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  • 6 December 2015 at 10:33 pm in reply to: Weekend Sunrise #5338
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Here’s hoping, Chapel. For a necessarily short segment it was done pretty well (Sunrise researchers had done their homework!) with all bases covered. Dr James and Greg were great in putting a reasoned and credible face to the club’s endeavour.

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    6 December 2015 at 10:25 pm in reply to: Charitable Donations #5337
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Hmmm :unsure:

    I made a donation but didn’t take note of the $ thermometer (damn!) but pretty sure I had ‘fixHepC’ nominated correctly, so here’s hoping. The confirmation of donation email doesn’t stipulate where the money was directed, specifically.

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    4 December 2015 at 11:28 pm in reply to: Dan’s Twinvir story #5250
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Good to hear Dan! Onward and upward from here :)

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    4 December 2015 at 11:15 pm in reply to: worser and worser…should be a scandal #5249
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Great job number-crunching, Vororo. What was already obviously an obscenely small percentage of treated patients just becomes all the more stark under that spotlight.

    What Gilead would no doubt call “untapped revenue potential” :evil:

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    4 December 2015 at 4:58 pm in reply to: Jolie’s party #5244
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk
    Jolie wrote:

    Doc James said somewhere here that the monitoring can be absolutely minimal, there is a whole thread about it somewhere…if you find it.
    My “monitoring” consisted so far with 1 pre tx base bloods taken & then the consultant have scheduled blood tests after week 4, 8 & EOT & then 12 week after finishing, I think.
    I have not seen my consultant otherwise for months in person, but I do keep in touch via email if needed, this arrangement suits me fine.
    Maybe try to suggest email contact to your consultant instead of appointments & also if he can order all your bloods for the next 3 months ? – there is really not that much need to see a consultant during the tx, except if bloods are really bad, which is most unlikely with those new meds.

    Pretty much exactly what I was told at RPA today Jolie; pre-tx/4/8/EOT & post-tx 12wk testing. No need for any other “monitoring” as such unless specific issues arise. On an interesting side note, my specialist did say that they have had more than 80 patients come through the clinic on DAA treatment; most of them via the compassionate access program but some using self-sourced generics and none failed to respond, no matter their stage of illness at the outset.

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    4 December 2015 at 3:45 pm in reply to: worser and worser…should be a scandal #5242
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Lol I love it..what a freakin good idea :)

    Revenge is also moving swiftly in the direction of Shkreli. Fifteen months ago, he paid $US55 million for Turing Pharmaceuticals AG, whose primary asset was Daraprim. Now the price he paid has become questionable.

    On Tuesday night, one of the largest medical service providers in the United States, Express Scripts, announced it was offering an alternative drug to Daraprim for just $US1.

    Express Scripts is offering a drug from Imprimis Pharmaceuticals with the same qualities as Daraprim. Patients will now have an alternative: $750 for a pill of Daraprim, or $1 for a capsule from Imprimis.

    Express Scripts is a low-cost supplier which negotiates with medical insurance companies and drug makers to provide medicines directly to consumers at low cost.

    It was able to short-circuit the Shkreli price rocket by forming a partnership with Imprimis, a compounding pharmacy. Whereas big drug companies develop new drugs which are then patent protected, compounding pharmacies buy compounds approved by the US Food and Drug Administration and then formulate them to compete with patented drugs.

    Compounders of the world, unite!

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    4 December 2015 at 2:18 pm in reply to: New member Intro #5237
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Many thanks GAJ, I should have provided the explanation, my bad :)

    https://en.wikipedia.org/wiki/Monthly_Index_of_Medical_Specialities

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    4 December 2015 at 11:59 am in reply to: New member Intro #5230
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Hear you on that, Chejai!

    Also interesting how your GP got cold feet because of the “risk” of an unfamiliar product – today I saw the nurse & specialist at RPA for my pre-treatment check/bloods, and found out that because the meds have been TGA-approved, they are in the MIMS book already (just not on the PBS). This was in relation to the thyroid op which has to be done in the new year, and I will be on tx by then…so the hospital can look up the book to check for contraindications with antibiotics etc. I’m pretty sure they would be “unfamiliar” too but no one is freaking out about the prospect in the least.

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    4 December 2015 at 1:57 am in reply to: My twinvir story #5213
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Going in the right direction, max!

    Hang in there mate :)

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    4 December 2015 at 1:55 am in reply to: New member Intro #5212
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk
    CJ wrote:

    Hi zhuk,

    Good luck tomorrow at the blood place.

    Exciting, not long now before you slaughter that dragon :cheer:
    x

    Cheers for the well wishes, Cindi :)

    Have started to count off the days already lol

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    3 December 2015 at 11:26 pm in reply to: Taking longer that expected #5199
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    All great points made here, Sue, and welcome. 17 days out of 84 (presuming you’re doing the 12 wk course) is only just getting started really, I wouldn’t have any concerns. Also remember that us GT1’s are the most least responsive genotype to treat, so we might respond a bit slower than others but there’s no reason to think the eventual outcome will be any less favourable. Alsdad makes an excellent point here “The good news is that level of side effects don’t seem to be an indicator for effectiveness of treatment”

    Don’t expect anything specific to happen at a particular stage, just go with it and I’m sure you’ll have good results. All the best.

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    3 December 2015 at 11:05 pm in reply to: Gamma GT #5195
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Looking good, Alsdad.

    And an English winter cold wouldn’t help, glad you’re on the mend.

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    3 December 2015 at 10:29 am in reply to: Hive Swarm! #5156
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    LOL :lol:

    Damn! You’re right 2b :pinch:

    Oh well it was worth a try! Maybe 3 people got a look at it before the machete-job :whistle:

    And this site really needs a /facepalm emoticon lol

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    3 December 2015 at 9:58 am in reply to: Angus’s 1st treatment test results #5152
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    WOW

    Holy crap, Angus that is amazing – 1 week UND, wonderful news!

    Outstanding result! Yeah I’m sure stopping drinking helped there, definitely…that’s quite a pre-treatment VL drop. Stoked for you mate :)

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    3 December 2015 at 8:35 am in reply to: Harvoni subsidy starts on Feb 1st in New Zealand.. #5142
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Exactly my thoughts too, Tina. All those still pushing the suggestion that DAA’s will be available universally for all when are approved are living in a fool’s paradise IMO. For those of us not “sick enough” yet, to wait and watch our livers slowly fail over time, just so we might eventually be eligible for treatment…I dunno, haven’t we all lost enough years of health already? Act if you can act, and now – before this lifeline is cut short.

    And I love your angle, klhilde…damn straight generics are patriotic! lol

    aussie-flag.jpg

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

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