Home › Forums › Main Forum › Patient Stories › So, the battle is joined!
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10 March 2016 at 10:07 am #13608
Just checking in guys – I was discharged today after 3 days in hospital, now minus one half of my thyroid lol
(pain & swelling was a bit harder to control than normal, is usually an overnight stay)Still pretty sore and very tired! and a bad headache, since I’ve not been drinking much. But with one kickarse-looking scar lol
I rack up 10 weeks on treatment tomorrow, so only a couple to go Still getting the occasional liver twinge, so my EOT bloods will be interesting. I’m fighting a losing battle trying to catch up on everyone’s stories here, so a collective good wishes to all, if I miss you somewhere
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 2610 March 2016 at 10:30 am #13609Hi Zhuk,
Good to hear you are finally home, put ya feet up and try and relax as much as you can
SVR 24
10 March 2016 at 10:33 am #13611Hey thanks, Tina!
Yeah I don’t seem to be able to do much other than sleep atm lol
So all for the best I guess, healing-wise
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 2610 March 2016 at 12:06 pm #13615I am glad I received an email notification Zhuk. Three days iin the clink huh, must be great to be home, albeit in pain and sporting a big scar and a bit missing. Hoping your recovery is excellent. I expect you will have bloods done lots for your TSH and so on. You possibly resemble a pincushion anyway…I trust all went well with taking your meds and so on, and now onto week ten great stuff, almost there. I send you warm wishes for a relaxing and speedy recovery and lots of sleep to get over the anaesthetic and all. Love from Ariel
10 March 2016 at 4:02 pm #13620Good to see you back!
Now, you can have a second “smile” just like me.
You probably weigh as much as one of my shoes now…
Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtxG 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 2413 March 2016 at 4:07 am #13731Hey cheers Ariel, I really appreciate your kind words
Yep you’re not wrong about the pincushion lol. Always been a bit of a pathologists nightmare heh but luckily they hit the mark first off most times, which was helpful.
And just for added excitement I ended up in ER most of Friday due to persistent crushingly bad headaches since the op. Turned out (as I suspected) it was dehydration due to not being able to swallow enough to make up the deficit – one bag of IV saline over the 3 days in the clink, I asked for more and they said nope, you have to drink. Yeah, that wasn’t happening heh. So another tour of our fine public hospital system resulted lol
Did get to educate quite a few health professionals about DAA’s, since they’re going to be seeing a lot more patients on them trickle through the system eventually. So that was a win
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 2613 March 2016 at 4:12 am #13732Haha Mike
Hey very possibly mate! In fact I think I lost a bit of weight while inside and I don’t wanna see another sandwich any time soon (since they obviously couldn’t think of what else to feed me when I could re-start eating) lol.
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 2613 March 2016 at 4:17 am #13734Hi Zhuk, you sure have a lot on your plate atm. wishing you a speedy recovery, lots of weight gain, double smiles, and the best possible EOT results.
13 March 2016 at 4:35 am #13735Thanks very much Joy! I appreciate it
Only 1 1/2 weeks to go on tx now, is going to feel strange not being woken at 6am every day by my phone heh. And I guess that is where the real waiting starts – to see if the cure holds out. Strange that even with such an almost unequivocal likelihood of cure, there’s still a small, niggling space for human doubt I was amazed enough at the 6 week UND stats lol
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 2613 March 2016 at 6:02 am #13739Hey Zhuk, so glad surgery went well -successful that is – though it sounds like you had a rough time of it. Hope you are recovering well, taking it easy and looking after your dear old Mum
Wishing you all the best as you head to the EOT line!
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16Dec ’15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb’16 VL UND
AST 24
ALT 26
GGT 50H13 March 2016 at 10:14 am #13749zhuk wrote:Thanks very much Joy! I appreciate it
Only 1 1/2 weeks to go on tx now, is going to feel strange not being woken at 6am every day by my phone heh. And I guess that is where the real waiting starts – to see if the cure holds out. Strange that even with such an almost unequivocal likelihood of cure, there’s still a small, niggling space for human doubt I was amazed enough at the 6 week UND stats lol
I haven’t had surgery mid tx and haven’t had a rough time compared with peginf which nearly killed me but I am also becoming more anxious about EOT Zhuk
I’m such a laid back person but anxiety snuck in a door during peginf and hasn’t gone. I’m seeing a psych once a week for the last six weeks of tx and the two after for support
It’s certainly a time of wait and see!
We can always re-treat if any nasties reappear that’s the good part I find great comfort in, we are so fortunate to have this place and access to meds that actually work and don’t half kill you!
Good luck you have shouldered a fair bit for sure
Splashes
Ariel13 March 2016 at 10:52 am #13750Hi Zhuk/Ariel I wish you both all the very best for your EOT……I was so incredibly anxious but as you know my four week SVR was undetected. Now just the wait for the last one….still anxious but not as much Zhuk you sure have a had a rough trot…my sister had the whole thyroid thing and she also has a kick ass scar!! Hope you Mum is on the mend too.
Thinking good thoughts for you both.
YMMV
13 March 2016 at 11:59 am #13752Hi Zhuk, Sorry to read you’ve had to endure this, especially on tx. Sending you big get well wishes across the miles
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC13 March 2016 at 1:08 pm #13756Best wishes for no more complications and much improved and quick healing.
EOT getting close good luck on your way to SVR
GT2b diagnosed 10/2015
since: unknown
11/20/15 VL= 214,070
12/4/15 ALT=18 AST= 24
1/16/16 started sof/dac
2/13/16 @4wks VL=UND ALT=13 AST=22
3/12/16 @8wks VL=UND ALT=10 AST=18
4/9/16 EOT VL=UND ALT=11 AST=19
9/23/16 SVR24 ALT=11 AST=2213 March 2016 at 3:45 pm #13757I know the “niggling’ feeling Z,
23 days until my SVR 12 test. I, like you, responded well to tx and the results should be fine. It just seems to good to be true at times.
M
Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtxG 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24 -
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