Home Forums Main Forum Media & News VA Approves Tx for All Vets!

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  • #13632
    Avatar photomgalbrai
    • Guardian Angel
    • ★★★★★
    @mgalbrai

    VA expands hepatitis C treatment to all patients with the virus
    Patricia Kime, Military Times

    The Veterans Affairs Department will begin providing hepatitis C treatment to all veterans in its health system who have the virus, regardless of their disease stage, VA officials said Wednesday.

    http://hepatitiscnewdrugs.blogspot.com/2016/03/va-expands-hepatitis-c-treatment-to-all.html

    Hooray!!!

    Garry Owen!!

    Oorah!!


    Curehcvnow@gmail.com
    http://forums.delphiforums.com/generichcvtx

    G 1a F-1
    Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
    11/17/15 4 wk lab ALT 17 AST 16 <15
    11/18/15 Started Harvoni
    12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
    1/14/16 Fin. Tx
    7/07/16 UND SVR 24

    #13636
    Avatar photoTina-Hill-facebook
    • Guardian Angel
    • ★★★★★
    @tina-hill-facebook

    #woohoo!


    SVR 24

    #13640
    Avatar photoSirchinenge
    • Guardian Angel
    • ★★★★★
    @sirchinenge

    This is what I call awesome news really chuffed too hear so many will now access treatment.

    Mike,am sure all your work bringing too this to the fore has helped…..


    Sob/Dac from Oct 29 2015
    Geno 1b
    Fiberscan 9.9 Pre treatment
    Fiberscan 7.4 week 10
    VL 1.3 million pre treatment
    Week 2.5 VL 96
    Week 5.5 VL 17
    Week 10 VL UD
    SVR 3 UD
    SVR 16 UD
    Cured:
    All liver functions in normal ranges.

    #13641
    Avatar photomgalbrai
    • Guardian Angel
    • ★★★★★
    @mgalbrai

    Thanks,
    Price is the shaker and mover on this.
    Way to go P!


    Curehcvnow@gmail.com
    http://forums.delphiforums.com/generichcvtx

    G 1a F-1
    Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
    11/17/15 4 wk lab ALT 17 AST 16 <15
    11/18/15 Started Harvoni
    12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
    1/14/16 Fin. Tx
    7/07/16 UND SVR 24

    #13642
    Avatar photore_roll
    • Guardian Angel
    • ★★★★★
    @re_roll

    M…that is good news. According to the article it appears Merck’s Zepatier
    might be the medication used….pushing Gilead out, hopefully. Downward
    pricing is inevitable. Wonder what Merck will be charging….e.


    contracted Gen 1a in the 70’s, dx in 2007…ast 27 to 35…alt 43 to 96…vl 1.2 mil to 8.6 mil.
    biopsy F-2 (2012)..pre tx results 1/23/16 ast 32, alt 46, vl 3.1 mil
    tx started 2/11/16…. lab results 2/24/16 ast 18, alt 18, vl <15 IU/ml
    28 days later………….lab results 3/9/16 ast 21, alt 21, vl UND
    56 days later………….lab results 4/6/16 ast 20, alt 22, vl UND
    139 days later………..lab results 6/29/16 ast 28, alt 30, vl UND…EOT
    SVR24

    #13643
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    According to this article, the list price of zepatier is $54,600 for 12 weeks.

    http://www.bloomberg.com/gadfly/articles/2016-01-29/merck-zepatier-hepatitis-c-drug-price-could-be-a-game-changer

    Coming after Gilead, this makes Merck look like angels. But no doubt the usual game is at play. Namely, charge whatever the market will bear, keeping in mind the price set by the competition.

    I expect sooner or later someone will work out how much it really cost Merck to develop zepatier, and how much it really costs to make the stuff.

    And then, no doubt, we will discover once again that there are no angels in the world of Big Pharma. Only Big Businessmen…


    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    #13644
    Avatar photomgalbrai
    • Guardian Angel
    • ★★★★★
    @mgalbrai

    Yes, the old “list” price song and dance. What discounts the various insurance companies and government agencies get seems to be very closely held. Rumors in the US put Harvoni in the mid $40,000 range for insurers after Viekira cut their deal with Express Scripts, but nobody seems to be certain except the drug and insurance companies and they aren’t saying. I filed an FOI with my state-run insurance company to find out what they were paying, but couldn’t because they hadn’t treated ANYONE at the time.
    Maybe someone will leak the info.
    Its hard to believe the government could keep anything secret


    Curehcvnow@gmail.com
    http://forums.delphiforums.com/generichcvtx

    G 1a F-1
    Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
    11/17/15 4 wk lab ALT 17 AST 16 <15
    11/18/15 Started Harvoni
    12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
    1/14/16 Fin. Tx
    7/07/16 UND SVR 24

    #13650
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    From hepatitiscnewdrugresearch:

    As a reminder, AbbVie announced a list price of about $83,300 for a standard course of Viekira Pak after the product was approved Friday, but the drug maker is providing a discount to Express Scripts in order to secure favorable coverage. Neither company has revealed the discount and declined to discuss details, although Porges writes it is in the neighborhood of 40%.

    – See more at: http://hepatitiscnewdrugresearch.com/viekira-paknews-updates.html#sthash.gE7S60q3.dpuf


    YMMV

    #13682
    Avatar photoGreedfighter
    • Guardian Angel
    • ★★★★★
    @greedfighter

    This is great news!

    I did read however here http://www.bloomberg.com/gadfly/articles/2016-01-29/merck-zepatier-hepatitis-c-drug-price-could-be-a-game-changer
    that Merck is putting the “discount” into the list price to make Gilead look bad. But both drugs will cost insurers about the same, :huh:

    #13697
    Avatar photoCJ
    • Guardian Angel
    • ★★★★★
    @cj

    Good news!!
    Hope Australia does the same too.
    :)
    x


    J the young dragon slayer is:
    HepC 1a since birth
    Male aged 15
    VL 2000000
    Started Twinvir/ 10-11-15-then Sof/led.
    NO sides so far !
    after one week VL : 37
    after 4 wks VL : UND !
    EOT 2/2/16 UND.!
    4 wks. post tx results….pending….
    7/3/16 VL result : 4 week post tx: SVR !
    12 weeks SVR !
    24 wks SVR yeeaa!!

    #13935
    Avatar photoPrice
    • Guardian Angel
    • ★★★★★
    @price

    Thanks. We got some help from the big advocates and getting media coverage has helped us tremendously.

    Unfortunately, we will need to continue fighting. Congress gave the VA 1.5 billion to be used for treatment. The VA gets a discount from Gilead. They pay $41,000 for 12 weeks of Sof. So obviously when they say they will treat all Veterans they’re lying. One thing you can always count on with the VA is lies.

    I’m attaching the official memo that says they will treat all and the “use of prioritization protocol to determine eligibility for treatment is no longer in effect” (You know, the prioritization protocol they denied having that said only treat Stage 4).

    Then right below it says that even though they are not limiting treatment, facilities should make sure that the Stage 4’s get treated first….and if that is not prioritization I don’t know what is.

    Last, but not least, it says the funding is for meds but they have no funding for staffing or laboratory testing.

    Oh, come on, you didn’t really think they were ready to do the right thing, did you?

    We still consider it great news. To all Veterans….now is the time to treat. If they deny you treatment, contact HCVets.com and let us know.

    To all of you….thank you, for opening your hearts to people you didn’t even know. For including Veterans in your posts and helping us pass our message. To Dr Freeman because some of the info he posted was instrumental in the CBS story.

    What’s next for us?

    Apply pressure so they’ll let us use generics, of course. I’m talking to the other adviocates about generics…and just wait until I show them that the VA included Veterans in some of Gilead’s Sovaldi/Olysio studies back in May 2014 without telling them they were in studies (Sovaldi/Olysion got FDA approval Nov 2014). They were told the VA was “using sofosbuvir off label. I think the money they made from participating in studies should be used to treat the rest, don’t you think?…..(and people wonder why I walk around mad all the time….ha!)

    P

    Attachments:
    • VAmemoallgettx.jpg
    #13937
    Avatar photoPrice
    • Guardian Angel
    • ★★★★★
    @price

    Our story made it on the Young Turks! So far over 50,000 views!

    The Young Turks (TYT) is the largest online news show in the world, with over 1.5 billion views and counting. Hosts Cenk Uygur and Ana Kasparian break down news, politics, entertainment, and current events without scripts or teleprompters and without any corporate bias….and they’re talking about the VA not treating Veterans and they are asking……

    “What should we do to lower the cost of drugs in the US? Let us know in the comments below.”

    We would appreciate comments that mention generics.

    P

    #13938
    Avatar photomgalbrai
    • Guardian Angel
    • ★★★★★
    @mgalbrai

    “If voting made any difference they wouldn’t let us do it.”
    ― Mark Twain


    Curehcvnow@gmail.com
    http://forums.delphiforums.com/generichcvtx

    G 1a F-1
    Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
    11/17/15 4 wk lab ALT 17 AST 16 <15
    11/18/15 Started Harvoni
    12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
    1/14/16 Fin. Tx
    7/07/16 UND SVR 24

    #13948
    avatar876.jpegGaj
    • Guardian Angel
    • ★★★★★
    @gaj

    “If voting made any difference they wouldn’t let us do it.”
    ― Mark Twain

    I have to disagree with such populist cynicism. In fact I’d say it panders to those who would attempt to thwart change!

    The VA administration was exposed as not looking after the veterans with HCV. The bad press that was generated meant they had to do something and they have to the tune of $1.5 billion……which isn’t enough so they attempted to use smoke and mirrors in the hope that those who embarrassed them previously will leave them in peace.

    Unlike MT, Price and her colleagues aren’t fooled or disheartened and are continuing the fight. As she says, the veterans need your support and comments about generics.


    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

    #13951
    Avatar photomgalbrai
    • Guardian Angel
    • ★★★★★
    @mgalbrai

    Maybe this will help some of you other democracies better understand what old Sam was talking about! :P

    The Reason for the Electoral College

    M


    Curehcvnow@gmail.com
    http://forums.delphiforums.com/generichcvtx

    G 1a F-1
    Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
    11/17/15 4 wk lab ALT 17 AST 16 <15
    11/18/15 Started Harvoni
    12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
    1/14/16 Fin. Tx
    7/07/16 UND SVR 24

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