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Hi Archer,
Welcome back.
As always you raise a number of important points most of which are far outside my experience but there are a couple of comments I would make. For your concerns about your recent symptoms and the impact of your diet, I’m also at 22 and a bit weeks Tx and also have experienced some increases in aches, twinges and itching recently. I suspect it is probably just the length of time on the meds, either physically or emotionally, rather than the virus regrouping because as you say being on treatment effectively knocks any viral activity out. From a dietary perspective even if sometimes we haven’t been fully adherent up till now (goodness I like pizza now that I can digest it!
)* I suspect that with undetectable viral activity in our blood, the virus is unable to manipulate any excess sugar to allow massive replication. I think the important thing now is to get our dietary sugar under control prior to finishing treatment and then strictly maintain it until we acheive SVR. As far as the recent reports around HCCs and Tx goes, they are very preliminary at the moment and may or may not point to some concerns. But for us I believe that it’s too late to be crying over any potentially spilt milk so to speak and we should just take it as an advisory to keep a careful eye and regular check with scans and tests. I would recommend to keep to your MRI schedule rather than delaying and while AFP is only a rough indicator, it is a quick, cheap and mostly painless way to monitor for those gradual increases or sudden jumps that may indicate a need for a closer look.
May I also say it’s good to hear from you after so long.
*don’t worry, the pizza is only an occasional treat even if I dream of it regularly.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Hi Archer,
Take Gaj’s advise, he always makes sense.
Try to not to worry too much. Sounds like your symptoms are shared with others, so all is probably still ok.It’s ok about “hiding out” I’ve done that myself in the past, the world & reality can be a scary thing.
I understand.….I’m still just a phone call away, remember that.
Love Cindi xo
So nice to hear from you Archer
Its totally ok to take the time to hide out – I think I would run the risk of making myself really unhappy if I dont have my alone time. That said I am ever so grateful to my friends and family who tap me on the shoulder to remind me that they miss me and my crass jokes
I think Gaj and Cindi hit the nail on the head in their post’s to you.
Sending you love Archer, you are so strong. I wish you better heath, and continued determination as you clearly have with your challenges. I understand about what I call ‘crawling under a rock’ and chilling away from writing, I do that sometimes too
Thinking of you, from Ariel. Dear Archer, Lovely to hear from you. I so understand the hiding away thing.
As I have posted elsewhere, I do think the length of time going through all ‘this stuff’ can wear us down and cause retreat. We’d have to be made of steel for it not to, especially for those like you with other health concerns.Even at F1/2 I experience ‘liver ache’ and now dry skin which has come back 16 weeks into tx, so it could well be the time on meds.
I am thinking of you and sending big healing wishes and
lg
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