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TOPIC: How many GT3's on this forum are cured?

How manny GT3's on this forum are cured? 3 years 4 months ago #20343

  • Hope
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Hi there, just wandering (while waiting for my results 10 weeks after EOT and being "a bit" anxious of course)...how manny of you on the forum with GT3, being treated with Sof/Dac for 12 weeks are really cured? Because as I see it it's hardly 80, 90% as we hoped for at the begining of treatment?
GEN3 for 20+ years
November 2015: Bilirubin 6, AST 0,88, ALT 1,74, gamaGT 0,17, HCV RNA 43800 (previous 478000)
Fibroscan form 4,3 do 6,9 (measuring twice a year)
Started Sof/Dac on 23.2.2016
Week 4: S-Bilirubin: 12, S-Bilirubin dir: 4, AST: 0,30, ALT: 0,36, Gama GT: 0,17, Fibroscan: 4,4, still HCV RNA positive (no VL measured)
Week 8: S-Bilirubin: 8, S-Bilirubin dir: 3, AST: 0,39, ALT: 0,39, GamaGT: 0,14, UND :)
16.5. EOT, everything like it's supposed to be :)
6 month after EOT still UND :)
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How manny GT3's on this forum are cured? 3 years 4 months ago #20344

  • Hazel
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Me! and the two people I know here who have not cleared happen to be 1a. I have another friend who is G3 who has treated 4 times before but is now clear. None of those people are forum people. The stats are what they should be, about one in 10 won't, that is quite a few in large groups. The odds are very good, really disappointing for those who don't but there new options all the time. Lots of us have had a treatment journey, had to try again. This forum reports all the news, not just the good news- it is the reality.
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
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How manny GT3's on this forum are cured? 3 years 4 months ago #20350

  • coral
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Hi Hope. I know why you are anxious at the moment but the odds really are in your favour. G3 is a bit harder to clear but as Hazel said there is a decent percentage of people that do and they do not necessarily report on this forum.

I am a 1a that recently relapsed but I know that I have options for retreatment and will beat it in the end. I know when I post about this it can cause a bit of anxiety so I try to minimise it but I agree with Hazel that it all needs to be reported.

Hang in there Hope. Wishing you all the best for your next results. #flower #flower
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24...
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How manny GT3's on this forum are cured? 3 years 4 months ago #20357

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coral wrote:
Hi Hope. I know why you are anxious at the moment but the odds really are in your favour. G3 is a bit harder to clear but as Hazel said there is a decent percentage of people that do and they do not necessarily report on this forum.

I am a 1a that recently relapsed but I know that I have options for retreatment and will beat it in the end. I know when I post about this it can cause a bit of anxiety so I try to minimise it but I agree with Hazel that it all needs to be reported.

Hang in there Hope. Wishing you all the best for your next results. #flower #flower

I was also 1.9 million before starting treatment (type 1a)

Your ALT still look better than mine last time (mine was 230)

Hope you restart treatment again and SVR too!
Last Edit: 3 years 4 months ago by tweakmax.
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How manny GT3's on this forum are cured? 3 years 4 months ago #20364

  • gary
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Hope, I have/had GT3 and did Sof/Dac 12 weeks, had blood tests last week and am SVR 24. Best of luck!!
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How manny GT3's on this forum are cured? 3 years 4 months ago #20368

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gary wrote:
...... had blood tests last week and am SVR 24.....

:+1: Congratulations Gary, that is a magic number. #magic
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
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How manny GT3's on this forum are cured? 3 years 4 months ago #20371

  • Ariel
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coral wrote:
Hi Hope. I know why you are anxious at the moment but the odds really are in your favour. G3 is a bit harder to clear but as Hazel said there is a decent percentage of people that do and they do not necessarily report on this forum.

I am a 1a that recently relapsed but I know that I have options for retreatment and will beat it in the end. I know when I post about this it can cause a bit of anxiety so I try to minimise it but I agree with Hazel that it all needs to be reported.

Hang in there Hope. Wishing you all the best for your next results. #flower #flower

Coral you are so kind your empathy shines through even in with your own personal issues at present, this is so kind of you I totally agree that writing up relapse is not pleasant, but you have my support for one. Unfortunately some people do and have relapse/d and I am glad to see the topic for all genotypes because it's one of the things that I am still working on fortnightly with my psych and I relapsed a few years ago but it was the old tx and an unpleasant ending, still, all relapsers need support more than anyone I think. It took me a month for it to even sink in thinking back, and then I turned into a lobbying machine once I discovered that I had been treated with "old meds" as in the old stuff when they knew that the new stuff was around.
The way I see it is we are a whole person not just a physical body. In my case I got lucky this time and have held up so far to SVR18 but I still have to heal my ptsd to move forward fully. And in my case, the ptsd was from the old tx.
My heart is with all who relapse
I'm so relieved that there are better options and I would love information on the best practice lobbying in Oz re the new drugs Pipeline because it was a marathon lobbying for Sofosbuvir wasn't it fellow political naggers! Three years is too long so I hope that the newer meds are through PBAC to PBS faster than that.
It still astounds me the way FIXHC is pretty much the only honest real sane non greed driven place for the hepC patient globally
For this we all give thanks
All relapsers I am so hopeful for you and we know that we are in good hands here at FHC
LOVE #love #love
Ariel
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
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How manny GT3's on this forum are cured? 3 years 4 months ago #20372

  • gary
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Thanks Gaj. Sorry to see that you relapsed but am sure that you will eventually succeed what with all the options available. Good luck with everything!
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How manny GT3's on this forum are cured? 3 years 4 months ago #20373

  • coral
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Congratulations Gary! That's such good news and it's always good to be reminded by real people, in addition to the statistics, that the successes far outweigh the relapses. #flower #flower
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24...
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How manny GT3's on this forum are cured? 3 years 4 months ago #20377

  • mgalbrai
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Tug
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forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
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How manny GT3's on this forum are cured? 3 years 4 months ago #20408

  • Ariel
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Gary congrats to you on SVR24 too
Awesome for you
wishing you a great future no hepc so good to read.
Happies from Ariel
#flower #flower
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
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How manny GT3's on this forum are cured? 3 years 4 months ago #20427

  • gary
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Thanks Ariel. Congratulations on your cure, as well. It is fantastic to see so many people reporting SVR 12 & 24. Enjoy life HepC free!!
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How manny GT3's on this forum are cured? 3 years 4 months ago #20458

  • coral
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Hi Ariel. Thanks for your kind words a couple of days ago. #love #love
Despite my huge disappointment (understatement!) in not reaching SVR this time I'm really happy to rejoice with you and others that do.
Largely because I know just how much it means to everyone (and I did have a taste of it) but it also reinforces my belief that I'll get there in the end. Coral #flower
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24...
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How manny GT3's on this forum are cured? 3 years 4 months ago #20461

  • mgalbrai
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You WILL get there!
m
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forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
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How manny GT3's on this forum are cured? 3 years 2 weeks ago #22810

  • Another Attempt
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Hi folks I haven't been on here for a while been doing a lot of changing to my life ,I finished treatment on the 21st of Sept had my bloods done a month later and James called me to give me the results and after 8 months of treatment he told me it was undetected at the 4 week mark post treatment :cheer: ,I couldn't show the elation I felt as I had a good mate standing near by that knows nothing about this problem I've lived with for 20 odd years.
But it's not over yet I have to have more bloods done at the 12 week mark and James tells me it's around a 25 to 1 shot so here's hoping I backed a winner for this third attempt at getting rid of this thing that has plagued my mind and body all these years.
If I relapse I'll have another crack at getting rid of it once and for all but really hoping this is it this time for 3rd time lucky.
I still have a bit of discomfort from time t time and not sure if that means it's fighting back or weather it just the liver getting over the meds ?

Anyway good luck to all that are going through treatment atm

AA
g3 since 96 :( 2 rounds of interferon in 2010 and again in 2012 and that was hell
4 week bloods <15
Undetected at 12 weeks :)
Last Edit: 3 years 2 weeks ago by Another Attempt.
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