2B HERE - FixHepC

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1 December 2015 at 12:28 pm #4956
IRMA88
- Topics: 2
- Replies: 39
- Total: 41
- Recovery Champion
@irma88
Just getting this started. My first post
I am on Sof/Dac, now on day 21. I got mine through Greg & Doc Freeman
I will have to do 24 weeks as I have cirrhosis? I don’t know yet whether we are adding Riba at the last 12 weeks. I was only diagnosed June last year even though I have had abnormal bloods for about 15 years- Finally sent to a specialist after begging for something to be done re- feeling so crap all the time.
No fibroscan as yet due to a comedy of errors/wrong fax numbers/being not sick enough- among other lame excuses I have been given.
So Happy to have found you lovely people!!!

G2B – DIAGNOSED 2014, STARTED SOF/DAC 11/11/15 VL 6M
UND @ WEEK4
FINISHED TREATMENT 26/4/16
UND @ WEEK 24
ALT 12 AST 15
MY ETERNAL GRATITUDE TO GREG JEFFERYS & DR FREEMAN
1 December 2015 at 3:03 pm #4964
Gaj
- Topics: 29
- Replies: 1,402
- Total: 1,431
- Guardian Angel
@gaj
Hi IRMA88,

Welcome and congratulations on taking charge of your health. Regarding fibroscans, Dr James had a recent post regarding a bloodtest option for those whose can’t get access to a shiny machine that goes ‘thwok’ between your ribs. http://fixhepc.com/forum/experts-corner/362-fibroscans-vs-hepascores.html

Good to see another gt2 join us and I have just noticed the mods have given us our own sandpit to play in.

I’m two weeks into a similar 24wk treatment and feeling better than for many years. How are you after three weeks?

G

G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
1 December 2015 at 3:06 pm #4965
Life
- Topics: 2
- Replies: 172
- Total: 174
- Guardian Angel
@life
Welcome, welcome, Irma888
1 December 2015 at 3:41 pm #4970
zhuk
- Topics: 5
- Replies: 543
- Total: 548
- Guardian Angel
@zhuk
Hey Irma88 glad you found the forum, and welcome. GAJ has the right idea if you can’t get hold of one of those damn elusive scans.All the best with your treatment

GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26
1 December 2015 at 4:20 pm #4975
IRMA88
- Topics: 2
- Replies: 39
- Total: 41
- Recovery Champion
@irma88
Hi GAJ,
Treatment going ok, no major sides, I seem to have HIGH energy days a lot more now than before but still not feeling “great”. I tend to overdo things on high energy days. Still major brain fog though but I feel confident we will all be great after this is over.
And yes, I did check out the link for the blood test and probably will go that route as I don’t think I will get the fibroscan before my first 12 weeks is up.

Thank you all for being so welcoming
Doing this has made me feel a little more in control of my health outcome.
Best wishes to all with their treatments

G2B – DIAGNOSED 2014, STARTED SOF/DAC 11/11/15 VL 6M
UND @ WEEK4
FINISHED TREATMENT 26/4/16
UND @ WEEK 24
ALT 12 AST 15
MY ETERNAL GRATITUDE TO GREG JEFFERYS & DR FREEMAN
2 December 2015 at 2:40 am #4999
2b
- Topics: 17
- Replies: 332
- Total: 349
- Guardian Angel
@2b
Hey IRMA,…I”M “2B”…that’s my screenname…damn, when I first saw your post title I thought wth, somebody trying to steal my moniker?

hehe, lets both look forward to the day when we can forget what that “2B” ever stood for!
I’ve been 2B since 80’s too, before that i was non-a, non-b….soon I hope to be just undetected.

same as you taking daclatasvir and sofosbuvir I picked up in Sydney, when I told the pharmacy I was coming he said when can you be here? and I said, well, its gonna take a little while, “I’m coming from out of town”.

good luck Irma.

GT 2b; since 80’s, no prior tx, sofosbuvir and daclatasvir compounded from API’s at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. I feel GOOD!! I knew that I WOULD!””
2 December 2015 at 3:38 am #5004
Gaj
- Topics: 29
- Replies: 1,402
- Total: 1,431
- Guardian Angel
@gaj
,Irma88,

Yes, well I suppose I tend to follow Brian’s advice to “Always Look On The Bright Side”

: : : :

so I’m sure that “feeling better than for many years” isn’t as good as it gets.
The sides, if that is what they are, seem hard to distinguish from the virus. I have tried to be cautious during the high energy days after others warnings but the fog does seem to be thinning with periods of far greater clarity. And hope.

G

G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
2 December 2015 at 2:53 pm #5054
IRMA88
- Topics: 2
- Replies: 39
- Total: 41
- Recovery Champion
@irma88
Hi 2B
I had seen you posting so I wasn’t gonna steal your name
I’ve been reading for a while, getting the courage to post illy:' /> You weren’t kidding when you said you were from out of town!!! I think I would have done the same. Good Luck to you too.

GAJ, You are spot on with the “hard to distinguish” comment. I think that’s my problem at the moment but I know better days are yet to come

And HI and thank you to Zhuk & Life

G2B – DIAGNOSED 2014, STARTED SOF/DAC 11/11/15 VL 6M
UND @ WEEK4
FINISHED TREATMENT 26/4/16
UND @ WEEK 24
ALT 12 AST 15
MY ETERNAL GRATITUDE TO GREG JEFFERYS & DR FREEMAN
2 December 2015 at 5:09 pm #5062
2b
- Topics: 17
- Replies: 332
- Total: 349
- Guardian Angel
@2b
Hi Irma, well I guess there really aren’t that many of us “2B”s around, not sure how many others there are on the board that are 2b, you’re the first I recall.

At least you live in a nice place, I thought Sydney and the rest of Australia that I saw was all pretty damn nice. Someday I’d like to see Tasmania!

Let’s hope the 2bs are as lucky as some of these other genotypes we see. In this country, our FDA won’t even approve daclatasvir and sofosbuvir for GT2. the most they will appove is sovaldi and ribavirin….but even that’s a ruse cause Insurance co.s most of time turn you down for the sovaldi anyway.

see you around.

GT 2b; since 80’s, no prior tx, sofosbuvir and daclatasvir compounded from API’s at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. I feel GOOD!! I knew that I WOULD!””
2 December 2015 at 6:24 pm #5063
emilio
- Topics: 13
- Replies: 368
- Total: 381
- Guardian Angel
@emilio
Hey IRMA

I’ve seen you about and welcome finally. Yeah not many 2bs here so you are rather exotic lol, you and 2b (not the disease the human). Good luck with it all and riba is an easy add in if you wish to go that way. Geno 1b here F2/3 and at 30 years decided to do 18 weeks and lead out with 6 weeks of riba. For me personally I felt a big change soon after starting tx, good energy with a crazy sleep pattern and at 6 weeks I shifted to another level of wellbeing. Slowly inching back more sleep now at 8 weeks from 3 hour stints and 5 hours per night to 6 and sometimes more. Lol says me who is posting this at 130am. Welcome. Em

PS who needs speed when we have DAAs
3 December 2015 at 4:19 am #5108
IRMA88
- Topics: 2
- Replies: 39
- Total: 41
- Recovery Champion
@irma88
Hey 2b & Emilio,
Exotic? lol I wish! And no, I haven’t seen any other 2b’s around, although I thought I read something from a 2a/c a few days ago.
Yes I’ve been told that we are the easiest to cure, but my faith in the opinions of some health experts has been badly shaken in the last few months. We shall see,,,,,,,there is always hope.

I also have weird sleeping patterns but now seem to be settling down a bit. Before starting I hardly slept & if I did it was never longer than 3/4 hours before waking. Do you guys take pills morning or night? I take in the morning so I don’t forget.I don’t know if that makes a difference in the energy levels/sides.

I already have 12 weeks of riba here so I probably will start them at week 13,,,,, just to make sure I guess.

I will go for my 4 week bloods next Wednesday and see where I’m at. I was tempted at 2 weeks but decided to hold off.
Oops, better head off to work now! Have a great day/night.

G2B – DIAGNOSED 2014, STARTED SOF/DAC 11/11/15 VL 6M
UND @ WEEK4
FINISHED TREATMENT 26/4/16
UND @ WEEK 24
ALT 12 AST 15
MY ETERNAL GRATITUDE TO GREG JEFFERYS & DR FREEMAN
4 December 2015 at 12:16 am #5205
2b
- Topics: 17
- Replies: 332
- Total: 349
- Guardian Angel
@2b
How about that Irma? You and I are a couple of rare exotic species,
I know I have not run into many others in my exploration of these various boards for last couple decades, wonder how that happened with you in Australia and me all the way over here. …. were you ever in the US in the 80’s?

GT 2b; since 80’s, no prior tx, sofosbuvir and daclatasvir compounded from API’s at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. I feel GOOD!! I knew that I WOULD!””
4 December 2015 at 7:45 pm #5247
1folho
- Topics: 0
- Replies: 7
- Total: 7
- Novice
@1folho
Hello all. First post by me.
Genotype 2.
Diagnosed 2013.
Dating from 1974 most probably
Sof + DAC from 8/11/15

I travelled from UK to pick up meds in Sydney on 2/11/15. I am now in Thailand and today provided blood for testing at 4 weeks. Unfortunately, due to a spate of public holidays, I will need to wait another 2 weeks for results.
It has been reassuring to hear peoples different experiences of the treatment. I was becoming concerned at not feeling, “better than I have for years.” I am still up and down but feel I am getting stronger. Sleep has also started to improve. Good luck to you all.
5 December 2015 at 1:54 am #5260
klhilde
- Topics: 30
- Replies: 223
- Total: 253
- Guardian Angel
@klhilde
Hi 1folho,

I had consultations, an ultrasound and a fibroscan done at Vejthani Hospital in Bangkok. My Gastroenterologist there was Dr. Sukprasert Jutaghokiate.

While Vejthani was not as impressive as the pictures I’ve seen of Bumrungrad Hospital, it was a very nice facility, completely modern, with a large, very attentive and seemingly very knowledgeable staff. My doctor made the entire experience comfortable and confidence building. The woman that did my ultrasound seemed distinctly more competent than the person who had previously done the procedure two years earlier in the US. I would absolutely recommend Vejthani Hospital as a medical tourism destination.

Would you be willing to tell us what facility you are using and your impressions of them? This is important as others often need to see these types of testimonials to be comfortable trying something as unorthodox as medical tourism.
5 December 2015 at 8:33 am #5275
1folho
- Topics: 0
- Replies: 7
- Total: 7
- Novice
@1folho
Hi Klhilde.
I am using a local Thai clinic here in Chiang Mai. Fortunately for me the doctor speaks very good English and is more knowledgeable about HepC than any UK GP I have met.
Medical tourism is a significant part of economy in Thailand so not so unorthodox.
I brought my medication through customs without declaring but had a copy of my prescription from Dr Freeman just in case.
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