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  • 21 October 2018 at 4:20 am #28627
    Avatar photocoral
    • Guardian Angel
    • ★★★★★
    @coral

    I can see that our community forum is quiet and contemplative at the moment. Just sending out a big hello and hugs to everyone on this beautiful Sunday morning.

    A big hello to you who are linking into the forum for the first time and thinking about treatment for Hep C…..come on board…..I promise you that it is the best decision you will ever make.

    Hello to you who are in the middle of treatment…….hang in there and keep taking those tablets……they are working really hard for you and will get the job done.

    Hello to those who, like me, have been cured through the efforts of Dr James and the FixHepC community….how fortunate are we?

    Have a wonderful day.

    Coral #flower

    21 October 2018 at 11:18 am #28628
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Great post Coral, :+1: :+1: #flower #flower :+1:

    I was thinking that it is a holiday weekend here, which means exam study again for me (for the last time), and it must be exactly 3 years since I was waiting for my meds to arrive.
    Pretty sure I would be fertiliser by now, I was out of time, if I hadn’t found FixhepC, and taken the leap- now I am well, the world is my oyster. We have seen some great stories- yours is one of them Coral!

    But as far as treatment goes in NZ, some things change, some things stay the same. (nb- it says I founded a buyers club- I didn’t- I found one- this!!!. They always get something wrong)
    https://www.odt.co.nz/news/dunedin/further-hepatitis-c-drug-delay-cruel?fbclid=IwAR0C-cttpICOaFX8B0TSaEtP4XfQBE5WIVbK2ydV7Y7YF8P5c-maF5Vf4iY

    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    22 October 2018 at 8:49 am #28630
    Avatar photocoral
    • Guardian Angel
    • ★★★★★
    @coral

    You are such a consistent voice for HepC in NZ media (and therefore elsewhere) Hazel.

    Good luck for your exams – you must be ready to celebrate the end of that marathon (and your liver won’t mind!).

    25 October 2018 at 1:50 am #28634
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Cheers.
    An update on that NZ story, and I think it shows how important media pressure is.
    I know that many people, senior doctors and organisations have asked Pharmac for more info, and a rough timeline of when Maviret will be available, having really raised expectations about Oct 1. Prof Gane told a conference recently he expected by Christmas. No answer from the govt…. but a couple of days after calling them cruel in a headline got their legal/comms dept busy and they came up with another response to the whole sector- not until next year, no idea when.
    This ….. does not meet with my approval, to put it politely.
    https://www.odt.co.nz/news/national/hep-c-drug-delay-confirmed?fbclid=IwAR0iweMvMen8suACBuMsWKlDloKPCMaum8mV44Jn3n811AqcrHVkY1HxoLo

    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    25 October 2018 at 3:05 am #28635
    Avatar photoMar
    • Guardian Angel
    • ★★★★★
    @mar

    Nice job Hazel, keep piling up the pressure :+1: :+1:

    Making the world a better place – one patient at a time.

    26 October 2018 at 4:00 am #28636
    Avatar photoGreedfighter
    • Guardian Angel
    • ★★★★★
    @greedfighter

    Great post Coral! :cheer: :+1: You’re right, we are all extremely fortunate to have been cured by Dr. James.

    Keep up the pressure Hazel! :cheer: :+1: You’re doing an incredible job. Great advice telling people that can afford it, to get generics. I would think virtually everyone that’s able to work can afford it at this point.

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