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  • 10 June 2016 at 4:41 pm #18823
    Avatar photoJoy
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    @joy

    http://www.echo.net.au/2016/06/jakarta-group-starts-own-dallas-buyers-club/

    10 June 2016 at 8:19 pm #18831
    Avatar photoMatt-Kenney-google
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    @matt-kenney-google

    Wow Joy! Good on Jakarta! Although, I have the same concerns expressed by Joe in the comments on the article. He asks, “Is it a good idea to publicise this? Inodnesian police and customs will appreciate this heads up.”

    GT1a; Got it some time in the 70’s; Diagnosed @1976
    Tx naive
    METAVIR: A2-F2
    SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
    3 weeks after SOT: AST 27 ALT 31 VL 138
    Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
    Hep C RNA NOT DETECTED”

    11 June 2016 at 3:21 am #18861
    Avatar photoJoy
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    @joy

    Yes Matt, I share those concerns, especially since names and positions are mentioned.

    With 3 million living with Hep C and even the price of generics out of range for most, let’s hope Indonesia’s National Insurance lists the new meds asap.

    11 June 2016 at 5:32 am #18872
    avatar876.jpegGaj
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    @gaj

    While there will be some risks associated with the publicity I suspect they made the decision to to go public via the AAP as a means of spreading the word and generating additional support for their/our cause much like a couple of Tasmanians did in the Australian media last year.

    Here’s a link to additional reading about generic HCV treatment in Asia:

    http://www.amfar.org/activists-driving-down-cost-hepatitis-c-treatment

    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

    11 June 2016 at 7:01 am #18879
    Avatar photoJoy
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    @joy

    Thanks Gaj.

    Yes, those wonderful Tasmanians who stuck out their necks for all of us. Eternally grateful. Now more are taking risks to help others, and it will continue to spread. Because people care about people.

    “Right now many of our community members are surviving HIV, but dying from hepatitis C,” says Aditya Wardhana, executive director of the Indonesia AIDS Coalition.

    Feeling very sad about that.

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