at 3:13 am in reply to: PBS Pricing – Take a deep breath… #14299
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk
    Ariel wrote:

    I’m just making an observation about the major hospitals.
    Not emotionally blaming or emotional anything
    I’m not wired that way
    Zhuk I got my script from Sydney I have flown up a few times to see a guy who then was kind enough om receipt of my phone call after the Dec 1 knockback to post a script down to me here.
    Re my two friends they’re in Adelaide
    It’s their reasons privately that they choose to wait. I’m hoping like many people around the country that the roll out gets rolling just for these type of patients who maybe aren’t as empowered or actually physically able and are psychologically hurt to get the DAAs through their clinics
    I don’t have anything else to offer this debate
    I lobbied incessantly for the past almost three years and said to the pollies and drug companies.
    Let me know what the Sydney vibe is Zhuk just out of interest
    Ty
    Ariel

    No probs Ariel, will do :)

    I know that RPA had had reasonably (as far as public hospitals go) extensive experience with patients presenting with their own generics and also clinical trial management, so I’d like to think that they might be proactive with getting the PBS meds out there. Stay tuned.

    EOT bloods on Thursday, then a week to wait…its going to be long week too I think lol

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    20 March 2016 at 12:04 am in reply to: isaing4 Twinvir story #14214
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Fantastic result, isaing…onward to SVR from here :)

    We will almost be tag-teaming to EOT heh (mine on March 24) Fingers crossed for you!

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    19 March 2016 at 11:43 pm in reply to: ‘In which LG seeks Redemption & makes new friends’ #14213
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Damn LG – I’m not complaining about Aust Post again anytime soon :p Wrong address, egad! AP successfully made a trek up many stairs (out of sight of the road, something which has confounded generations of meter-readers lol) to deliver my meds – and all on a day where it was about 35*C so they weren’t left cooking in the heat somewhere lol

    Great to hear you finally have them…looking forward to your UND now. All the best :)

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    19 March 2016 at 11:30 pm in reply to: Beaches Treatment – Harvoni (Aus PBS) #14211
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Great to hear (and see it!), beaches – all the best for your treatment :)

    And yes you won’t get much more than tiredness, these really are like miracle meds, considering what a feat they have to accomplish! You will be fine.

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    19 March 2016 at 11:24 pm in reply to: PBS Pricing – Take a deep breath… #14210
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Its an interesting question, Ariel. I intend to find out how the situation stands at my clinic when I go in for my Marcg 24 EOT test results, week after next…being one of Sydney’s major hospitals should be a good indicator, if they’re not prescribing yet.

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    18 March 2016 at 7:01 am in reply to: EOT Viral Load result #14065
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Oh yeah! Awesome news Tina!

    So stoked (and relieved) for you, after all your anxious waiting :cheer:

    #woohoo!

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    17 March 2016 at 6:43 am in reply to: VA Approves Tx for All Vets! #13983
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Considering the altogether worrying political news coming out of the US lately, you may well be right Mike :blink:

    You and Price and others here have done your utmost to get the word on generics out to those who need to know; if only sections of the Govt could extricate themselves from under the yoke of Big Pharma. Wishing thinking, I know.

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    17 March 2016 at 6:16 am in reply to: Good news at 8 weeks in – UND! #13976
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Great news Debs!

    Its a great relief huh, and a good sign for the future :)

    Congrats to you too split! :P

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    17 March 2016 at 6:05 am in reply to: Generics Late Breaker Accepted for EASL in April #13973
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    EOT 7 days and counting

    But alas, that puts me outside the April 16 deadline for furnishing SVR4….damn :(

    If i’d known I would not have held onto the meds for a whole month before starting /facepalm lol

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    17 March 2016 at 5:42 am in reply to: PBS Pricing – Take a deep breath… #13968
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Thanks Chester :)

    Yeah I don’t imagine my liver clinic would be too keen either, not when there must be a bit of a queue stacking up by now lol

    I guess its a waiting game with SVR in any case huh. I’m not sure what avenues there would be for retreatment under certain circumstances; as Dr James says it might be best just to wait for future meds to become available if you are are unlucky enough to relapse, and in a clinical position to be able to do so.

    http://fixhepc.com/forum/retreatment-corner/764-managing-patients-after-daa-treatment-failure.html

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    16 March 2016 at 5:00 pm in reply to: PBS Pricing – Take a deep breath… #13931
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Sorry I’m a bit late here FF, so stoked for you that you got the PBS meds and have started them now – outstanding! :)

    ”Lynne-Francis-facebook” wrote:

    Hi all I just have a general question. If (someone’s treatment failed, can they still go through Dr Freeman to get another course of treatment at the PBS prices, I watched his interview on the FB page and got the impression that yes, patients could go through GP2U and they would organise a clearance from a specialist to get the meds. Just curious more than anything :)

    A question I’ve been pondering too Lynne, in ‘worst-case-scenario’ mode. Surely the Govt’s priority would be to treat those who have not yet been prescribed DAA’s? I can’t see how those who might be needing retreatment would get ahead in that queue (so tto speak) Added to the fact that doing so without finding out if anyone has has unfavourable genetic markers would be kind of a waste of Govt funds – an expensive test they are unlikely to roll out I would think. Maybe I’m missing something here, I dunno :huh:

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    16 March 2016 at 4:39 pm in reply to: HARVONI FATIGUE #13930
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk
    Ariel wrote:

    kenbasman wrote:

    Ooops Zhuk, i see you are F0. I doubt my comment applies to you.

    I have a low Kpa too Ken and only had twinges early on
    Interesting point to note, I surf and I always felt a swelling in my upper abdomen when lying down to paddle and just thought it was the way I was made but NO!! It’s gone. It went in the first three weeks accompanied at night with a ton of sweating which I blogged on my thread I think.
    So yes you probably are right because I don’t have liver pain anymore and that upper tummy is flat there’s no strange feeling of a one sidedness anymore
    I noticed it when it went away I hadn’t really taken it in as a big deal like I said I thought it was just how my body was made!
    Bit off topic from the fatigue question but interesting issue re liver twinges you raised thought I would pop my two bobs worth in as an F0 type of person
    Ariel[/quote]

    Thanks for this post Ariel – interesting in the correlations which can conceivably be drawn between a low or F0-level yet still experiencing liver pain, as we did. I have one week tx to go tomorrow and it almost seems like some kind of weird bone-pointing lol but I have been getting more liver twinges over the last 3 or so weeks progressing to more persistent pain-sensations especially today, including greater fatigue over time. At least I hope its that! I guess next week’s EOT blood test will tell (Qualitative, not quantitative however)

    Is a bit unnerving to have them back though, I have to admit.

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    16 March 2016 at 4:14 pm in reply to: viral load test #13929
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Awesome! Great to hear for both you jeanmarc and Anna!

    Brilliant news :cheer: and a real relief I am sure!

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

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