Home › Forums › Main Forum › Patient Stories › SVR › Undetectable week 5 post treatment despite feeling crap

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  • 8 May 2016 at 6:21 am #16801
    Avatar photoPhoenix
    • Topics: 12
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    • Recovery Champion
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    @phoenix

    Oops. Can someone move this to Patient Stories?

    8 May 2016 at 6:30 am #16803
    dope-on-a-rope.jpgDr James
    • Guardian Angel
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    @fixhepc

    I’ve moved it to SVR. It’s important to remember that just because you don’t have Hep C you can still get all the variations of flu etc.

    As always, if the symptoms persist, see a doctor.

    YMMV

    8 May 2016 at 6:30 am #16804
    dope-on-a-rope.jpgDr James
    • Guardian Angel
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    @fixhepc

    Fantastic news……..hope you feel better soon though….I also put my SVR12 post in the admin section….must be the rush to spread the good news :)

    YMMV

    8 May 2016 at 6:35 am #16806
    Avatar photoPhoenix
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    @phoenix

    Thanks Lynne & thanks Dr Freeman. I actually came down with a cold on Friday. Perhaps the liverish feelings I had were the beginnings of that. In between the 5 days of complete crap and getting the cold on Friday was about a week of feeling run down with insomnia (though I think the insomnia was largely worry). I slept well last night :)

    8 May 2016 at 6:38 am #16807
    Avatar photoPhoenix
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    @phoenix

    Feels really good to have joined the SVR section if only in a small way as yet :) :)

    8 May 2016 at 6:47 am #16809
    avatar876.jpegGaj
    • Guardian Angel
    • ★★★★★
    @gaj

    :woohoo: Congratulations Phoenix! :woohoo:

    Great to hear of your SVR5 and hope your cold goes away soon so you can really celebrate. :+1: :cheer:

    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

    8 May 2016 at 6:58 am #16811
    Avatar photofretboard
    • Guardian Angel
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    @fretboard

    Great news! Congrats on your first UND! So what are you taking, generic drugs or real Harvoni?

    G1a dx’d in 1992, Biopsy F2 VL 8mill +. Tried tx with Interferon/Riba, back in 2008 didn’t last long it felt horribly ugly!! I stopped tx, after 5 weeks!!
    Started tx 6/1/16 with Harvoni.
    12 Month Labs= UND

    8 May 2016 at 7:33 am #16812
    Avatar photoPhoenix
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    @phoenix

    Thanks Gaj & Fretboard :)

    Actually my third UND. Was UND at weeks 4 and 8 during treatment. This is my first UND post-treatment.

    I took generic drugs from Mesochem through FixHepC. 12 weeks Sof/Dac, and the proof seems to be there so far that it’s good stuff :)

    8 May 2016 at 7:43 am #16814
    Avatar photoCC2B
    • Guardian Angel
    • ★★★★★
    @cc2b

    Congrats Phoenix on your SVR, hope your cold takes a hike soon :+1:

    GT2b diagnosed 10/2015
    since: unknown
    11/20/15 VL= 214,070
    12/4/15 ALT=18 AST= 24
    1/16/16 started sof/dac
    2/13/16 @4wks VL=UND ALT=13 AST=22
    3/12/16 @8wks VL=UND ALT=10 AST=18
    4/9/16 EOT VL=UND ALT=11 AST=19
    9/23/16 SVR24 ALT=11 AST=22

    8 May 2016 at 8:47 am #16820
    Avatar photofretboard
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    @fretboard
    Phoenix wrote:

    Actually my third UND. Was UND at weeks 4 and 8 during treatment. This is my first UND post-treatment.

    I took generic drugs from Mesochem through FixHepC. 12 weeks Sof/Dac, and the proof seems to be there so far that it’s good stuff :)

    Great news! Always glad to hear about a Mesochem success story!!
    Benny.png

    G1a dx’d in 1992, Biopsy F2 VL 8mill +. Tried tx with Interferon/Riba, back in 2008 didn’t last long it felt horribly ugly!! I stopped tx, after 5 weeks!!
    Started tx 6/1/16 with Harvoni.
    12 Month Labs= UND

    8 May 2016 at 10:07 am #16821
    Avatar phototweakmax
    • Guardian Angel
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    @tweakmax

    Feeling like crap too

    Liverish

    8 May 2016 at 11:05 am #16822
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    Hi again Phoenix I had insomnia all the way through my treatment but I really did get used to it after a while because my energy levels were so much better throughout the day…..all back to normal now!! Went to sleep okay but around 4am – 5am, boing eyes wide open! :) :)

    YMMV

    8 May 2016 at 11:59 am #16825
    Avatar photoPhoenix
    • Topics: 12
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    • Recovery Champion
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    @phoenix

    Thanks CC2B.

    Hang in there Tweakmax! I have SO discovered that liverish does not necessarily equal virus. The crap feeling will almost certainly pass.

    Lynne I really relate to a strange new energy/insomnia thing. It feels sometimes like I might just need less sleep now, like my biorhythms are being reset in a good way, but it still takes a bit of getting used to. Though when I feel crap it feels like the same old crap! I think I’m getting easier with the idea that the road to recovery will still have twists and turns.

    8 May 2016 at 2:06 pm #16829
    Avatar photoDebs
    • Guardian Angel
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    @debs

    Thankyou Phoenix for being honest and posting this. I had a little smile at your turn of phase for the title as that would be my sentiments exactly! ( apart from the UND as haven’t had the test yet.) I find your post quite reassuring.
    I am going for a liver function test next week as I asked my gp for one and won’t get a VL test until 12 weeks post EOT, as per NHS standard.
    Cheers, and really glad you remain undetected. Congratulations! :) :+1: :lol: #duck #flower

    8 May 2016 at 5:51 pm #16836
    Avatar photokenbasman
    • Guardian Angel
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    @kenbasman

    I would imagine that “liverish” could be our troubled livers fighting their way back from so many years of hardship even now that we have hopefully cleared HCV . I am getting a bit stronger every day, but I am still not completely up to scratch and I finished tx over 8 weeks ago.

    HCV 35 yrs G1a F3 Tx naive
    started Lesovir-C 15/12/2015
    pre tx: VL 5,250,000 ALT 374 AST 208
    FIBROSCORE 10.4

    4 weeks tx ALT 29/ AST 33. VL < 12 UI/mL 8 weeks tx ALT 29/ AST 34. VL UND 4 weeks after tx UND. SVR4. ALT 24/AST 18

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