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  • 17 November 2015 at 1:12 pm in reply to: Nadia’s journey #4116
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Nadia, apologies for missing your thread previously…have just read it through and many congrats too, what an awesome result – 2 weeks, wow! They are amazing figures!

    Really happy for you :)

    Vicki wrote:

    Fantastic news Nadia. The layer of emotions, thoughts and physical side effects of living with HCV is abundant. As soon as you get that happy 4 week result they start to peel away. Underneath those layers is the real you. :)

    Nadia wrote:

    Today I had my 4 weeks appointment with the nurse. She congradulated me on my great response, printed another blood test form and that’s it. Easy peasy lemon squeeze.
    I’ve asked her about my baseline test results. My VL was over 1 million and ALT was 375 !
    It’s absolutely amasing that it is now within the normal range.

    [/quote]

    So true, vicki. And many of us have had the disease so long and from young ages that the real us was always ‘obscured’ by the hep. Now we have been given the incredible chance of finding the healthy us underneath those layers…that is a great description :)

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    17 November 2015 at 12:30 pm in reply to: Emilio’s Place #4112
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Couldn’t agree more, CJ. I’m F0 with a 262,000 VL so the likelihood would be that I would sit at the back of a 233,000-strong queue, if DAA’s were approved tomorrow. And yes the stigma/politics is a big part of it too…no touchy-feely human-interest stories for the public here.

    Very likely years waiting for my condition to worsen sufficiently. Or, I could be “lucky” :dry: and it could suddenly take a turn for the worse, in a shorter period of time. Thing is, if you have, or are given the wherewithall to do otherwise – why would you wait for that eventuality?

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    17 November 2015 at 12:07 pm in reply to: Emilio’s Place #4110
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Wholeheartedly agree with you em. There are amazingly generous people out there who have not hesitated to help complete strangers…I think this is absolutely an avenue which could help those not able to afford it. The question is: how can that be structured & applied to more than just the odd very fortunate individual?

    Far as access goes, considering every other Western country has a system of triaged-supply (like the two most comparable to us, Canada & the UK) it beggars belief that anyone would cling to the notion that Australia could have universal access – even if the price negotiated was half the original, its still gonna be in the ballpark of $10bil.

    No Govt is ever going to wear that, against every other condition needing PBS coverage.

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    17 November 2015 at 11:58 am in reply to: My twinvir story #4109
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Damn, sorry about that max – I stand corrected lol

    Well that augers even better for diminishing sides over the treatment span. Awesome!

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    17 November 2015 at 11:55 am in reply to: Coral vs Hep C #4106
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk
    emilio wrote:

    Hi Lynne, yes it has eased off somewhat, particularly now I’ve learned that the awake-fullness (like someone flicking on a switch), doesn’t necessarily mean that you’re not tired. I also was having power naps after work but don’t need to do this now that I’m getting into a better pattern. Also I find that if you do get a straight 7 or 8 hours, you become really foggy when you do wake. Which generally subsides once you get going. All in all you will find that you have lots more energy and it’s about learning to deal with that energy to not hit a wall. Em

    Hey em, it is interesting when you think about it – having to deal with energy you haven’t had in so long. I’ve had the virus more than half my life (contracted @ 21yo) and my mum has often remarked that sometimes she has more energy than I do – and she’s 92 lol

    Really looking forward to experiencing what “normal” energy levels are like.

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    17 November 2015 at 11:45 am in reply to: My twinvir story #4105
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Great stuff max – day 16 isn’t too bad out of an 84-day run!

    Hope you continue to have fewer & fewer from here on.

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    17 November 2015 at 11:19 am in reply to: Sofosbuvir-Velpatasvir – suits all genotypes #4102
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Yep they are pretty confined to parts of Asia/S Africa

    HCVgt.gif

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    17 November 2015 at 9:43 am in reply to: Sofosbuvir-Velpatasvir – suits all genotypes #4099
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Gilead’s new possible game-changer…applicable to all genotypes except 3

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    17 November 2015 at 9:29 am in reply to: Joy To the World #4095
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Hell yes it does tend to happen that way!

    All the best.

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    17 November 2015 at 8:45 am in reply to: Joy To the World #4093
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Gah, that’s a bit of bad luck Joy…there was a particularly bad flu strain this year, whichever one it was I got it and had a high fever for the first 4 days, very unusual…took a while to clear up. Sorry to hear you’re so knocked around by it. Hey it does seem feasible that now your immune system has got a bit more to cope with…seems logical?

    Hang in there, just get all the help/rest you can atm and you’ll come out the other side :)

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    17 November 2015 at 7:42 am in reply to: Emilio’s Place #4089
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Major props to you em, a true act of bravery and generousity of behalf of all. Thanks for what you are doing mate.

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    17 November 2015 at 7:09 am in reply to: Side effects for sofosbuvir/Daclatasvir combo. #4085
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    The bizarre dreams seems like something which can happen with other meds (anti-cancer chemo to my knowledge) but as you say Paul compared to the old horror-treatments it seems very manageable. Sleeping problems I have anyway due to nerve-pain issues so nothing different on that score :) I’m developing quite a sense of anticipation, maybe only a couple of weeks off now, all being good to start.

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    17 November 2015 at 6:52 am in reply to: Young J the dragon slayer #4082
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Great to hear that J is doing so well Cindi, feeling better physically and mentally (no small feat in a teenager for sure!)

    I would definitely say the recuperative powers of youth are on his side too, now the meds are giving his immune system a more than fighting chance. Really pleased for you both :)

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    17 November 2015 at 6:40 am in reply to: Joan Started treatment #4080
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Awesome news everyone, sounds like you are are all finding the meds tolerable and reasonbly easy to live with. Hope your results bear fruit down down the track with SVRs…so pleased for you all :)

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    15 November 2015 at 6:11 am in reply to: Emilio’s Place #3983
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Might be minimal, but that is something positive Joy. And good on QLD for taking a proactive tack compared to other States.

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

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