If you need the Riba and can't get it on the NHS, buy your Sof through Greg Jefferys: hepatitisctreatment.homestead.com/ . You get the Riba free with the Sof.

If you didn't already know, Greg's the guy who kickstarted this whole thing (buying hepc generic drugs internationally). If you haven't read his blog, it's compulsory reading for us heppers.

I have completed a "contact" form as advised by Dr Freeman (Help post) - but I don't know whether it will get through.

In the midst of trying to find my way around this forum, read its posts & interesting information and researching other options ) - I somewhere saw a notification stating that one is not actually registered until a link has been clicked in ones email (I cant find where I saw this notification & I have no reference to it on my emails). Perhaps I have confused it with another site I was trawling for information on treatment.

I don't recall engaging any "registration" link and but assume Im registered because my posts appear on line - however, could the System Administrator please check for me please. I need the "contact" with Dr Freeman and I would also like to know Im getting full participation on the Forum. I notice my username often doesn't appear with the other "users" when Im on-line.

Not a deal breaker - but - would appreciate a "tech check" thanks Im very grateful for all the assistance provided by this group and forum. This post is overly wordy but Im not well enuf to edit - had MRI today and the Provist they inject leaves me with a headache and feeling a bit crook. Was a worried wimp most night about the result. regards archer

Ha ha! Nanna nap. I like that one.

Still got the myalgia and arthralgia that I had for a couple of years before I started this treatment, but they can be side effects of Sof+Dac anyway. So maybe they improve post-treatment.

The big difference is 'up top'. I feel much more clear of mind, and don't get mentally fatigued. Also, I'd been getting increasingly irritable, particularly with my young son who is as as bright as a button and a live wire with it. I'd come to hate myself for being 'short' with him, but just couldn't control it. That seems to have faded now, with a relaxed mentality coming with the clarity of mind.

Update:

Some back info, in case anybody wants to try the same thing.

I originally purchased tickets to be in Thailand for six weeks. I wanted to be here long enough to get my four week blood work done. (In the US my co-pay for one visit to the specialist plus blood work was almost $500.)

Problem ... A few days before leaving I discovered that Thailand is only granting 30 visas on arrival. Too late for pre-trip visa. Have to show a departure itinerary putting me inside that requirement.

No problem. I'll just book a short side trip.
Problem .... how could I know how my schedule with the doctor/hospital would work out?

Whatever, gotta do something .... I booked seven nights hotel in Bangkok and then a five day trip to Singapore .... leaving me 29 days left in Bangkok. That oughta work. Tiger air offered the flight for only $95. Well, not really .... Tiger air has gotchas .... ended up $133. Non-refundable. But still, that left me ready to land in Bangkok.

Got here, everything went too easy with the hospital. Need to book my hotel before I land in Singapore.
Ummm ..... Wow! Singapore hotels are even more expensive than I suspected!
Anyway, I still haven't booked because now I've got issues with the meds. May have to burn the ticket to Singapore and write a new plan.
_________________________________________________________

So, my doctor here in Bangkok chose to write me a prescription for Sofosbuvir/Ledipasvir .... told me Sofosbuvir/Daclatisvir wasn't recommended for 1a. I wasn't going to debate it with him, but it tells me where he's getting his information.

No problem, a couple days later I was given an email address for a contact to get Incepta's Twinvir for $1500.
Problem .... contact doesn't answer.

No problem, I can fly from Bangkok to Dhaka for $388rt. I'll get it straight from the source. And for only $1200.
Problem .... Visa on arrival costs $160 and there is no assurance they'll grant it when I get there. Really? Really!
Problem .... Incepta's marketing office, claiming to have their drugs in every drugstore in the country, isn't answering their emails.
Problem .... Lazz Pharma, claiming to be the largest, most trusted drug store in Bangladesh, with four branches, all open 24 hours a day, 7 days a week ..... isn't answering their email ... or their online order request form ... and I can't seem to get through on the phone either.

No problem .... Bangkok to Beijing is only $270rt. Back to Mesochem and APIs ....
Problem ... I'll have to go to the consulate/embassy in Bangkok to get a visa.
Problem ... I don't know if Rachel will sell me the meds when I get there.

Oh, and if I'm going the Mesochem route, I'd really rather use the Daclatasvir.
Hmmmm .....
___________________________________________

To be continued .....

Hi klhilde,

If you are going down the Bangladesh route I heard that Beximco Pharma are also doing a generic Harvoni. Contact is Badrul. Email is:
This email address is being protected from spambots. You need JavaScript enabled to view it.

But - as you are now in Bangkok anyway (I think), why not just fly down to Tasmania and let the good Dr Freeman sort you out. Seems a helluva lot easier to me than either Beijing or Dhaka.

Good luck,
dointime

Yes, I had thought earlier of going that route rather than taking the trip to Singapore. I was originally planning to get the meds from Dr. Freeman. At the time I was finding flights to Perth at about $320 ... going east gets much more expensive. I figured I'd decide after I got here. In any case, I didn't want to have drugs shipped to me here in Bangkok, to a hotel address ..... just asking for trouble.

Then it started looking like it would take at least a week to ten days to get through the *wire money/import/test/capsulize/deliver* process ... and I've still got it in my head to get a four week blood test before I return home. I suppose I don't really need that.

In any case, I need to know exactly how long it will take before I go hunting airfares.

You can't expect such certainty about timing with this arrangement. I know I would much prefer ordering and taking delivery from anywhere in Australia vs the rest of Asia, especially as for the moment at least, FixHepC have an established, well tested pipeline. So I would go to say, Perth and arrange delivery to there.

Once racjel from mesochem received my bank transfer it took 3 days to arrive china to australia. And 2 more days to go through customs to dr freeman. Gotta love fedex. Em

Greg is now offering 3 months supply of tested and compounded Dac delivered to anywhere in the world for £200 (less in Australia).

You can read about it and contact him here:

hepatitisctreatment.homestead.com/generic-harvoni.html

The info is at the end of the 23 September entry.

Well well, look what I finally found ..... it's not a great price, but I just booked a flight Bangkok - Melbourne rt for a little under $700US ... and I can reschedule the return with no penalty .... and I get to fly on a Dreamliner!

This is a known barrier (see hepatitisctreatment.homestead.com/generic-harvoni.html) See Getting Treated/How to do it and `Doctors' above. A foreign script might do it.

Hey Nadia,

If you are already on Mesochem Dac, would you share how is your treatment going? My father is about to get on this journey and I would be compounding the Dac for him.

My name is Dafne and I am writing to you on behalf of my father Adolfo who was diagnosed with hepatitis c over 12 years ago. He has been seeing a specialist for many years and has now developed cirrhosis of the liver. He has Hep C genotype 1b.

I have been in contact with a specialist in Chile who made me aware of Greg Jeffreys and have been trying to find a doctor that will help my dad with proper treatment. My father's long time specialist has only ever offered him Interferon and my father in all these years has not wanted in to go the way of interferon due to rate of success for his genotype and also proposed side effects of the drug. However now that he has a cirrhotic liver our concern has become more like desperation. We have been doing extensive investigations with regards to treatment and rates of success and we have found a way to access the combination Sofosbuvir+Ribavirin+Daclatasvir which we know has significantly less side effects and a high success rate for his genotype and the terrible side effects.

We understand it is perfectly legal to import medication to Australia for personal use with a doctor's prescription and if treatment is properly supervised. This is the reason I am writing to you today. We would like to know if you would be able and willing to accept my father as your patient and help us with the required prescription and observation while my father undergoes treatment. We would be more than happy to provide you with his full medical history and of course any information you may require with regards to the origin of the required treatment medication. It is unfortunate that big pharmaceutical companies force people in certain parts of the world to dance this dance but we are also aware of many Australians that have been helped by their doctors in achieving proper treatment and eventual cure from a previous death sentence.

I read the SMH article and quickly made my way through the links to find this site here and GP2U. I have jumped the gun and made an appointment to see you on Tuesday on Skype. We would be forever grateful if this led us closer to proper treatment.

Thanking you,
Dafne.

Hi Ahmad,
I'm planning to start my treatment next week. I will start writing my diary when I commence.

Hi Sean,

I'm good thanks:)

Yep, everything on my end is at Dr Freeman's just waiting on my payment to reach his bank next week, at some
point soon I'll be starting treatment.

What absolute rubbish by the Consultant these are the very same Dr's treating patients with generics from India
in various Irish hospitals.

Keep us updated.