TOPIC: Ariel takes the Plunge

Hi Ariel,
I haven't logged on for quite a while, but decided to see how everyone's going.
Firstly, glad you're SVR 24 wks.

I can relate to how you feel tired & the tinnitus thing, I also suffer from these since my last horrible Interfirin tx,
I'm sure it caused me many post tx symptoms.

Because you had the IFN tx, if you had hep B it probably would have cured it , the tx, as that happened to me.
It's easy to check with a blood test, but I bet you're OK, but for peace of mind maybe best to just check?

The loud screeching in the ears is bad, it got worse since taking my son J to see Black Sabbath!!
But you can kind of get used to it.

I went to a specialist about it & there's no real cure unfortunately, but he did recommend Yoga! also if you can afford it, sometimes special hearing aids can help, as he said it's caused form hearing loss.
Also "white music" when trying to go to sleep helps divert the mind from it, he recommended.

Nobody understands how exhausted I feel most of the time....although my young J IS 16, so a bit of a handful.
One day I dream of getting out of the City with its noise & stress, & hiding away in a relaxing environment....lush rainforests & beaches come to mind....

But yes, I agree, the IFN tx did leave it's mark on all of us who went through those tx times.

So I understand how you feel Ariel, I really do, it's not fair. That bloody IFN tx was a real bugger.

If it'd help at all, PM me & I'll send you my number , sometimes it helps just to chat to someone else who understands.
I'm just in Sydney so not too far away?

Sending hugs,
Love Cindi x

I

Ariel, Congratulations on SVR 24 sweetie!!

Sucks to hear you have to sell your house. Damn, that really sucks....

Here for you, mermaid.

"Hello forum
Reporting in after SVR24 etc a while back because I have an important query
Now that's in my past and I have stepped back and re-evaluated my situation after losing my professional career to interferon after the patching up post cure such as $3,500 on teeth that were perfect pre peginf, having all scans and colonoscopy etc blah blah I have realised how much money this has cost me and I am forced to sell my home."

Hi Ariel,

I think it is hard to simply 'move on' after so much stuff having flowed under the bridge during a person's life with HCV. For me I lost a lot, and maybe have more to loose as well in the future. But having said that, in a strange, perverse and circuitous sort of way I ended up with the family I wanted and cherish so dearly.

I found it worse when using DAA's and feeling well again (factoring out old age) and realising what I had missed carrying this virus. No one really understood what having HCV was like - for that matter neither did I until I was rid of it for a while.

Still trying and looking forward to a SVR future whatever that holds for me. The only redemption (pardon the pun Dr Freeman) has been finding this site and getting treated even though the first time round it failed.

I don't know what to say about repositioning the impact HCV has had on one's life, post treatment. I think dealing with the emotional side of HCV is easier when you are fighting it - and you assess the damage after the battle is won.

I hope things work out for you, and again in a perverse way, you describing your distress has helped me make more sense of my own feelings and fears.



Yours


Jeff

Hi Jeff
Yes sorry for the in your face post but I am an honest talker and don't sugar coat stuff unless it's to protect others from being hurt and this was worrying me. I'm actually starting to be able to talk more openly about the legacy of the whole thing but specifically the peginf damage to my overall life.
You have my empathy doing a second round of DAAs you know that I am sure.
I experienced relapse after a really rough peginf riba myself and well, it wasn't pretty let's say.
I'm building a new life yes, I have found I have no choice. Sink or swim and some days are just stay afloat. Personality comes into play, I am naturally hard on myself and also desensitised to medical stuff generally but lately have a heightened sense of foreboding, I think that you are possibly correct in that being unwell for a long time takes a time to get past.
Family I have are friends who know about what happened (only a few people) and my daughters that's it. I'm grateful for FHC forum
It's supported me and others greatly.
Today I sell a surfboard, in around half an hour it's going. I still have another one.
Then I can pay a bill.
I am also resigning myself to this type of stuff for a while but also know that at least I own resources to dip into.
My heart is with those who have nothing behind them
At least I have worked, educated my kids and can sell off stuff until a security comes back into my life.
Regarding your tx I am sending you peace and hope for cure.
Thankyou to all the people who have rsvp to my post
Hanging in
Change is hard when it's constant for over five years it's tiring but I am trying my darnedest to rebuild.
Sending lots of loving splashes to everyone affected by HCV
A

Hi Ariel,

You have been fighting so hard to overcome the things that life has thrown at you that your exhaustion is understandable. I think many of us are starting to realise the real cost of this disease to our lives over the past decades. You also have the added burden of a failed IFN treatment and the ongoing health consequences of that which just makes my head spin.

You have put out so much support and kindness to others on this site (including me) that I hope you know that we are sending it back to you in buckets and spades. You're juggling a lot here Ariel so one day at a time but be kind to yourself along the way. We hear you. xx

Hi Ariel,

I have been trying to PM you but it doesn't seem to be working.
I don't know if I'm doing something wrong?!

Can you message me please?

maybe I can answer that?

Thanks,
Cindi xo

Hi Ariel,
so sorry to hear about all the crap you're experiencing. Makes it hard when you are hoping for just the opposite after tx. Reading your posts is like going on a rollercoaster ride with you just sad it has left you feeling so low just now. Having said that I am hoping along with all your friends on here that you will be riding away from this bad patch to a more upbeat one. Am truly impressed that your wonderful sense of humour still shines through regardless!

My partner suffers from Tinnitus too and sometimes he can almost forget about it and other times it drives him totally nuts so I have seen how people suffer deeply from it first hand. My heart goes out to you and wish there was a magic wand out there to make this shit all go away.

Teeth Brrrrrrrrrrr won't even go there! At least you can count on being pain free once the tooth is out just horrible to lose them. Hope things start to get better real soon. One day at a time is great advce from Coral. Thinking of you and sending lots of hugs
Nadia xx

Hi Ariel,

I've sent you my email contact so we can chat.
....I think

My memory's so stuffed from all the Interferon tx I've had in the past that I get muddled a bit, having trouble with my private messaging, sorry.

Keep strong girl

Love Cindi x

Hi Ariel, So sorry to hear the things you are going thru. I hope you feel better soon, and your situation will turn around.
I still have the fatigue, joint inflamation, and headaches, but to a lesser degree since my EOT. I never went thru the Peg/inf as you did, but would have only my MD warned me against it
since I went thru breast cancer tx earlier. I also have tinnitus, that comes and goes, but not severe.
I was saddened to hear you might have to sell things at this time. Hope you can manage and hold on to what has given you comfort and peace.
Take care,... Wishing you the best with good health and blessings for the future.....Fara

Hi Ariel I am so sorry to read that you may have to sell your home. Would payment plans be an option for your bills? Your health battles have been enormous, you deserve a stress free life from here on in.

I'm happy to hear you have SVR24! One positive in your struggles.

I have suffered tinnitus for as long as I can remember.....whether it is "caused" by Hep C I don't know however since finishing my treatment it abated (a bit quieter) for a while but is now as loud and raucous like it used to be. My hearing is not so good but mainly because of the tinnitus I would imagine. I do find that stress and illness make it worse.

You have always been so encouraging, funny and supportive to everyone on this Forum and seeing the posts of others just shows how many lives you have touched. I wish you well and hang in there.....Xxx

Hey Mermaid, Sorry to read you've got some ongoing life issues, It's such a relief to be SVR and we have been so focused on that for so long, the good news comes and then we have to face the other realities of life ....

Been so busy with otger life issues myself, will be in touch soon and sending BIG

ps We have overcome this and now we must overcome that xox

Thanks everyone for your love
I have a child in hospital in pretty high level care.
I'm so sorry I haven't logged in I simply have no time
I have around a three to four hours drive daily to the hospital plus the time there
Hey, 2017 has to bring something good!
Sending thanks for this loving family here and apologise to anyone who has been worried by my absence I am getting used to the routine atm and wish all the very best as I am well aware we all have lives away from here that can throw up a slippery slope when we least expect it
Xxxxx
Love and splashes from Ariel
I will try to catch up with pms during the coming week
To our American friends I wish you a happy Thanksgiving ❤️

Glad you had a moment my friend.

Our thoughts and prayers are with both of you.

Fitz

You and your family are in my thoughts, stay strong.
Keep writing I enjoy reading your posts!