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Hey cheers Ariel, I really appreciate your kind words
Yep you’re not wrong about the pincushion lol. Always been a bit of a pathologists nightmare heh but luckily they hit the mark first off most times, which was helpful.
And just for added excitement I ended up in ER most of Friday due to persistent crushingly bad headaches since the op. Turned out (as I suspected) it was dehydration due to not being able to swallow enough to make up the deficit – one bag of IV saline over the 3 days in the clink, I asked for more and they said nope, you have to drink. Yeah, that wasn’t happening heh. So another tour of our fine public hospital system resulted lol
Did get to educate quite a few health professionals about DAA’s, since they’re going to be seeing a lot more patients on them trickle through the system eventually. So that was a win
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26Hey thanks, Tina!
Yeah I don’t seem to be able to do much other than sleep atm lol
So all for the best I guess, healing-wise
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26Great to hear it ken! Fingers well crossed for your SVR4 result
Good to hear too that you’re feeling better already too, after being knocked about during tx.
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26Just checking in guys – I was discharged today after 3 days in hospital, now minus one half of my thyroid lol
(pain & swelling was a bit harder to control than normal, is usually an overnight stay)Still pretty sore and very tired! and a bad headache, since I’ve not been drinking much. But with one kickarse-looking scar lol
I rack up 10 weeks on treatment tomorrow, so only a couple to go Still getting the occasional liver twinge, so my EOT bloods will be interesting. I’m fighting a losing battle trying to catch up on everyone’s stories here, so a collective good wishes to all, if I miss you somewhere
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26Wonderful news Lynne, congratulations!
The first SVR-hurdle, done! I hope it gives you heart for continuing good news for weeks 8 & 12
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26Hey Tina, damn I’m so sorry that you’ve had this news to wrestle with!
But absolutely you are on the right track with a solid plan of attack should you not clear at SVR4. Sounds like you’ve got awesome local support from the liver team, and Dr J will be right in your corner too – and the great attitude you have. You WILL beat this!
We are all behind you mate
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26Yeah I’ve lost count how many MRIs I’ve had for different things
Including one for suspected epilepsy – so you’re right in there lol. The machines used to be a lot more cramped once upon a time; I remember my nose almost touching the ceiling of it, that was a bit claustrophobic! Seem to have improved the design in more recent years. No sweat LG, you’ll be fine – and given earplugs too
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26Great to hear you’re on the way to EOT too, Ariel And you’re feeling better, minor issues aside!
Surfing sounds awesome as an endorphin-booster too…and self-confessed mermaid heh
(speaking as someone who never learned to swim /facepalm lol)
Bit in front of you with 3 weeks, woohoo
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 263 weeks, fantastic news wilko! My congratulations
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26Damn, that is awesome and great to hear re your auntie, Ariel! – she is obviously a fighter too. I will take heart from that
(no pun intended lol)Yep definitely I’m lucky, since it was so fast-growing could easily not have been benign. Hear you on the meds I almost feel like taking them hostage, just to be sure lol
Cheers for your well-wishes, they’re very welcome and much appreciated
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26Great to hear everyone’s experiences as they navigate through treatment. Particularly interesting that some have felt tiredness/fatigue returning after an initial boost of energy – this was my experience too, from about the 4 week mark. Until then I really felt “Wow, this is what being ‘normal’ feels like?” lol. Don’t get the daily full-on crushing fatigue I used to, thankfully! But most afternoons feel I have to crash for a while.
Headaches definitely lessened with time (and water) but my abdominal symptoms have returned a bit…including significant constipation – has anyone else come across this as a side effect? Not sure if I should be concerned, but I’d rather not take anything chemical while on tx.
Overall though, I’ve had a remarkably symptom-free journey, for which I feel very fortunate. Ever grateful to Dr James and those who helped make it possible.
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26Hey cheers Mike!
Much appreciate the sentiment mate
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26Hey Ariel! Thanks for the well-wishes
Yeah, its apparently just a stonking huge nodule lol (3.5×2.5cms), am very lucky its seems to be benign and no related hormone issues. Not Hashimotos in that case, so I feel very fortunate.
Apologies about the hit n’ posting lately everyone I’ve been a bit flat out the past few days, taking my Mum to heart specialists and the cardiologist…looks like she will be getting a valve replacement asap as once symptoms have appeared it can be a rapid progression – though avoiding open-heart surgery (and the need for a heart/lung machine during the operation) if at all possible. 8am tomorrow I go in for the chop; planning on trying to get away with taking one days’ supply of meds for an expected overnight stay, as (supposedly) the hospital can’t guarantee that they won’t be uh, misplaced during staff changeovers etc. Rather lose one days supply rather than two! i can always get another brought in if there are complications and I have to stay longer.
Don’t hold out much hope of catching up on everyone’s posts here now, sorry guys! But I will get as much covered as possible.
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26LG, so sorry to be catching up late with your journey and to hear you’re going through all this, esp considering the run-around you’ve historically had with the NHS. And after that possibly dodgy previous fibroscan result too – but great that Dr J is onto it for you as well as finding better UK clinicians – good stuff.
I’m with Ariel and others, 24 weeks is the way to go – you have every opportunity of UND, there is still plenty of time and you have enough of a window to get the extra meds in hand. The malabsorbtion issue, that’s a good point though. Many years ago my grandmother had to start taking a very weak solution of hydrochloric acid for a few years after her stomach (rather inexplcably) stopped producing any naturally – something like dt was mentioning I assume. All the best for your imminent results, hang in there
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26Hey thanks Ariel
And congrats to you too for your UND result Just looking at your sig, that’s a very nice set of numbers! Apologies if I haven’t caught up to your own thread yet (as well as everybody else’s lol) I have been reading through everything I’ve missed, but its gonna take a while.
Appreciate your kind wishes for my Mum too – tomorrow she sees a specialist who might give a feasibilty for surgery gauge. Plus after being shunted onto a 10 month waiting list, the other day I got the unexpected news I get my thyroid surgery Monday next week, better sooner rather than later. Hopefully I can get away with taking only a couple of days supply of meds
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26 -
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